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  1. Replies
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    Sorry I'm late for the party again,but Happy Late...

    Sorry I'm late for the party again,but Happy Late Birthday Niall!
  2. (touching envelope to turbaned head, ala "Carnac"...

    (touching envelope to turbaned head, ala "Carnac" - that's Johnny Carson, for you youngsters... tic) - I see EMG testing in your future... which can be initially distressing for some, including me,...
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    I try all sorts of stuff. I change beds (we've...

    I try all sorts of stuff. I change beds (we've got an empty bedroom in the house), and if that doesn't work, I'll go to the living room couch, and if that doesn't work, I'll go to the family room...
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    Great job, ritzbit2! Do they have video of the...

    Great job, ritzbit2! Do they have video of the event? TubeYou?
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    "Ditto" on the above. I'm laying on the couch...

    "Ditto" on the above. I'm laying on the couch right now, elevated feet (swollen ankles again... sigh), sweating around the forehead and neck, and my stockinged feet are freezing... normal day, eh?......
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    I've never had tb. The blood is usually from an...

    I've never had tb. The blood is usually from an irritated throat, from the coughing and/or infection. Lupus can knock you way down on infection fighting (since the stuff is busy trying to attach your...
  7. Thread: Colitis

    by jmail
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    You might want to consult with a dietician, and...

    You might want to consult with a dietician, and talk with them about your disease(s), the medications you take, and what your current diet is. Be sure your rheumy and pcp (and any other doc involved...
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    I've been on pred so long, I can't really...

    I've been on pred so long, I can't really remember... hmm... anyway, I was at 10 a day initially, but have gone up & down, with weeks of 60+ not uncommon, with the "ween" process afterwards. I was on...
  9. Thread: Hello

    by jmail
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    Hi mum-2 and welcome to the WHL forum. Sorry no...

    Hi mum-2 and welcome to the WHL forum. Sorry no one greeted you sooner. I don't have to go through all that you do for my lupus, but I do get monthly IVIG infusions, which takes 2 1/2 hours at a...
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    Finally he agrees you. Treat the lupus. Good luck...

    Finally he agrees you. Treat the lupus. Good luck with it, and get to feeling better.
  11. Thread: Another Candle

    by jmail
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    Happy Two Days Late Birthday Oluwa!

    Happy Two Days Late Birthday Oluwa!
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    ... did someone "tape" it, and maybe post it to...

    ... did someone "tape" it, and maybe post it to toobyu?...
  13. Thread: Itp

    by jmail
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    There have been a few posters who have questioned...

    There have been a few posters who have questioned about ITP. I'm not sure if this link will work, but here's what a "Search" on the site for "Idiopathic Thrombocytopenic Purpura" produces...
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    Pneumonia is a strange beast. It can be...

    Pneumonia is a strange beast. It can be bacterial, viral or fungal. Not responding to antibiotics would generally eliminate the bacterial, unless you've got a resistant variety. If you'd been on...
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    Good luck with it debbie-b, and pay close...

    Good luck with it debbie-b, and pay close attention to your symptoms.
  16. and the brain fog strikes again... ......

    and the brain fog strikes again...



    ... that should be "Horner's Syndrome"... which it isn't a "true" Horner's Syndrome, but similar symptoms caused by the migraines...

    I need more than a...
  17. Thread: Physiatrist

    by jmail
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    Wow! My eyes!!! the "H" is in the wrong place......

    Wow! My eyes!!! the "H" is in the wrong place... I dont' think I've ever heard of a physiatrist... is that "fizz-eee-uh-trist"?... I went to an internist, I think it was, for several consults of that...
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    Hey debbie-b, now you'll be close enough that you...

    Hey debbie-b, now you'll be close enough that you can call the kids and tell them it's their turn to mom-sit... wink

    Right now, my 13 year old is "dad-sitting" me, getting me a glass of water, or...
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    Hi hello. I'm also a husband with lupus. I dont'...

    Hi hello. I'm also a husband with lupus. I dont' get to do too much with my two boys, which makes things difficult from a "dad" point of view. I do not want to imagine one of my boys having lupus....
  20. Thread: New to this site

    by jmail
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    Hi luci, and welcome to WHL forums. I'm not much...

    Hi luci, and welcome to WHL forums. I'm not much of a "conversationalist" tonight, can't seem to think yet again. It's good to have an understanding and supportive family helping you through this,...
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    Hi catlady04240, and welcome to WHL forum. Sorry...

    Hi catlady04240, and welcome to WHL forum. Sorry you're having a time of it with lupus, and with a doc that talks on the phone with someone else. The least they could have done is excuse themselves,...
  22. Are they treating the lupus? I get the "usual"...

    Are they treating the lupus?

    I get the "usual" symptoms with a migraine, with light & sound sensitivity, nausea, dizzy, etc. It also interferes with the facial nerves (which I can't recall the...
  23. Thread: Physiatrist

    by jmail
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    Think of the psychiatrist as an "unbiased...

    Think of the psychiatrist as an "unbiased observer" of your life. 'Course, you have to be honest with them, and describe all your symptoms & reactions in order for the doc to get an accurate picture....
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    Do a list of all your meds, past medical history,...

    Do a list of all your meds, past medical history, and other docs' names & addresses. Put all the information into a file on the computer. Update it when necessary, and take a copy with you to every...
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    We're with you on the journey chikititalinda....

    We're with you on the journey chikititalinda. Talking about things can help a lot, and other folks might be able to see things for you to avoid, or maybe alter something that you're doing, and help...
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