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Type: Posts; User: Loverly83

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  1. Thread: I forgot!

    by Loverly83
    Replies
    6
    Views
    567

    Danica01, gotta love those moments of...

    Danica01, gotta love those moments of "no-lupus"!! :) I see that your location is Phoenix- how do you deal with the hot weather/ sun? Does that effect you much? I live in Tennessee, and the summer...
  2. Thread: I forgot!

    by Loverly83
    Replies
    6
    Views
    567

    I forgot!

    Do you ever forget you have lupus? I just woke up from a nap on the couch, hopped up, and went into the kitchen.... and HELLO, totally forgot that walking hurts. Completely forgot that I'm in a...
  3. Replies
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    3,676

    The insurance suggestion is a great idea. And as...

    The insurance suggestion is a great idea. And as far as once you get the diagnosis, colleges will really work with you! You can get extra time taking tests, or if you need to take them somewhere that...
  4. Replies
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    2,255

    Sorry, I may not have been so clear. You can have...

    Sorry, I may not have been so clear. You can have multiple regular cytoxan infusions with no problem. It is only the ablation that requires that you have never had cytoxan before. The ablation is...
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    2,255

    Rituxan and Cytoxan both have some major...

    Rituxan and Cytoxan both have some major downfalls as far as side effects go, but the two rheumatologists I have seen prefer to use Rituxan before stepping it up to Cytoxan. In addition to their...
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    I think we will probably give Rituxan around 6...

    I think we will probably give Rituxan around 6 months. From what I've been told most people see results pretty quick, but I don't want to jump into the ablation without trying everything else.
    ...
  7. My CellCept was very expensive, and even though I...

    My CellCept was very expensive, and even though I have insurance and prescription coverage I was having a hard time covering the cost each month. So, I went onto Roche's website (the maker of...
  8. Replies
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    A cytoxan ablation is the same drug as what you...

    A cytoxan ablation is the same drug as what you are referring to, but administered once in a very very high dosage. It is, like I said, a really drastic treatment. It makes most people sterile...
  9. Replies
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    1,523

    Lost my faith?

    I was raised in a strict Christian home, and went to a private Christian college. I went through somewhat of a "burn out" period, where I didn't attend church (but still had my faith), and then my...
  10. Replies
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    My lupus has gotten extremely severe, so I'm not...

    My lupus has gotten extremely severe, so I'm not going to do Cytoxan infusions, because that would make me inelgible for a Cytoxan Ablation, which is what my doctor said I may have to do if Rituxan...
  11. Thread: rituxan

    by Loverly83
    Replies
    3
    Views
    957

    Were they sure it was the Rituxan that caused the...

    Were they sure it was the Rituxan that caused the strokes? I have APS as well, and I am going to be starting Rituxan this summer (after my insurance finishes the pre-cert process).

    From what I've...
  12. Replies
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    2,255

    I've been on CellCept for a little over a year...

    I've been on CellCept for a little over a year (2000mg/ day). I was on Imuran before that and Plaquenil before Imuran. I, unfortunately, haven't been helped much by the CellCept. Now I have kidney...
  13. Thread: Lupus Lung

    by Loverly83
    Replies
    12
    Views
    1,910

    I get pleurisy every so often with my lupus. A...

    I get pleurisy every so often with my lupus. A deep breath, sneeze, anything like that feels like it is going to kill me!!

    When I was in the hospital earlier this year they gave me a breathing...
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    637

    Biting my lip... literally!

    Has anyone ever had a problem with biting their lip in your sleep?!

    I broke down and bought a night time "boil and bite" mouth guard, because I am literally chewing my bottom lip up when I'm...
  15. Thread: Middle TN

    by Loverly83
    Replies
    7
    Views
    1,999

    Thanks!

    Thanks for the replies! Even though it wasn't through this site I did get in touch with someone that I walked with at the Walk For Lupus Now event in Nashville last year, so I'm happy about that!!
  16. Thread: Middle TN

    by Loverly83
    Replies
    7
    Views
    1,999

    Middle TN

    I'd like to meet people that live in Middle TN. If you are in my area send me a message via this website.

    Can't wait to hear from you!!
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