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Type: Posts; User: CanadianGal

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  1. Replies
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    Hi there, I've had this symptom for many...

    Hi there,

    I've had this symptom for many years. It started with my eyelids and my Rheumy and eye specialist say it is lupus related. Stress is my biggest trigger. As I said, it started with my...
  2. Hi Derrie, Yes, I've had the same thing happen...

    Hi Derrie,

    Yes, I've had the same thing happen to me. The pain in the large muscles of my legs was brutal.

    I too am not on Plaquenil. No Mari, I didn't stop taking it -- my Rheumy took me...
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    Hi, My lupus totally effects my eyes. For...

    Hi,

    My lupus totally effects my eyes. For years (about 12 to be exact) I was told everything from pink eye, infections, allergies to that I must be putting my finger in my eye! It wasn't until I...
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    Yes, I've had the eye twitching too! Mine...

    Yes, I've had the eye twitching too! Mine started out as eye twitching just like yours but it was replaced by my eyelids swelling (until they look like they are going to burst). I also have...
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    Sorry, I should have clarified "normal". I don't...

    Sorry, I should have clarified "normal". I don't feel like I did when I was healthy and 20 years old. But I expect now that I'm 40, even if I was healthy, I wouldn't feel the same as when I was 20. ...
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    Never need to say sorry for questions. It's the...

    Never need to say sorry for questions. It's the only way to learn about what we have. I've had Lupus for about 15 years but the official diagnosis only came two years ago. I probably would still be...
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    Like Tgal said, a flare is as individual as the...

    Like Tgal said, a flare is as individual as the person having them. For me, my flares last six to nine months and my major cause is stress. Sun does effect me when I'm in a flare but it doesn't seem...
  8. Hi Rob, Yes, I'm getting IV Methylprednisolone...

    Hi Rob,

    Yes, I'm getting IV Methylprednisolone and the nausea is brutal! I've got sick to my stomach a few times after getting the treatment. I'm on a super high dose that my Rheumy called...
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    I love the Vampire Diaries! Totally team...

    I love the Vampire Diaries! Totally team Damon--what a hottie! You don't need cable to watch them. It's on the net! You can watch the full episodes at http://www.ctv.ca/ Look under...
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    Hi, I'm from BC. I saw your post earlier but...

    Hi,

    I'm from BC. I saw your post earlier but I had forgotten my logon and password--I just came across the "safe" place that I put. Damn brain fog!
  11. Oops, forgot to add that I take the Azathioprine...

    Oops, forgot to add that I take the Azathioprine in pill form every day.
  12. Hi, I was on 400mg of plaquenil for over a...

    Hi,

    I was on 400mg of plaquenil for over a year and it did nothing for me. After trying many other drugs that also did nothing, my Rheumy started me on an extremely high dose of Methylprednisolone...
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    Sticky: Okay, this is a good one. For those of you...

    Okay, this is a good one.

    For those of you that have never been to Canada, in British Columbia we have to pre-pay for gas before pumping it. A little while ago, late for a doctor's appointment...
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    Hi Wendy, Sorry to hear your not so well. I...

    Hi Wendy,

    Sorry to hear your not so well. I can relate to much of your pain. Chest--mine is the inflammation of the lining around my heart and lungs. Very painful! I have the normal laundry list...
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    I agree with Rob, a friend with weed is a friend...

    I agree with Rob, a friend with weed is a friend indeed!

    I have SLE and I have used it when I've had a bad flare--I find it works great! It takes away feelings of nausea and calms all my muscle...
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    Hi, I just joined the site today and before I...

    Hi,
    I just joined the site today and before I joined I was reading a few posts and came across yours. It sounds to me like it could be the start of carpal tunnel syndrome. I've had it for years,...
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