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Type: Posts; User: luv1only63

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    Do not apologize for venting,. you are at the...

    Do not apologize for venting,. you are at the right place to let it all out. frustration is a great part of this disease. be thankful you have a loving caring partner. my family assumes i am lazy...
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    I do know how you feel.

    but I remind myself everyday, any day above ground is a good
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    Hello fellow Tarheller. I am in Raleigh, NC and...

    Hello fellow Tarheller. I am in Raleigh, NC and like you lupus has disrupted my life. i had to stop work, unable to do much in the house, in constant pain, depressed, etc. i do try to keep a...
  4. Thread: PVCs

    by luv1only63
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    I wore a heart monitor for a week and it showed...

    I wore a heart monitor for a week and it showed PVCs. My cardiologist andf my PCP did not think it was serious heart disease. They prescribed anti-anxiety meds which did help.
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    I am in Raleigh, NC and agree with you. I had to...

    I am in Raleigh, NC and agree with you. I had to quit my job and at that time did not have a true diagnosis. I am looking for a local support chapter in NC.
  6. OTE=lizbond36;92661]I have red spots on my...

    OTE=lizbond36;92661]I have red spots on my forearm and now tiny dots on my arm. I had these for a very long time. I went online to found out what these are. I come across a website from a doctor....
  7. "It's like everything in my life stopped, and I...

    "It's like everything in my life stopped, and I was kicked back to the starting point to start all over again from scratch."

    My sentiments exactly. could not have said it better if i tried.
  8. Thread: Hallo all!

    by luv1only63
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    Hi Sabina, I am new to this site also but have...

    Hi Sabina, I am new to this site also but have found it to be very informative and inspiring. Welcome.
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    Thanks for sharing this, do you mind if I cut and...

    Thanks for sharing this, do you mind if I cut and paste it. I need to share this with my family/friends. My sentiments exactly,
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    Sticky: Not sure if I am responding correctly. went to my...

    Not sure if I am responding correctly. went to my PCP today. not only is the rash on my legs and feet but now i have the butterfly rash on my face. I did begin taking the predisone today and...
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    Sticky: [QUOTE=tgal;88252]The first thing that you need...

    [QUOTE=tgal;88252]The first thing that you need to know is that plaquenil often takes 3 to 5 months to really work. It is a slow thing but it helps many. I also understand you being worried about the...
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    Sticky: whew, i found it. thanks. i guess i am still...

    whew, i found it. thanks. i guess i am still experiencing a flare. it has been over a month since i was given melixicam and now plaquenil. the doc also gave me 2 weeks of predisone but i am not...
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    Sticky: i am new to this site and have learned so much...

    i am new to this site and have learned so much from reading the posts. i have a couple of questions, 1. how is a flare defined? and i now have scaly dry patches on my ankles, legs and feet. could...
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    hello fellow tarheel. i am in Raleigh and have...

    hello fellow tarheel. i am in Raleigh and have been diagnosed since June, 2008. still trying to understand this diease to i can explain it to my family and friends. where are you located
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    well i am trying to get acquainted with the site...

    well i am trying to get acquainted with the site and how to use it. thank you
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    thank you, i look forward to reading the info

    thank you, i look forward to reading the info
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    Like you I am new to this site. Among all the...

    Like you I am new to this site. Among all the issues, my family thinks I am just malingering and lazy. The fatigue is severe and the pain unbearable. Are there any groups for family members to...
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    hello, I am new to this website

    My name is Janice and I am 63 recently diagnosed with lupus. I still do not know how to explain this disease to my family and friends. Hoping to network and join a support group in the...
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