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Type: Posts; User: Deemarie1223

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  1. Replies
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    checking in!

    Hi all-haven't been here in a while...been dealing with doctors and stress. Just letting you know I'm still around. My blood tests have been flip floppy....still awaiting a dx. For now its fibro and...
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    Oh kim! I'm so sorry about this! You will be in...

    Oh kim! I'm so sorry about this! You will be in my prayers! Glad it wasn't a heart attack, and you went and got checked out:)
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    Good luck! Another option is to check with your...

    Good luck! Another option is to check with your local hospitals. We have 2 hospitals here that offer "insurance" and its based on your income. It goes in increments of 6months then you reapply but...
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    HAPPY BIRTHDAY! Although I don't think we've...

    HAPPY BIRTHDAY! Although I don't think we've "met" yet-I hope you enjoyed your day:)
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    HAPPY HAPPY BIRTHDAY TO YOU! HAPPY HAPPY BIRTHDAY...

    HAPPY HAPPY BIRTHDAY TO YOU! HAPPY HAPPY BIRTHDAY TO YOU, YOUR GOOD TO GROW SO COUNT (ORNOT) THE CANDLES AND BLOW....HAPPY HAPPY BIRTHDAY TOOOO YOUUUU! (That's the sprout channels birthday song...I...
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    Derrie-I agree 100%! I'm not getting any...

    Derrie-I agree 100%! I'm not getting any treatment...so I always feel terrible. Although the general consensus is that I do have something autoimmune, no docs are jumping to start any meds to help...
  7. Thread: WB church

    by Deemarie1223
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    I found some anti wbc fb sites and your friends...

    I found some anti wbc fb sites and your friends funeral was mentioned. There are people trying to gather the freedom riders to come as well! I'm praying that this family will be able to mourn in...
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    Is there anyone here who is diagnosed who hasn't...

    Is there anyone here who is diagnosed who hasn't had a pos ana but lots of other symptoms (including blood disorders and rashes most commenly found in lupus?) And I asked my pcp to do a titer...
  9. Wow! I never thought about that either...guess I...

    Wow! I never thought about that either...guess I should be prepared. I'm covered....upper arms, full legs, (belly and breats and thighs are the worse-but that's always hidden) the lower legs are...
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    Congrats maria! I am still young (kinda) and am...

    Congrats maria! I am still young (kinda) and am hoping I can get healthy enough to have one more before I'm 35..which IS old for babies;) I have 3yrs! But my antiphospholipid makes staying pregnant...
  11. 3rd rhuemy....feeling reaally good...3 times a charm?

    So if anyone read my long update the other day, I was very depressed and discouraged. I called and pcp and she actually ordered a nother ana test (titer), sed rate and c reactor. I will have those...
  12. I too, have no color change other then mild...

    I too, have no color change other then mild redness but my feet and hands are and have been always freezing! Sometimes I've seen a very mild blueish tint on my big toe. I've never thought it to be...
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    question about ana test

    What's the difference between an ana test that the result is pos or neg only and an ana test where the result is 1:160 etc. And can you have a neg ana on a pos/neg test but then have your titers...
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    Where do you live??? Lol! I need a doc that will...

    Where do you live??? Lol! I need a doc that will listen, and sooner then later:) I hope they do something like that near me! Sounds very interesting
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    I'm soooo with you! I just had ANOTHER very...

    I'm soooo with you! I just had ANOTHER very discouraging rhuemy visit. She didn't listen to my symptoms or look at them on my body or on the pics I brought. She rushed me out and said fibromyalgia...
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    hi! and update

    Hi everyone! I've missed coming here but I took a break cuz I was so overwhelmed with life and the fact that I didn't have a final dx yet. I was waiting to post after I saw specialists at dartmouth,...
  17. Thanks everyone...called the doc today, kept...

    Thanks everyone...called the doc today, kept trying for a few more days and I can't stand the fainting feeling. They called in lyrica, going to pick it up and try it tomorrow. Wish me luck!
  18. thanks for asking this gretchyn! And thanks for...

    thanks for asking this gretchyn! And thanks for the responses. I've been wondering if I'm alone in this area too. I feel so bad for my hubby and althought we've been together 7yrs, we just got...
  19. Neurontin, been a few days now and feeling weird

    I started the Nerontin a lil over ask ago roughly and I'm supposed to be at 900mgs right now, but I'm stuck at 600. When I take it at night it's fine, but during th day, it makes me fuzzier and...
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    Ty and yes, Steve, it was wonderful to know I...

    Ty and yes, Steve, it was wonderful to know I haves brain, and that it works (at least so thing us working!) lo,
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    got my mri results early!!!

    And it was normal! Yay! So back to ground zero, rhumey here I come!! And you better be ready w answers and to dx me! Lol...that's a lot of stress taken off...I just hope its acurate since they didn't...
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    If you search ana titer range you will find lots...

    If you search ana titer range you will find lots of info. Most say 1:40 is neg and anything under 1:80 is considered very low/negative. However there is stuff you can find about the compilent tests...
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    I'm not a doc, but I thought I read an article...

    I'm not a doc, but I thought I read an article either here or somewhere else that talks about the ana and how it doubles daily. The first solution would be 1:40, the second 1:80, the third 1:160 and...
  24. Lol its hardly ever gone. I know no one here is a...

    Lol its hardly ever gone. I know no one here is a doctor, I'm just looking for personal opinions. The docs have seen it many times...one of those things where one doc says yes, one doc says no.
  25. does this look like the butterfly rash?

    Because of my fair skin and freckles, its been up in the air on if I have the mylar rash or not. I think it does. Do you? Thanks!
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