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  1. Replies
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    same here, even with the outbreaks. At the same...

    same here, even with the outbreaks. At the same time I started losing my hair, the regular bugs that went around the house (and the recurrent outbreaks I had every month for 10 years) just stopped. I...
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    1,538

    The only thing that has bothered me so far is the...

    The only thing that has bothered me so far is the Raynaud's. I don't know if it's the weather change or the MTX finally kicking in but I feel really good right now. Haven't had a joint problem or...
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    Getting sick with an AI disease

    Hi there all!

    Another question, I have so many. Anyhoo, here I go..

    The last time I got "sick" which was a herpes infection instead of just going away it lasted for weeks and I got a total of...
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    Sticky: Your doc and mine are are practicing partners,...

    Your doc and mine are are practicing partners, same office. Wilson, Sanders and Feldman. haha small world. I was actually referred to Dr. Sanders originally by my neurologist but I was gun shy of...
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    I just saw this but my philosophy on love has...

    I just saw this but my philosophy on love has always been that loving someone, truly loving them, can never be overbearing. I can understand being sick and embarassed by the illness, just wanting to...
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    I know this may sound a little odd but what about...

    I know this may sound a little odd but what about her moving in to help you? Even if it's in some small way, that's all it takes. Your health isn't good as a whole, has she been to the doctor with...
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    I'm on Cymbalta and at some point my dosage...

    I'm on Cymbalta and at some point my dosage stopped working. Lemme tell ya, YOU CAN FEEL IT. It's the worst (next to Effexor.) SNRI's have share the same features as opiates in some respects and can...
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    A question about some tests my doc ran

    Hi there all-

    My last little check in with my rheumy, I had an episode of blue fingers right in front of her. Because of this she ordered an anti-cardio...uh..anti-cardiosomething test and the...
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    my rheumy says that sores on your tongue and lips...

    my rheumy says that sores on your tongue and lips corners are candida. I think it's more common with Sjogren's
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    Sticky: I see Dr. Madeleine Feldman in New Orleans. Best...

    I see Dr. Madeleine Feldman in New Orleans. Best doctor that ever lived, ever ever ever.
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    I refuse to believe that Rheumatologists are that...

    I refuse to believe that Rheumatologists are that busy, they are just pompous. They choose their little areas of expertise and if someone comes to them with the dreaded symptoms of lupus, many will...
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    I know exactly that burning from the inside...

    I know exactly that burning from the inside feeling. That's exactly what it feels like when my joints are REALLY acting up. I get joint pain then the awful burn to where my skin over the joint will...
  13. I used to pass out regularly if I didn't...

    I used to pass out regularly if I didn't immediately sit down when I felt the same thing you're describing. I told my Rheumy and her and I actually giggle about it because she has the same issue ---...
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    I know exactly what you're talking about! But...

    I know exactly what you're talking about! But does this mean we can't exercise? Because my flab tells me I need to
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    My first actual lupus symptom that triggered the...

    My first actual lupus symptom that triggered the testing was just 8 months ago. 6 months after my first symptom the impossible fatigue, Raynaud's &muscle fatigue started. 7 months after the first one...
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    I give myself methotrexate injections. The only...

    I give myself methotrexate injections. The only other injection available to me per my Rheumy is a mega dose of steroids to help with unbearable symptoms. I've tried more than once to go around that...
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    oh sorry I didn't see this until now. It was just...

    oh sorry I didn't see this until now. It was just one wrist at that time.
  18. Hey thanks y'all. I go for metabolic panel on...

    Hey thanks y'all. I go for metabolic panel on Monday. I'm crossing my fingers that the MTX isn't causing an issue because it helps me. I've been having some other problems. It's possible my drugs...
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    I should have been more clear in saying that this...

    I should have been more clear in saying that this is what works for me. I have only superficial symptoms, no organ involvement. I should not have gone off in a rant about food knowing full well that...
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    Looking back on when I had my wrist problem a...

    Looking back on when I had my wrist problem a couple years back I probably should have seen a Rheumy. I was convinced it was carpal tunnel but I was in so much pain I needed a brace to even move it....
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    I'm by no means an expert but I'm almost positive...

    I'm by no means an expert but I'm almost positive I have lupus or mixed connective tissue disease (mixed on low with lupus) but I have only experienced a few days of take your breath away exhaustion...
  22. Not another MTX question! WHY YES, yes it is...

    Hi there!

    I've had two injections of MTX so far and I had two questions.

    First, is there a difference between methotrexate mouth sores and lupus mouth sores? My mouth sores aren't painful and...
  23. I learned this the very hard way. The water, it...

    I learned this the very hard way. The water, it burrrrrns. Kinda like a vampire jumpin in holy water!

    Today I had an episode and since I was feeling ok I ran up the stairs to get something and it...
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    Yes indeed! At it's worst, before the...

    Yes indeed! At it's worst, before the methotrexate, it was everything --- hips, toes, ankles, fingers, neck, chest, wrists. After it calmed down I notice that it's either one or two things at a time...
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    Yes indeed! At it's worst, before the...

    Yes indeed! At it's worst, before the methotrexate, it was everything --- hips, toes, ankles, fingers, neck, chest, wrists. After it calmed down I notice that it's either one or two things at a time...
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