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    Hi! I had my appointment Friday. I am cutting...

    Hi!

    I had my appointment Friday. I am cutting down the Mycophenolate by 500mg and going up to 8mg of prednisolone to support me whilst I do it. Then in two weeks I will drop another 500mg of...
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    Hi again! I really appreciate your comments. ...

    Hi again!

    I really appreciate your comments. It seems ridiculous that I only just realised what this pain is caused by after so many years! Luckily it's only been a few years since this specific...
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    Hi! Heron, I don't think I have shingles, I was...

    Hi!
    Heron, I don't think I have shingles, I was trying to describe my pain, sorry for any confusion.
    Steve, I take paracetamol as required. I some times take it three times a day. Is that ok? I...
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    Sorry for the brief statement! My tablet was...

    Sorry for the brief statement! My tablet was running out of oomph!
    It's hard to describe pain isn't it! I've never had shingles but I'm guessing it's nerve pain, so similar. It's not all over at...
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    Thanks It's like a twang. Like a painful shiver...

    Thanks
    It's like a twang. Like a painful shiver in some joints, skin, like when you gave flu and your skin is sensitive, or shingles maybe?
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    Can I ask what you take for the nerve pain Steve?

    Can I ask what you take for the nerve pain Steve?
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    Nerve pain. Fibromyalgia too?

    Hi peeps!
    It's been a while since I visited.
    I'm pretty much at the end of my tether to be honest. So they diagnosed me with lupus with kidney involvement. This is all old news. I'm not a...
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    Thank you. The support I get here is always...

    Thank you.
    The support I get here is always really helpful and encouraging.
    It's invaluable to have somewhere to go when my head is exploding!

    Jx
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    Hi peeps. Still yucky, beginning to think it's...

    Hi peeps.
    Still yucky, beginning to think it's not going to work. I'm on 1000mg twice a day. My infection rate is pretty good...other than this stupid stupid tooth infection which I'm barely...
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    Hi. Sorry to hear all the drugs you can't have!...

    Hi.
    Sorry to hear all the drugs you can't have!
    I started Cellcept in December and my specialist warned me that it causes nightmares. I've certainly suffered with that but having been on...
  11. Thread: Errand Girl

    by Jaynie
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    I think we all need to learn to say no without...

    I think we all need to learn to say no without carrying around the guilt that comes with it. I think maybe it is us that allows ourselves to feel guilty, rather than others making us do so.
    Mica, we...
  12. Thread: Errand Girl

    by Jaynie
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    I understand. I really REALLY understand! Thing...

    I understand. I really REALLY understand! Thing is...who is going to take care of you if YOU don't? Who will thank you for being all used up and having nothing left for yourself?
    I have 5 kids, so...
  13. Thread: Errand Girl

    by Jaynie
    Replies
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    We've just posted very similar threads! I'm ok...

    We've just posted very similar threads!
    I'm ok about telling people I can't do things for them, but I struggle with not wanting to do things that other people like to do. I still want friends, my...
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    Good ways to say "no thank you"??

    Hi everyone!
    I don't know about you, but since I have been ill...actually, that's forever, so maybe I should say 'because I'm ill...' I find it difficult to opt out of the fun things people to...
  15. Saysusie, Thanks for your reply! Is there a...

    Saysusie,
    Thanks for your reply! Is there a particular antibiotic to avoid? I already have to avoid ibuprofen and voltarol.

    Jx
  16. Advice please! Mycophenolate, tooth extraction and antibiotics?

    Hi peeps!
    I need a tooth extraction! It's making me so poorly because I'm on mycophenolate and my body can't fight the infections from where it's rubbing my gum.
    I have a consult tomorrow morning...
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    Hi. I've been on it for six weeks. The side...

    Hi.
    I've been on it for six weeks. The side effects have ranged from nothing to complete exhaustion. I haven't been on it long enough for it to be doing the good stuff. I have spent weeks now...
  18. Thread: Celcept

    by Jaynie
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    Hi Abby. I've been taking something called...

    Hi Abby.
    I've been taking something called spatone. It's just water which naturally has iron in it so it absorbs well and also causes no side effects. Of course I have to take it separately to...
  19. My dr said that the cellcept affects the bad part...

    My dr said that the cellcept affects the bad part of the immune system more than the good, but I don't know if MTX is the same. I was absolutely floored by a cold this weekend. I actually stayed in...
  20. Thread: Celcept

    by Jaynie
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    1,656

    I'm only on 1500mg a day and they haven't made me...

    I'm only on 1500mg a day and they haven't made me feel sick particularly..except for a couple of occasions. I take them as I go to sleep and then set my alarm and take them before I get up which...
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    I felt a little bit better yesterday. I'm only...

    I felt a little bit better yesterday. I'm only on half the dose of mycophenolate I should be tho. Putting it up a step Friday. I really am much more debilitated than I thought I'd be. My Lupus...
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    My dr said I have too many children. I just need...

    My dr said I have too many children. I just need to eat more protein and get enough sleep. (Ok so I do have five kids). The first dr I saw explained to my mum that I couldn't have M.E. since I...
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    My bloods came back and they're just within...

    My bloods came back and they're just within normal ranges. I look really tired tho...bags under my eyes, very pale and I feel just shattered, can't do anything much. I'm prepared to stick it out...
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    I have had to drop my doses down to 500mg. I'm...

    I have had to drop my doses down to 500mg.
    I'm showing some signs of sudden anemia. I had hemolytic anaemia years ago when I took dapsone, so I'm afraid that my reaction was more about my lupus...
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    Isn't it a bit like a mind game? For example...

    Isn't it a bit like a mind game? For example when you get your man to think he made the decision, but actually you led him to that decision all along? lol

    I don't know. I think the thing is...
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