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Type: Posts; User: mystiejm

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    I have intersitial cystitis and it is very...

    I have intersitial cystitis and it is very painful. Try taking a cystex or azo( it's OTC) amd see if the pain goes right away. I would also ask to see a urologist.
  2. Thread: Meningitis

    by mystiejm
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    Meningitis

    Info on me. I had a baby a year ago and started back on plaquenil. Started having severe muscle pain in shoulders, arms and thighs. It seemed to be related to when I took the plaquenil so my rheumy...
  3. I have to stop plaquenil because of myositis : (

    I have posted recently about terrible muscle pain in my hips, legs and shoulders. I have been on prednisone for the muscle pain for a month(and it helps for a few hours after I take it). SO, last...
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    Checking up on you, how are you doing?

    Checking up on you, how are you doing?
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    Praying for you! I hope you get better fast. Hugs

    Praying for you! I hope you get better fast. Hugs
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    Muscle pain and prednisone

    I am 4 months post partum with my 3rd baby and been back on plaquenil since her birth. 3 weeks ago I started having muscle pain in my hips, thighs and neck. I figured it was fibromyalgia (I have...
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    Thanks so much. I will bring that to my doc appt.

    Thanks so much. I will bring that to my doc appt.
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    I was on 200 mg of plaquenil once a day for...

    I was on 200 mg of plaquenil once a day for almost 2 years. It took a while to work but helped reduce joint pain and other symptoms greatly. I stopped because I'm pregnant but hope to go back on it...
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    Plaquenil and breastfeeding

    I am due in January. I stopped taking the plaquenil when I found out I was pregnant. I want to take it after the baby is born to help reduce post partum flare. I had a terrible flare after I had my...
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    I was on it for nerve pain. With my first real...

    I was on it for nerve pain. With my first real flare, I had severe numbness and tingling in my hands and feet. The gabapentin(generic for neurontin) helped me tremendously. It also helps other types...
  11. Sounds like you should still go see your doctor,...

    Sounds like you should still go see your doctor, better be safe than sorry. Im glad your feeling better!
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    Thats good that the pulmonary function tests...

    Thats good that the pulmonary function tests tells the doc whats going on. Its amazing the medical advantages we have today. The hardest part was not being able to play with my kiddos or clean. I...
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    Breathing issues

    Hi all! In Dec I started having trouble with my heart beating hard. That lasted for a few days when I started getting out of breath. I would get out of breath doing anything that involved me walking...
  14. I have constant numbness and tingling in my...

    I have constant numbness and tingling in my hands and feet that started 3 years ago. I started just 2 months after I started having problems with raynauds. I remember reading that raynauds syndrome...
  15. Thread: Cheek Pain???

    by mystiejm
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    Cheek Pain???

    I have had pain in my cheeks for over a year now. It is right above my molar teeth deep in the tissue. My pcp and Neuro thought it was sjorgens and it might be the beginning of it but I don't have...
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    I am so glad that you got to the doc!!! Sorry to...

    I am so glad that you got to the doc!!! Sorry to hear what was wrong but glad that you were able to see the doc. Great reminder not to ignore your body!
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    I am pretty sure the headaches were caused by an...

    I am pretty sure the headaches were caused by an antibiotic I was put on for a UTI, because when I stopped the antibiotic the severe headaches went away. I still get little headaches but have not...
  18. Thread: Finally!

    by mystiejm
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    WOW, I am so happy for you. I will do a happy...

    WOW, I am so happy for you. I will do a happy dance for you. I know how frustrating it can be getting a diagnosis and finding a doc who listens/care. Good for you!!!!! Mary
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    I have smith antibodies also. My rheumy told me...

    I have smith antibodies also. My rheumy told me that they are HIGHLY specific for SLE. I found it really interesting and have done some research on it, that I have seen only a few cases have been...
  20. I was recently diagnosed so I dont understant too...

    I was recently diagnosed so I dont understant too much about it. My highest ana has only been 1:80 but my anti SM was high. Make sure to get an ENA panel done but try to get it sent to somewhere...
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    My neuro called back, normal MRI. I stopped...

    My neuro called back, normal MRI. I stopped taking all pain meds(motrin and tylenol) and and doing okay. Thanks for the suggestion TGAL. The neuro might put me on a migrane med but I have had...
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    I have the exact same question about the kidney...

    I have the exact same question about the kidney pain, I get it too. Not sure what to think about it. I hope you get some answers soon! Mary
  23. I am glad that you have some answers! I was...

    I am glad that you have some answers! I was recently diagnosed also. I hope you can now get treated and get to feeling better!
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    Headaches.....

    So pretty much most of December I had one big headache. I would take motrin in the morning and tylenol in the evenging and it worked fine. The last few days has been terrible. The pressure on the top...
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    I get vibrations also, usually in my arm that...

    I get vibrations also, usually in my arm that shoots down to my fingers or it starts in my calf and goes down to my feet. Sometimes it feels like I plugged my foot into an electrical outlet! Ha Ha,...
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