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  1. Replies
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    You're so right. I can't stand the doc to doc...

    You're so right. I can't stand the doc to doc thing anymore. Thanks for your advice I will do just that
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    Ok thanks. Yes 2012 is a long wait especially...

    Ok thanks. Yes 2012 is a long wait especially when you've already been waiting nearly 2 years for some definitive answers not just a probable diagnosis!
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    2yrs still no answer

    It's been a while since I've been on here and since my last post I got a rheumatologist appt. For 2012 ..but at least that means the doc sees something in my chart worth seeing me. About 4 or 5...
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    Nonna, you are such a comfort to so many members...

    Nonna,
    you are such a comfort to so many members of WHL...I'm kickin' back and joining you in your pitty party!!!!!!
    Whooo hooo!!!
    PS. I couldn't agree more with Rob about the doctor mentioning...
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    Oh my goodness!!!! Yesssssssss... I just posted...

    Oh my goodness!!!! Yesssssssss... I just posted on another thread asking if anyone else got that kind of reaction to UV lights. I was at a trade show and I immediately started getting SUPER hot like...
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    Do you get almost like a hot flash and feel like...

    Do you get almost like a hot flash and feel like you could possibly faint??? (im almost 22 so it's not THAT kind of hot flash)
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    your not grasping for anything.. Im going through...

    your not grasping for anything.. Im going through getting diagnosed right now and this exact thing happened to me too.. i just got it today infact! I actually have to sit infront of my fan if I put...
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    Sorry to hear about this failed appt. I wish the...

    Sorry to hear about this failed appt. I wish the doctor could have said things a bit nicer, but I think in that 10yrs + of schooling they lose a bit of compassion along the way... thats what were...
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    You tough cookie xoxoxo

    You tough cookie
    xoxoxo
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    Hey Terri! yeah I have been on 3 inhalers since...

    Hey Terri!
    yeah I have been on 3 inhalers since I was 4 I think... maybe :S I dont really remember.
    I did have a D-dimer done a yr ago to check for a DVT and it was negative. I'm so sorry to hear...
  11. Thread: No one gets it

    by Bench
    Replies
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    1,411

    aw thats horrible!!! its easy for me to say try...

    aw thats horrible!!!
    its easy for me to say try not to stress, but it's your future soooo.... heres my advice:
    buy your fav candy, chocolate, chips, icecream whatever!! and watch a reallllly good...
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    Yeah, I used to be on naproxen, but it made me...

    Yeah, I used to be on naproxen, but it made me feel strange.. partly because I don't usually take anything for pain and I guess it just didn't "agree" with me.
    Then my pain and swelling got so bad...
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    hey! wow that's awful that you even had...

    hey! wow that's awful that you even had surgery!!! I'm sorry to hear it didn't do anything for you in the long run.. that's quite something to undergo just to have the pain come back shortly after....
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    Hey! Wow verrrry interesting.. funny how similar...

    Hey! Wow verrrry interesting.. funny how similar our stories can be huh?
    These canker sores- I didn't really think of them either until I read a post by someone on here in the Lupus symptoms thread...
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    AMEN to everything you just said hahaha There is...

    AMEN to everything you just said hahaha
    There is one thing I love about your posts and it's that you always know what to say! I've finally come to the time where if this gets brushed off with a...
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    First, thank you for making me laugh hahaha and...

    First, thank you for making me laugh hahaha
    and second.. I constantly feel up-lifted every time I come on here and read your post (the same goes to tgal). I cannot believe how similar our stories...
  17. Thread: Lupus rashes

    by Bench
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    Sticky: YES YES YESS!!!! ugh its so uncomfortable and I...

    YES YES YESS!!!! ugh its so uncomfortable and I also have Raynauds.. I'm in the process of getting a diagnosis- my doc is positive it's Lupus however I'm trying to get in to see a Rheumy. I do know...
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    Wow Hunniebun, I don't even know if I have any...

    Wow Hunniebun, I don't even know if I have any words of wisdom. This is such a difficult situation for you and although I may not have the right words right now I am here to offer some support if you...
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    hey mountaindreamer thank-you for your...

    hey mountaindreamer
    thank-you for your encouraging words, I'm really sorry to hear you had a nasty battle waiting for a diagnosis as well. 10 years is incredible and makes me really appreciate your...
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    Thanks again guys!! Sooo my doctor re-ordered...

    Thanks again guys!!
    Sooo my doctor re-ordered blood work and says something has to show up in order to send me to a rheumy and to manage my swelling I am now on Lasix (even though I told him I...
  21. Thread: I need to repent

    by Bench
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    The hardest part now is forgiving yourself.. you...

    The hardest part now is forgiving yourself.. you have a RIGHT to feel upset and angry and frustrated and tired and other healthy emotions and you have chosen to deal with them in a HEALTHY manner so...
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    Thank you so much guys. I managed to get an appt...

    Thank you so much guys. I managed to get an appt @ 11 am tomorrow which is unheard of for my Doctor!!! I feel so selfish for putting this post up when there are so many of you wonderful people...
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    I'm so frustrated!!

    I just need to vent...
    I look in the mirror and I don't even recognize my legs- they are swollen and they hurt soo bad.. my knees feel like someone's pulling on the tendon and I don't fit my jeans....
  24. Thread: No one gets it

    by Bench
    Replies
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    I'm sorry to hear that.. you must feel very...

    I'm sorry to hear that.. you must feel very alone. 18 is a hard age to be without the added frustration and stress of Lupus.. I pray you find comfort and a solution- I will keep you in my prayers!
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    Amanda that is so crazy! I love that someone...

    Amanda
    that is so crazy! I love that someone else understands what I'm saying.. whenever my symptoms get really bad I think okay is this in my head... am I being a hypocondriach (excuse the horrible...
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