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  1. Replies
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    results are in

    Hello all my fellow lupies, I am happy that the furom is back up and running. I did get the results for the testing that was done and it is not mini strokes however; now I have been diagnosed with...
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    Thanks Saysusie, I spoke to my dr today and she...

    Thanks Saysusie,
    I spoke to my dr today and she seems to think that being exposed to less stress, sun and heat would improve the quality of life with lupus. Ofcourse if being here is what makes one...
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    fellow Lupie with a geographical question

    Hi all, Hope everyone is having a wonderful holiday season!! I am other than having a flare up the day after christmas. Just a lot of joint pain in my knees and ankles and I can't fight the...
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    Wow this thread has really taken off.Thanks guys...

    Wow this thread has really taken off.Thanks guys for expressing all of your symptoms. :D
    Paula- I know all about the sore irratated tongue. Mine doesn't itch though. Only very raw feeling. I...
  5. Thread: Can't sleep!

    by lexis214
    Replies
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    1,914

    :shock: I can relate to you on this subject. ...

    :shock:
    I can relate to you on this subject. It feels as if your eyeballs are permantly in the open position. My worse part is that not only can I not go to sleep. If I do I sleep no more than 2...
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    Thank you Hatlady. I think it is time for a 6...

    Thank you Hatlady. I think it is time for a 6 month checkup in November so I will ask her.I had to go in to see her a little over a week ago. Itwasn't my reglar appt but I am having a horrid flare...
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    Need help with these symptoms????

    Yesterday and into last night my fingers /hands were tingling so bad, Does anyone know what this is from??
    I also have gotten these little areas of broken veins/discolored skin on top of one hand ,...
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    Suzee- Welcome to the sight. This is a great...

    Suzee-
    Welcome to the sight. This is a great place to come when you need to talk or when you are simply in need of a listening ear. I too have had very dry hands and fingers. I was officially...
  9. Colleens, I had tried everthing OTC with no...

    Colleens,
    I had tried everthing OTC with no success. My honey came home with something called Lanacane maximum strength. To my disbelief it miraculously worked. As soon as I had relief from the...
  10. Colleens, I had tried everthing OTC with no...

    Colleens,
    I had tried everthing OTC with no success. My honey came home with something called Lanacane maximum strength. To my disbelief it miraculously worked. As soon as I had relief from the...
  11. Colleens, I had tried everthing OTC with no...

    Colleens,
    I had tried everthing OTC with no success. My honey came home with something called Lanacane maximum strength. To my disbelief it miraculously worked. As soon as I had relief from the...
  12. Colleens, I had tried everthing OTC with no...

    Colleens,
    I had tried everthing OTC with no success. My honey came home with something called Lanacane maximum strength. To my disbelief it miraculously worked. As soon as I had relief from the...
  13. Colleens, I had tried everthing OTC with no...

    Colleens,
    I had tried everthing OTC with no success. My honey came home with something called Lanacane maximum strength. To my disbelief it miraculously worked. As soon as I had relief from the...
  14. Colleens, I had tried everthing OTC with no...

    Colleens,
    I had tried everthing OTC with no success. My honey came home with something called Lanacane maximum strength. To my disbelief it miraculously worked. As soon as I had relief from the...
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    I wish you the best of luck on this endeavor. ...

    I wish you the best of luck on this endeavor. The hard part is over. Saying goodbye is always the worst part of any new beginning. I am thinking of applying next year. Do you know how long the...
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    Haircut

    Denise,
    I think I must be pretty lucky. I noticed hair loss before my diagnosis with lupus and it was more of an all over loss. Like my hair just got much thinner. At the time I did not know...
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    What a lucky lady to have you. My advise is...

    What a lucky lady to have you. My advise is simply to be there and when she is ready she will share it with you. In the meantime simply having you there to lean on when she needs it and she will...
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    Short Hair is sexy

    I have always had long dark red hair and decided to go short in Dec 2004.
    I was so worried that I would no longer get the complements of how beautiful my hair was but boy was I wrong. It turns out...
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    Lyssa- So sorry to ear about your your sister. ...

    Lyssa-
    So sorry to ear about your your sister. What kind of damage did she suffer when the lupus attacked her heart? I had my matral valve stop working therefor allowing blood and other fluids to...
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    twitching

    I thought you guys might relate or have some answers for me.
    When I try to fall asleep and start to drift away I start twitching.. It is real bad and I twitch alot. It scarred my husband at...
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    Thanks for all the good and positive advise. I...

    Thanks for all the good and positive advise. I do feel much better. I got a job offer and am supposed to start tomorrow. I am worried because it is a little bit of a drive(45 min/1hr)and I have...
  22. Thread: Sjogrens Too

    by lexis214
    Replies
    6
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    1,514

    sjogens

    I too have Lupus and sjogens. I suffer from an extremely dry mouth and very gritty (like sand) eyes. The thirst is unreal. I always have a drink in my hand and my mouth is still dry and my toungue...
  23. What foods are bad??

    I noticed that some say certain foods can be bad. My dr. did not mention this to me. Can you let me know which ones we lupies should stay away from and why??

    Thanks so much for all this...
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    Truth about lifespan??

    The above statement is what is written on the home page of this site. I don't quite understand this :? :? . I thought that 80% of Lupies could live a normal life with the advancement in...
  25. Hi hatlady, you always seem to give such...

    Hi hatlady, you always seem to give such positive and up beat information. This is really nice to see.
    Just curious if you can help me figure this out?? Why did so many people use to die earlier...
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