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Type: Posts; User: bthny10

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  1. Thread: new to this

    by bthny10
    Replies
    2
    Views
    598

    Hey, I know how you feel. I have had "this" (I...

    Hey,
    I know how you feel. I have had "this" (I don't know if I have Lupus or not, I know I do have other autoimmune diseases) since I was nine. It's really hard, but it's livable. It's so...
  2. Replies
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    1,955

    Oh my word! You should have seen this hilarious...

    Oh my word! You should have seen this hilarious letter from my doctor. Every other word was mispelled. It was so funny.
  3. Replies
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    1,841

    Hey guys, I just got back from the hospital. I...

    Hey guys,
    I just got back from the hospital. I was there for four days. I had
    an extremely low blood pressure (half of what it should be), high
    white blood cell count (It should be 12,000 and it...
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    1
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    460

    This has been a problem for me, too. Joni...

    This has been a problem for me, too.

    Joni Erickson Tada has some awesome books on coping with a disabillity or illness. I highly recommend her books. She suffered from a spinal chord injury when...
  5. I went to my doctor today at Cleveland Clinic. He...

    I went to my doctor today at Cleveland Clinic. He said he wants to admit me into a rehab program. I'll be getting a lot of physical therapy (including aqua therapy) while I'm there. He wants to put...
  6. Replies
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    1,841

    Epidural spinal pump?

    I went to my doctor today at Cleveland Clinic. He said he wants to admit me into a rehab program. I'll be getting a lot of physical therapy (including aqua therapy) while I'm there. He wants to put...
  7. Replies
    10
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    1,841

    hey! Thanks. I've worked hard on pulling that...

    hey!
    Thanks. I've worked hard on pulling that website together. I made it when I was really lonely (I had no friends whatsoever), so I felt like I needed a way to reach other people somehow. I'm so...
  8. Replies
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    788

    Merry Christmas!!! Stay well, Bethany

    Merry Christmas!!!

    Stay well,
    Bethany
  9. Replies
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    12,653

    My hair has been getting messed up, too. It...

    My hair has been getting messed up, too. It doesn't look bad, it doesn't even look thin. It used to be ridicolously thick but now it's more normal. Everyday, I'm noticing that clumps of hair are...
  10. Replies
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    2,799

    If someone will not accept you for who you are,...

    If someone will not accept you for who you are, you don't need them.
    After I began using the wheelchair (when I was twelve) I found out who my real friends are. It was painful, but for where I was...
  11. Replies
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    1,282

    I do not know for sure if I have Lupus. My...

    I do not know for sure if I have Lupus. My bloodwork kind of indicates it but I have to get it checked out.
    I have Reflex Sympathetic Dystrophy (an auto-immune/nuerological disease). it would makes...
  12. Thread: SURVEYS

    by bthny10
    Replies
    1
    Views
    839

    Could you post a copy of the essay on the boards...

    Could you post a copy of the essay on the boards once you're done?

    <3 Bethany
  13. Replies
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    I have RSD and possibly Lupus. If you have any...

    I have RSD and possibly Lupus. If you have any questions about RSD, you can email me at bethny10@gmail.com.
  14. Reflex Sympathetic Dystrophy and (possibly) Lupus

    Hi!
    My name is Bethany and I'm (almost) fifteen. I have Reflex Sympathetic Dystrophy, Hyper Mobillity Syndrome, Anemia and a lot of normal kind of diseases (asthma, heart murmur, possibly,...
  15. Replies
    3
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    1,643

    I have RSD, too! I also have the hypermobillity...

    I have RSD, too! I also have the hypermobillity thing. Is this something a lot of people with Lupus have?

    I'm having a lot of symptoms that don't look like RSD, so I'm getting checked for Lupus. I...
  16. Replies
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    1,282

    I will pray for him... I'm really sorry. I know...

    I will pray for him... I'm really sorry. I know how much that sucks.

    -Bethany
  17. Replies
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    1,841

    Bad day... I just need to vent...

    Hey!
    First off, my name is Bethany. I am (almost) fifteen and in ninth grade. I am not 100% sure if I have Lupus or not. If I do it is very severe. I do know that I have Reflex Sympathetic...
  18. I like to dress up and do my hair. It makes me...

    I like to dress up and do my hair. It makes me feel better =)
  19. Thread: paralysis

    by bthny10
    Replies
    7
    Views
    963

    I have been unable to move my legs for almost two...

    I have been unable to move my legs for almost two years now. I might have Lupus, I have every symptom. I havn't been tested for over five years now (my ANA was negative than.). I do have Reflex...
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