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Type: Posts; User: rabraham09

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    Introducing Myself

    Hi,

    Thank you for the welcome. It always feels good to get them. I need to clarify something before it is taken out of context. First, I do not have systemic lupus. My wife was diagnosed with the...
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    Hydroxychloroquine

    Let me see if I can help. BTW, I am a former British Citizen of a British colony now independent. About weight. If I remember my school days well, it is 14 pounds equals 1 stone, 8 stone is 1 cwt and...
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    Encouragement

    Thank you for your kind thoughts. We are learning and trying to focus on the future and to do so we must put this thing aside. I don't know how you forget it when every time my wife has to ask for my...
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    To get all the details and to experience some of...

    To get all the details and to experience some of what she endured, you might want to pick up a copy of the book. I would have liked to take this to a higher level but there is an attitude out there....
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    Plaquenil vs generic

    Rob,

    I had asked two doctors and then I read something in one AARP bulletin and all have said that there is no difference between the brand name and the generic. My understanding is that when a...
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    Rob, We did seek the legal course and the...

    Rob,

    We did seek the legal course and the ophthalmologist did acknowledge his mistakes. The rheumatologist who made even more mistakes than he did refused and our attorney chose not to follow-up....
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    Re: Hydroxychloroquine

    You made me feel good about being on this forum. May I add that not all patients who are on this drug will experience the same problems as my wife. It seems that some people have a low tolerance for...
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    Hydroxychloroquine

    You made me feel good about being on this forum. May I add that not all patients who are on this drug will experience the same problems as my wife. It seems that some people have a low tolerance for...
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    HCQ retinopathy

    Nah i think you have got me all wrong here, i dint mean anything by the post i wrote, i dont get how ppl read attitudes through what they write?

    I was interested otherwise i wouldnt of put up what...
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    Hydroxychloroquine

    Rob,

    This forum is about Lupus but somehow I got it shifted to the effects of Hydroxychloroquine which is what caused my wife's loss of vision. I understand what you are telling me but I do not...
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    Re: Retinopathy

    I wish that we had the kind of attention you are getting from your physicians. I do not want to dwell on what happened to my wife or the mistakes that caused this tragedy. My aim is to raise an...
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    Hydroxychloroquine Retinopathy

    First, keep in mind that I am not a doctor so you should talk to your doctor if I have raised your concerns about this drug. I got into this forum to share my experiences with others. Precaution is...
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    Recommended Safe Dosage

    I sense a cynical response here but I may be mistaken. My effort is to try to show that a) every doctor has a different opinion about what information the patient should be given because my wife's...
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    HCQ retinopathy

    The drug itself comes with a brochure that describes possible side effects. It does not mention anything about a recommended safe dosage. Just for your information, my wife sustained HCQ retinopathy...
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    Hydroxychloroquine Retinopathy

    How many people have heard of this condition? How many people know that Hydroxychloroquine is also called HCQ and that it is the generic for Plaquenil? And finally, how many people know that there is...
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    Reply to Lori

    Lori,

    I am having problems using this forum. Never done this thing in the past. Hope I am doing this right. In answer to your questions first, we have been married for 55 years, have five grown...
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    Introducing myself

    Hi, I am new to this forum and I would like to introduce myself to anyone who would like to hear from me. Call me Rudy. I am 76 years of age and having a ball since I retired in 1993. Live with my...
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