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Type: Posts; User: AngelaS

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  1. I'm not sure if it will raise your blood...

    I'm not sure if it will raise your blood pressure, but my rheumy put me on Provigil for the fatigue and it is really helping. Just like most of you, the fatigue was disabling me. In fact, that is...
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    provigil

    From what I am reading, most of you only take the med as needed. Then, how do you make through the other days? Please share your secrets. I have now been on it everyday for a little over 2 weeks...
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    Actually, I was getting on the board to ask...

    Actually, I was getting on the board to ask someone about Provigil. My rheumatologist gave me this last week to help treat the chronic, debilatating fatigue that nothing else
    has worked for. It...
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    Thanks everyone for your support. I have found a...

    Thanks everyone for your support. I have found a good rheumatologist in this area. She seems to be up on the latest news and medicines. I saw her 3 weeks ago and she drew enough blood for a whole...
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    When does the flare go away??

    Sorry, it's been awhile since I have posted, but my husband was transferred to another state (from Tennessee to Massachusetts) with his job, so I have been adjusting. My question is, when does the...
  6. Thread: sun...flares?

    by AngelaS
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    Fatigue is my worst lupus symptom at this time...

    Fatigue is my worst lupus symptom at this time also, so being in the sun is not an option for me right now. When I get out in the sun I have to plan at least a day of down time afterwards. I don't...
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    I'm not sure about the bathroom trip, but the...

    I'm not sure about the bathroom trip, but the other is normal. I was diagnosed 7 months ago, and at first it was horrible. I was in so much pain and so tired that as soon as I got home I would go...
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    When I run a fever it is usually between 99.5 and...

    When I run a fever it is usually between 99.5 and 100.2 and I can be in a bad flare when this happens. Just like what Susie said, everyone is not the same. I have been hospitalized at a temp of...
  9. Thread: I'm new

    by AngelaS
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    Unfortuantely, fatigue is the number one symptom...

    Unfortuantely, fatigue is the number one symptom of lupus. The only advice I can give you is to rest. I have learned the hard way that when your body is telling you that you are tired, you need to...
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    It feels like pins and needles.

    I had a new symptom last week and wondering if anyone can relate. Last week I did something bad, like go out in the sun for 2 days in a row for 2 hours each. By the end of the second day, I began...
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    The red rash across my cheeks, bridge of nose and...

    The red rash across my cheeks, bridge of nose and forehead and was finally got me a diagnosis. Mine was not raised either, just a red color, but unfortunately makeup didn't help much. Hang in...
  12. Thread: Insomnia

    by AngelaS
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    I have insomnia also with the predinisone. The...

    I have insomnia also with the predinisone. The only problem I ran into was without good sleep I felt even worse during the day. My rheumy gave me Ambien to sleep at night. I was leary at first,...
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    You are definitely not alone!!! I know exactly...

    You are definitely not alone!!! I know exactly how you feel. I am 34 years old and was finally diagnosed in February after fighting with this for about 6 years. I also know the anger and...
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    Tammy, Thank you so much for your support. I am...

    Tammy,
    Thank you so much for your support. I am so glad you have joined our group. It has meant so much to me these past few weeks to be a part of something that understands what I am going...
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    Saysusie, thank you so much for your reply. It...

    Saysusie, thank you so much for your reply. It does help me to better understand my disease, and everything keeps leading back to the stress in my life. Also, I didn't relate the air conditioning...
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    So many questions

    Being newly diagnosed, I have so many questions. I try to call my rheumy, but her nurse seems so agitated to have to answer my questions. Not having a support group in my area makes it hard because...
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    I am taking Cymbalta and have been for 3 months. ...

    I am taking Cymbalta and have been for 3 months. My PCP, the person who figured out that I had lupus, started me on Cymbalta because research showed that it helped depression and chronic pain. I...
  18. Thread: sun...flares?

    by AngelaS
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    The sun does not cause a skin rash for me, but it...

    The sun does not cause a skin rash for me, but it does cause extreme fatigue and pain. One afternoon I decided to play in my flowerbed. It was just so pretty outside, and I had been in the house...
  19. Thread: Leg Pain

    by AngelaS
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    The leg pains come and go for me too. My knees...

    The leg pains come and go for me too. My knees also give me alot of grief. I think some of it comes from the Raynaud's and arthritis, but it all leads back to the lupus. Hot baths seem to help me....
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    Hi, Kimberly. My name is Angela and I know...

    Hi, Kimberly. My name is Angela and I know exactly what you are feeling. I was diagnosed with Lupus only 3 months ago, and I am already tired of being sick. I guess the most frustrating thing is...
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    Newly diagnosed and struggling!!!!

    Hi! My name is Angela. I am 34 years old and I was diagnosed with Lupus and RA in February 2006 after battling off and on with it for 5 years. I have two children 9 and 6 and my husband has a job...
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