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Type: Posts; User: BettyBoop

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  1. Thread: burning

    by BettyBoop
    Replies
    18
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    1,799

    WOW! We all have so much in common! Mine is...

    WOW! We all have so much in common! Mine is like Jana's. Hips, legs and ankles. It can get pretty intense at times.

    Take care and best of luck,
  2. Replies
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    973

    Goodmorning Nurse Meesh, I am also new to this...

    Goodmorning Nurse Meesh,

    I am also new to this fantastic family. Welcome and nothing but good wishes for you! I myself just started Plaquenil, so we'll find out together if it helps.

    Love and...
  3. Replies
    9
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    1,035

    Hi Ms Hutch, I'm fairly new to this "family"...

    Hi Ms Hutch,

    I'm fairly new to this "family" myself. I too have fibro and they can't make up their mind if I have SLE. But I do have DLE.

    Welcome and you will find that you love this place....
  4. Replies
    10
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    984

    Drink, Venutra Co fair? That is where we...

    Drink,

    Venutra Co fair? That is where we moved from to Illinois 22 years ago. Loved it there, just too expensive. We always loved the fair. I especially like the funnel cakes and curly fries,...
  5. Replies
    8
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    1,122

    Ahhhh...but just think....no more "female"...

    Ahhhh...but just think....no more "female" problems. Have a speedy recovery.
  6. Replies
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    850

    I too have a terrible reaction to the sun. But...

    I too have a terrible reaction to the sun. But rheumy told me that since I don't have the lupus rash now, I probable don't have lupus ( among other things). Even thought I told her I don't go out in...
  7. Replies
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    722

    Amanda & Debbie, Thank you both for your...

    Amanda & Debbie,

    Thank you both for your posts. It sure helps to know others feel as I do. It is so frustrating. The doctors don't agree and I'm suppose to make sense of it. Good thing I'm...
  8. Replies
    4
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    545

    Lagrace, My rheumy also dx'd me with fibro. I...

    Lagrace,

    My rheumy also dx'd me with fibro. I have a positive ANA and all the symptoms of both fibro and lupus. From what I've read, they kind of cross as far as symptoms go. Good luck to you...
  9. Thread: Hair ???

    by BettyBoop
    Replies
    16
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    1,567

    Leann, I have patches of hair loss and no dx,...

    Leann,

    I have patches of hair loss and no dx, no meds that would cause it. Doc just put me on Plaquenil for it, but I've read that people have hair loss as a side effect. Oh well....
  10. Thread: EMG Test

    by BettyBoop
    Replies
    10
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    2,648

    Sandra, I had this done for both my arms and...

    Sandra,

    I had this done for both my arms and legs. They told me they were both "positive" but were unable to determine where the pain was originating. Hope you have better luck.
  11. Replies
    4
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    722

    I'm So Confused!!

    :no: Saw my rheumy for the first time. She said, after a positive ANA, that I probable don't have "active" lupus because it was low positive. Titers were only 1:40. I have severe hair loss, large...
  12. Replies
    17
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    2,238

    Hi Brian... Sorry to hear about the ruff time...

    Hi Brian...

    Sorry to hear about the ruff time with your wife. If you are feeling very sad, you might want to discuss things with your doc. He may want to change or put you on an anti-depressant....
  13. Replies
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    877

    Hello Givealittlelove... It took 3 years before...

    Hello Givealittlelove...
    It took 3 years before I had a positive ANA, but every symptom and pain. So don't give up, the tests can bounce back and forth. I have my first rheumy appt on Monday. Hang...
  14. Replies
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    2,149

    Brian - I saw my pain mgmt doc Monday. He...

    Brian -
    I saw my pain mgmt doc Monday. He injected my hip in 3 places. It was great...for a few days. The pain was back full force in the night last night. I also have a schnauzer, a mini. She is...
  15. Replies
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    2,149

    Brian, good for you. (?!) All of my neg ANA's for...

    Brian, good for you. (?!) All of my neg ANA's for the last 3yrs were from Quest labs. Now I have a positive thru a hospital lab. I will be going to Mayo..someday..lol I'm on the waiting list....
  16. Replies
    9
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    1,184

    Oh, how I know what you mean!! I get it in my...

    Oh, how I know what you mean!! I get it in my fingers, toes, feet and calves. The pain is unbearable! I'm just seeing a rheumy for the first time on Monday, so hopefully I'll be able to find...
  17. Replies
    9
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    1,068

    Hi Thank you Danica & Susie. I have had IBS...

    Hi
    Thank you Danica & Susie.
    I have had IBS for years with both diarrhea and constipation. But this seems to be worse that even that. I guess it's another "learn" for me.

    Thanks again.
    ...
  18. Replies
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    3,624

    Hi... I was terminated from my job. They...

    Hi...
    I was terminated from my job. They nit-picked for an excuse because I was only able to work 4 hrs/day (barely). They wanted me to go back full time. I talked to unemployment and they said I...
  19. Replies
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    1,068

    I'm newly dx'd with Lupus but have had fibro for...

    I'm newly dx'd with Lupus but have had fibro for a while. I get severe abdominal pains. Like being stabbed with a knife. Does anyone else have these?

    Danice
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