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Type: Posts; User: Roni Shawn

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    I run a high temp all the time (well most of the...

    I run a high temp all the time (well most of the time), at around 99 and up. It is RARELY under that. Just an FYI.
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    It's been a long time

    I'm sorry that I havent kept in touch with everyone. But I needed to get on here today. I watched Mystery Diagnosis. There was this woman that had the same level of ANA that I had, and MY docs tell...
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    WAAIT! I was on Methadone. Sorry. My mind is so...

    WAAIT! I was on Methadone. Sorry. My mind is so gone lately. Just wanted to clarify that. But I just looked up that Hypokalemia and that is what it sounds like.
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    Bless your Heart! Thank You so much for the help...

    Bless your Heart! Thank You so much for the help on that. I do not, however, take methadone anymore. But I wonder if that was the reason anyway? It had been about 2 mo since I had taken methadone...
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    Well I am doing better, but I am again having...

    Well I am doing better, but I am again having diahrea, which in turn takes the potassium from the body. So I dono what to do. I have lost so much weight cuz if I eat, it goes right thru me, and its...
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    Lupus tried to take me yet again

    Well it tried to take me again. It was the 17th and I was sick from staph infection all over my face (I have horrible acne and I am a picker--always have been, and was so drugged up from taking too...
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    I am ok. Today BP is so damn...

    I am ok. Today BP is so damn high...146/111...Feel awful...Drs wont listen....So I dono what the hell to think...so if someone weants to call me, 541.962.7039 I would appreciate the support...Thanks...
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    I have a post in the medications forum about what...

    I have a post in the medications forum about what I take. I do not take ANYTHING for Lupus treatment. I wish that someone here could come with me to Doc appt to see how these people treat me. And...
  9. When you have an ANA of 1:40 and homogenous, what...

    When you have an ANA of 1:40 and homogenous, what does that mean? Mine was highest at 160. But from what the docs tell ME, it needs to be in the thousands before you have Lupus. I feel that if it is...
  10. Anyone have trbl with taking too much meds?

    I am...And I am NOT happy about it either. I am so ashamed, I am having serious depression, knowing that I have 2 pills left of my percocet.
    And knowing that the doc will NOT fill it before its...
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    PLEASE forgive me. I cannot type when not well. I...

    PLEASE forgive me. I cannot type when not well. I went to bed after I sent the email earlier, that was at 1pm, woke at 830 and its 10, now going back tobed. I am hruting in my hips so badly. I know I...
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    Well just about all of those warning signs are...

    Well just about all of those warning signs are me; 7 out of 9. But you now what whould happen i I went in the ER? They weould send me home and take my percocets aeay from me. I font have the shallow...
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    URGENT MESSAGE

    I was recently put on the Fentanyl Duragesic Patch. As soon as I put it on, within minutes I was experiencing some serious symptoms. And a friend of mine whom has had several strokes, had many mini...
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    Thank You. I am being referred to a rhuemy. I...

    Thank You. I am being referred to a rhuemy. I have seen one in the past. But they said I only had Fibromyalgia. But that was 3 years ago. And 3 years ago, BEFORE the rhuemy, I was diagnosed with...
  15. Thread: Stages

    by Roni Shawn
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    Yeah, I looked it up too, and I haven't seen...

    Yeah, I looked it up too, and I haven't seen ANYTHING about stages of Lupus. It was weird, cuz he asked me what stage I was in, and I had no clue that there WAS any, and that is what I told him.
  16. Thread: Stages

    by Roni Shawn
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    Stages

    Does anyone know the stages of Lupus? My Pain Clinic Doc wanted to know what stage I was in...
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    I live with naturally red skin now, since I have...

    I live with naturally red skin now, since I have had Lupus. In the winter, people are always asking me if I have been in the tan beds..LOL...I just have to tell them that it is caused from this poopy...
  18. Thread: NEW DOCTOR

    by Roni Shawn
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    NEW DOCTOR

    I am going to a new one today, and am nervous, as I feel that he wont believe me like the others, and I wont get the meds I need. That has happened to me for so long now. If anyone has any...
  19. I have Sjogren's. I have about everything you can...

    I have Sjogren's. I have about everything you can possibly have because of the poopy lupus (just my silly nic for it, cuz its a shitty disease and I try to make light of it when Im talking about it...
  20. Thread: PREDNISONE

    by Roni Shawn
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    Hatlady, Dori is MY name too. I am avoiding...

    Hatlady, Dori is MY name too.

    I am avoiding Pred. They did put me on it in 02, I did the 7 day treatment. I could NOT handle it. My mood swings were AWFUL. Never been that bitchy ever. So I avoid...
  21. I am weird. I cannot be in the sun at ALL. I get...

    I am weird. I cannot be in the sun at ALL. I get this HORRIBLE UGLY rash on my arms. But the tanning beds take it away! I do not recommend it for people, but it is worth a trial run of probably 4...
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    My test results and such didnt come out the way...

    My test results and such didnt come out the way that I typed them out. So please bare with it. I hope you can understand it all....Thanks for the effort for reading and helping me out everyone...
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    A while back, I was on Oxycontin. I went off of...

    A while back, I was on Oxycontin. I went off of it after 2 mo of use. Then I started this zapping in my head, and anywhere else it wanted to go. It was constant, but would come and go, every few...
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    What meds are good?

    What meds are good, or is it best to be on natural therapy? I tell you this is what I am on:

    LEVOXYL--For Hypothyroidism
    LEXAPRO--Depression and anxiety
    COUMADIN--For blood thinning/regualtion...
  25. Blue, the same exact things happen to me. My...

    Blue, the same exact things happen to me. My blood work doesn't show, but it is very evident that I have it. I have had testing that the ANA has been elevated, but then they do it again, and it's...
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