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Type: Posts; User: Nemo

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  1. Thread: prednisone

    by Nemo
    Replies
    2
    Views
    402

    Hi, I know how you feel. I tried going down on...

    Hi,
    I know how you feel. I tried going down on the Pred off and on and whenever I got down to 2.5 mg I was in a lot of pain. I take 10 mg. per day now, but if I'm in a lot of pain, I take 15 mg. ...
  2. Thread: help

    by Nemo
    Replies
    8
    Views
    1,106

    I get bad headaches too and my rheumi told me to...

    I get bad headaches too and my rheumi told me to see a neurologist to help treat for migraines. It sounds like I have lupus headaches also. It can be very frustrating when you don't know if it's...
  3. Replies
    15
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    8,973

    Hi, I feel shaky and dizzy a lot too. It can be...

    Hi,
    I feel shaky and dizzy a lot too. It can be scary. I am very D3 defficient. My level is at a 14 and I have been taking 15,000 mg per day. When your D3 is low, you are more sensitive to pain...
  4. Replies
    19
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    7,820

    Hi, I am from South Jersey and have not been...

    Hi,
    I am from South Jersey and have not been able to find a local support group. Were you able to start one up? I have been dealing with Lupus for about a year now and it would be nice to share...
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