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Type: Posts; User: lupusgirlstefanie

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    Hi Hi Ejrifkin My name is stefanie and i'm 22...

    Hi Hi Ejrifkin

    My name is stefanie and i'm 22 yrs old I know exactly what you mean I was ranting and raving about that very thing to my parents yesterday, I feel like a 90 yr old women trapped in...
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    HAPPY HALLOWEEN!!!!!!!!!!!!!!!! I wanted to...

    HAPPY HALLOWEEN!!!!!!!!!!!!!!!!

    I wanted to hand out candy this year but I'm stuck in my room after last night I don't think i'll brave the stairs today again until i'm better lol.

    My parents...
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    RRRRR I HATE LUPUS!!!!!!!!!!!

    RRRRRRR :evil: :evil: :evil: :twisted: :twisted:


    How I hate being in pain, I have such terrible leg and knee pain, neck pain and back pain. It's been so bad today that I can't even sit up...
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    I would second going in to see your doc in...

    I would second going in to see your doc in person, at the very least re-explain things. Is is possible that the med he gave you are used for athsma but maybe it's used to sooth inflammation of the...
  5. Hi Hun I am so sorry that you are going...

    Hi Hun

    I am so sorry that you are going through this, But you must never blame yourself it is not your fault that he is having a hard time, it's not your fault about finacial stuff or medical...
  6. thank you so much, i was never told this by my...

    thank you so much, i was never told this by my doctor, most of it you are right it just being careful and comon sense but some of it I didn't know.

    Thank you so much
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    Great post i"ve always wondered how to do it lets...

    Great post i"ve always wondered how to do it lets see if it works.

    Here is my little kitten of my dreams this is the type of cat I want when I move out.
    ...
  8. Question for MaryCain......Re:Food Poising

    Hi This is a question for MaryCain

    I read the post about the kitty litter and although I don't have any pets (mom hates animals lol) I thought that was a great post cause when I move out I wanted...
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    I will keep you in my prayers, i know it seems...

    I will keep you in my prayers, i know it seems that when it rains it pours. I agree you should try calling the base to see if at the very least they can arragnge for someone to help you.
    do you have...
  10. What Sleep Meds Are You Takeing?.......I need some advice

    Hi

    I was just wondering what some of you ladies are on for insomnia. My doc has put me on Imovane which is because I asked her for Lunesta but
    Canada doesn't have it we have Imovane.
    Imovane...
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    Hi Jody when I was on pred I had some...

    Hi Jody

    when I was on pred I had some numbness in my right arm at times or it would often feel tingly and I would loos stregnth in it like when picking up a glass or basket of laundry etc...........
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    yup I've been there! Except mine didn't show up...

    yup I've been there! Except mine didn't show up in a test, I was sitting at home with my boyfriend and I had been feeling extra bad very dizzy and nauseated.

    So after almost passing out my...
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    Hey Andy good to hear, I just want to mention...

    Hey

    Andy good to hear, I just want to mention that my friend also had her apendix out not to long ago and she was having mild tummy discomfort for three days before it got bad enough to trigger...
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    I agree there isn't one diet that works the same...

    I agree there isn't one diet that works the same for everyone, it depends on you. I think a normal well balanced diet would be the best.

    But if there is anything that you feel bothers you by all...
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    I'm with solesinger the spoon theory was a life...

    I'm with solesinger the spoon theory was a life saver for me in explaining what it's like living with lupus, it was hard for my family too since lupus really isn't a well known illness.

    But along...
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    Aww i know what you mean about making small...

    Aww i know what you mean about making small errors at work, that was what I was doing because of the stupid brain fog.

    Are you on any meds for it?

    Have u talked to your doctor about possible...
  17. HI sounds to me like you've got the early onset...

    HI sounds to me like you've got the early onset of lupus.

    I had all that before my dx. I was having all the signals of lupus like fatigue, fever, chest pain, joint pain, muscle stiffness, ect.......
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    Yup I agree! I get dak circles and I wasn't...

    Yup I agree!

    I get dak circles and I wasn't sure if it was the lupus or if it was because i just can't sleep soundly because of the lupus and all my other stuff.

    but I just go to the makeup...
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    I can relate I was diagnosed with lupus at age 20...

    I can relate I was diagnosed with lupus at age 20 and now serveral other stuff and I'm only 22 so I know how it feels to wnat ot go out and have some drinks and party.

    I feel that at times my...
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    ooooo so sorry to hear it. Doesn't it always...

    ooooo so sorry to hear it. Doesn't it always happen at the most perfect times :roll:

    I usually have my problems in the same three areas my knees, back, and neck but lately just lke you i've...
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    LOL Val To true!

    LOL Val

    To true!
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    Hi I have that too, it seems for me to come and...

    Hi I have that too, it seems for me to come and go there will be a few weeks where my hair will be falling otu more than usual and then it will stop and seem to grow and get quite thick.

    I haven't...
  23. Awww Kathy so sorry to hear about your hair, mine...

    Awww Kathy so sorry to hear about your hair, mine is beginning to thin out and it's scaring me cause I am scared to shave it but your story was so touching I had tears.

    It's so cute to think that...
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    Hi Val yup sounds just like me!!!!!! and yup...

    Hi Val

    yup sounds just like me!!!!!! and yup ditto on the having to sit in a chair!

    My right leg knee and below keeps me from sleeping major especially in the last week or so. I find that I...
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    Hello Yup my doc said pred can lower ANA, it...

    Hello

    Yup my doc said pred can lower ANA, it happened to me, it's what my doc called remission then they ween you off the meds...... well mine did for me.

    But ya I think they still consider it...
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