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  1. Replies
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    o wow. ive never really thought about how doctors...

    o wow. ive never really thought about how doctors think of lupus patients beyond ruling us as not really sick. i would never have thought that because of how the disease is they have a hard time...
  2. i recently was told i have fibro as well. and it...

    i recently was told i have fibro as well. and it aint fun either. i had the same experience as u did with the doc.

    what meds are u given for it?
  3. Thread: neuropathy

    by Shyce
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    2,426

    i wish i saw this before, o well i went to a...

    i wish i saw this before, o well
    i went to a neuro yesterday. need a brain mri, had already done a CT, but apparently still need further testing
  4. Thread: Missed you...

    by Shyce
    Replies
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    2,769

    i was really worried when i noticed the site...

    i was really worried when i noticed the site wasn't working, still after 3 days. i was missing the board so much. i didnt have anyone's email. then rob found me through some googling, then emailed...
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    hey everyone a great big hello to u all im...

    hey everyone
    a great big hello to u all

    im glad i have my family back.
  6. Thread: Back Online

    by Shyce
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    im a happy camper HEY EVERYONE, WELCOME BACK ...

    im a happy camper

    HEY EVERYONE, WELCOME BACK
    :D :D :D :D
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    well, today is my first day examining this new...

    well, today is my first day examining this new system. i have to go in for some diagnostics, blood tests and such. i having an early start, just in case. i know last week (when it started) it was...
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    all you kids are so hilarious :D its kinda...

    all you kids are so hilarious
    :D
    its kinda comforting, because im sure theres still pain behind the smiles and laughs. but its comforting knowing its still possible to be and feel human, even if...
  9. Thread: Hi, im Raine

    by Shyce
    Replies
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    1,941

    wow, you are really young, but at least you found...

    wow, you are really young, but at least you found out early.
    :)

    everyone here really is nice and there will always be someone available to talk to and explain things.

    come back often.
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    wow rob, i get those spasms and 'electric...

    wow rob,

    i get those spasms and 'electric shocks' too. the shocks i get in my legs. i always end up scaring the ppl around me. its such a sudden and sharp uncomfortable feeling. sometimes painful...
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    ditto on those words jesseyleigh, its just a...

    ditto on those words jesseyleigh,

    its just a need to know basis. but those im around a lot, or the most are fully aware
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    Well, due in part to the recent available health...

    Well, due in part to the recent available health care here, ive just today discovered we now have disability plans available. i guess similar to what Rob has. its not a lot, buyt it does even include...
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    hi Lcasnyder everyone here can relate to your...

    hi Lcasnyder

    everyone here can relate to your experiences, i know i can. it took me a number of years to get my diagnosis. and every trip i went alone. not knowing was a major battle, and...
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    diet wise ive been advised to stay away from...

    diet wise ive been advised to stay away from citrus, dairy and red meat.
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    i really dont understand the breathing thing...

    i really dont understand the breathing thing myself. the doc that day basically said what i was experiencing was just from the lupus. but my xrays didnt explain the cause of my breathing probs.
    ...
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    wow, thats amazing you both have just shrunk...

    wow, thats amazing

    you both have just shrunk the world. i wonder if u both have ever come across each other b4
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    i had my worst case of bed side manners last...

    i had my worst case of bed side manners last month. the last two times i was brought into the ER

    thank god tho that we now have universal health care. the compassion might still not exist in most...
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    we seem to be walking the same fine line Rob......

    we seem to be walking the same fine line Rob... :D

    i too find food so undesirable @ times.

    my weight too has tapered. the fluctuations arent as wide. its more less 5lbs up and down. it used to...
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    hmmm, to the best of my knowledge, weight gain is...

    hmmm, to the best of my knowledge, weight gain is more popular, and i think its because of the prednisone.. i assume you are on that?

    i actually fluctuate, because my appetite fluctuate. right now...
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    THESE days i dont bother to tell new people about...

    THESE days i dont bother to tell new people about my condition. its so far along, i know they couldnt understand it properly. but then at the same time i tend to avoid new people. especially when i...
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    i just posted in another thread how just the past...

    i just posted in another thread how just the past few days have been really different for me. today even, im actually walking better (not longer tho...) its just not as hard.

    im not even usually...
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    hi there i have to give my welcome too. ive...

    hi there

    i have to give my welcome too. ive only been here a few days, and already this community has given me a reason to keep positive. im sure it will do the same for you.

    i too have issues...
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    Its Official, Universal Health Care

    yup, it started today. but theres much debate about whether it will work. the system is very much like what exists in Canada, and the UK. but of course, i doubt its as organised. plus persons who...
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    hmm, ive always been told to avoid birth control,...

    hmm, ive always been told to avoid birth control, so ive never been on them. but then my cycle gets worse and worse each month. my last cycle caused such trauma i was hospitalised. i cant even take...
  25. Thread: A Reason to Live

    by Shyce
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    unfortunately im still holding out to discover my...

    unfortunately im still holding out to discover my reason for living. i dnt think i have one. well, actually... my fear of the unknown, the other side. i dnt think im ready to discover that.

    plus i...
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