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Type: Posts; User: kiwimitts

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  1. Thank you for the great information. I start...

    Thank you for the great information. I start chemo on Friday. I'll keep you posted!

    Kristie
  2. experimental treatment....have any of you tried this?

    I've been accepted into an experimental study for lupus. I'll be taking myfortic, prednisone and also having IV chemo called retuximab.

    Have any of you tried it and what was your result?
  3. Welcome Jamie! I empathize with what you're...

    Welcome Jamie! I empathize with what you're going through as I've had many of the same things. How wonderful to know that you have had this disease in remission for 4 years though.....that means...
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    Auto-immune disease runs in my family. My...

    Auto-immune disease runs in my family. My paternal grandmother died at age 34. She had 4 kids (my 3 aunts and my dad) before she passed away. Two of my dad's sisters have SLE and one has...
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    I also have had tremendous hair loss since being...

    I also have had tremendous hair loss since being diagnosed. I had a scalp biopsy at the Mayo Clinic and there wasn't active lupus so my doctor concluded that it was from the prednisone. I used to...
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    Hi. I have lupus nephritis too and have been on...

    Hi. I have lupus nephritis too and have been on cellcept for 6 months with no improvment. Can you all tell me what dose you've been taking? I went to the Mayo Clinic and they said I should take no...
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    Hello, new member here

    Hi. My name is Kristie and I'm 37. I was diagnosed with lupus nephritis in May after many months of being ill and the doctors dismissing it as everything from "hives" to the flu. I have been very...
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    Hi there. I was mis-diagnosed with rosacea for...

    Hi there. I was mis-diagnosed with rosacea for years and tried virtually every treatment known to man, including being on accutane for 5 years. If the doctors had paid closer attention they would...
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    Hi there. I was mis-diagnosed with rosacea for...

    Hi there. I was mis-diagnosed with rosacea for years and tried virtually every treatment known to man, including being on accutane for 5 years. If the doctors had paid closer attention they would...
  10. Thread: sore throat

    by kiwimitts
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    Hi there. I have the same problem with a sore...

    Hi there. I have the same problem with a sore throat. I find that it appears the same days when I'm really achy. I haven't really found anything to help it other than drinking lots of water and...
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