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  1. Replies
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    sending hugs to my "brother of the sky"

    sending hugs to my "brother of the sky"
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    hi everyone, so sorry that i have been negligent...

    hi everyone, so sorry that i have been negligent about keeping everyone posted about my benlysta treatments. I try to work during the weeks that i don't have the treatment, and am having some...
  3. hi marla, so sorry that i just found this...

    hi marla,

    so sorry that i just found this thread, but you know me. lol....I too went through a period of time where i could not readily get the liquid form. My pharmacist said that the company...
  4. Thread: Oluwa;

    by mountaindreamer
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    5,577

    hugs of the sky from accross the country are...

    hugs of the sky from accross the country are being sent to you, my friend.
  5. hi jolynn, marla is exactly correct, rheumy's...

    hi jolynn,

    marla is exactly correct, rheumy's like their own lab work, and so your first appointment may not appear to be very productive.

    i would like to add that along with the lab results,...
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    first benlysta treatment

    hi everyone.

    i had my first benlysta treatment this past thursday, and i thought i would share my experience with any of you considering this treatment option. first, the treatment was approved...
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    hi samo, i guess several of us are finding...

    hi samo,

    i guess several of us are finding our ways back after being gone for awhile. it is nice to hear from you, so happy the pooches are still making you laugh. life goes on, even with...
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    hi erica, i don't know what meds your...

    hi erica,

    i don't know what meds your boyfriend is on, but they could definitely be affecting his stomach. I was on methotrexate for 3 years, and suddenly i started suffering with severe stomach...
  9. oh oluwa, so sorry that you had to pospone...

    oh oluwa,

    so sorry that you had to pospone your treatment date, and i am especially sorry that you are in the middle of a terrible flare.....i hope you are better today.

    I start my first...
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    hi sleepyinseattle, I was on the mtx...

    hi sleepyinseattle,

    I was on the mtx injection. I could not take the pill form because of the stomach pain. I am so glad to hear that the pill is not causing you any stomach problems. I hope...
  11. hi bonus mom....sounds like you hit the jack pot...

    hi bonus mom....sounds like you hit the jack pot with the new rheumy.....good looking and a good rheumy, wow....

    Sounds like he agrees with the team approach to treatment, and that is what i find...
  12. awe....hello hello Marla and Marijo.....i have...

    awe....hello hello Marla and Marijo.....i have thought about everyone so much....it is such a comfort to be back.l

    Marijo....I am sorry that I did hot see your messages before Friday. I hope you...
  13. hi sleepyinseattle, Plaquenil did not give me...

    hi sleepyinseattle,

    Plaquenil did not give me a lot of relief either, and I went on MTX. I liked it because I was able to stay off steroids. The weight gain really hurts my joints, so I choose...
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    hey girl.....I have been gone for a year, and I...

    hey girl.....I have been gone for a year, and I never forgot you....I thought about you all of the time. I don't chat on line very well, I get everyone's posts confused and then I get frustrated,...
  15. Thread: New!

    by mountaindreamer
    Replies
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    266

    hi azure, and welcome to WHL. this is a great...

    hi azure, and welcome to WHL.

    this is a great place to seek answers to questions, and to share information with people who "truly understand what you are going through".

    Keep posting and we...
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    hi mother of five, and welcome to WHL. this is...

    hi mother of five, and welcome to WHL. this is an incredibly compassionate and knowledgeable group of people, and I hope you find guidance here while you go through your diagnosis process.

    I...
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    hi ritz, it has been so so long since i have...

    hi ritz,

    it has been so so long since i have been in touch. I hope you are doing ok. I have a huge supply of Lidoderm patches that I can cut and place on parts of my body that are especially...
  18. I also have severe Fibromyalgia, and associate...

    I also have severe Fibromyalgia, and associate most of my "avoid tender touches" to the fms. Any touching of my pressure points will feel like I have been hit with a 2 x 4 board. I just cringe, and...
  19. Hi everyone. To all of the new guys, welcome. I...

    Hi everyone. To all of the new guys, welcome. I am so glad that you found this wonderful group of people who are always ready to help us work through the frustrations of living with lupus.

    I was...
  20. hello again, my old friend. I have been out of...

    hello again, my old friend.

    I have been out of pocket for over a year now, suffering with reactions to meds, horrible flares, the april 28 tuscaloosa tornado and rebuilding my home town, plus...
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    thank you all for your kind words. i am...

    thank you all for your kind words.

    i am actually on a 3 day escape so that my tired body and mind can rest for a bit. I found out some additional information this week: 20,000 homes were...
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    just stopping by

    hi everyone,

    i have not been around for several weeks now. My help was needed to get our family business back on track, so i have been really busy helping at the office in Tuscaloosa, Alabama.
    ...
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    hi amanda, so proud of you for taking the...

    hi amanda,

    so proud of you for taking the "leadership" role in your treatment. you let the dr. know that you were in control, but you let him know what you felt was the best plan....thankfully,...
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    hi mari, you are an incredible lady, and we...

    hi mari,

    you are an incredible lady, and we are the fortunate ones. thank you for being you.

    ha ha ha ha....pocket cheerleaders, i love it. we all travel around in each other's pockets, so,...
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    wonderful news. after such a long fight, how ...

    wonderful news.

    after such a long fight, how nice to get a break just in time to enjoy the spring weather. have fun, and keep smiling.
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