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Type: Posts; User: MyNest

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  1. Replies
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    My heart goes out to you becuase I know how awful...

    My heart goes out to you becuase I know how awful headaches/migraines are. I have a "cocktail" that I use everytime...

    1. take an 1 Excedrin
    2. take 1/2 Skelaxin (muscle relaxer that doesnt make...
  2. Thread: rash on lips?

    by MyNest
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    398

    Yep, I think you are 100% right on that one. I...

    Yep, I think you are 100% right on that one. I went for a short walk after posting this and later noticed how much worse my skin and lips looked. I think that my skin is in a flare and the sunlight...
  3. Thread: rash on lips?

    by MyNest
    Replies
    3
    Views
    398

    rash on lips?

    Am I the only one to get this annoying rash on my lips (along with cheek and chest rash)? If so, what do you do for it?

    Thanks,
    Kerin
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    ideas to help in a flare?

    What meds do you all find helpful in a flare situation? I have only tried muscle relaxers, but only as a last resort becuase they tend to give me even more "brain fog" than I already have! As a...
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    Hi there Debbie, I am so sorry that you are going...

    Hi there Debbie, I am so sorry that you are going through this wait and worry stage! It doesnt seem fair. I can hope along with you that you get answers from all of this.

    I can tell you that I...
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    Sleep is tricky, I will say that! I give it ALL...

    Sleep is tricky, I will say that! I give it ALL the respect that it demands and never take the evening for granted. I have tried so many different things and found a few tricks that work for me. ...
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    Lol, I think that we can all sympathize with an...

    Lol, I think that we can all sympathize with an episode or two of House! They always throw in an autoimmune disease into every episode just for kicks and giggles. I have a feeling that now after...
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    You and your family will be in my thoughts. Hugs...

    You and your family will be in my thoughts. Hugs to you sweetheart.
  9. This is a very interesting article. I had very...

    This is a very interesting article. I had very low Vit. D found a few years ago, I took a course of 50,000 dosage for a while and it went up to normal. Than again....we did the same treatment. The...
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    Rob, so many truths to what you said! I need to...

    Rob, so many truths to what you said! I need to adopt your attitude and not let docs play the guessing game with my health after 10 min. of meeting me! In fact I wont!
    Thanks.

    tGal, thanks for...
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    I hate LIMBO land!

    Seriously, it's fine being in Limbo Land when I feel "fine". My fine used to be great, but now my "fine" is defined by whole new set of set of rules. If I am not too tired to get out of bed, if my...
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    ok, this is all too scary for me to hear!!! my...

    ok, this is all too scary for me to hear!!!

    my mom was diagnosed with Sjogrens, but i never imagined that I might have it too. i hate to admit this, but years ago, i didnt even think that...
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    Trouble when swallowing

    Hi. i am curious if this is common among lupus patients? i can swallow food/liquids...but on the way down it gets stuck. it really hurts and can take a minute or so to go down. this is so...
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    Hi Moxi~ Well yes i do have raynauds. this...

    Hi Moxi~

    Well yes i do have raynauds. this year is pretty much the worst it has ever been. it is not even the dead of winter yet and my fingers are givin me fits! :?

    i guess you just may...
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    Hi SaySusie, thank you for your reply. Since...

    Hi SaySusie,

    thank you for your reply. Since it is very cold here, I have gotten no sun at all in a few months. I do wear 30 sunscreen on my arms if i have short sleeves.

    I guess that I wasnt...
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    My skin hurts to touch

    Today my skin hurts to touch. This is most noticable in my arms, ribs and legs. I also had a pretty good headache/migraine today. I am not sure if they are related, but it is awful!

    I took the...
  17. You guys all rock! thanks...so if I am not...

    You guys all rock! thanks...so if I am not mistaken, this is how it goes, and I am tempted to bring this list with me on my apt on monday!

    I have had or do have:

    *started with the discoid rash...
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    Symptoms but no elevated SED rate!?

    One more question, when I went into the doctors last time, I had severe TMJ or jaw pain, along with horrible stomach pain or spasms...

    The doc had me do a SED rate test and it was not elevated. ...
  19. Why do all of my doctors have different oppinions?

    So my question is this...the gasrtro intestional doc says that, becuase I dont have a lupus rash on my face, i cannot have Lupus.

    The family practitioner that specializes in autoimmune stuff says...
  20. Thanks for the warm welcome all! You all have...

    Thanks for the warm welcome all! You all have very good points, it brings up so many questions, guess I will post a real question in the correct spot!

    :roll:
  21. Hey there SaySusie, thanks for your reply! I...

    Hey there SaySusie,
    thanks for your reply!

    I took the Plaquenil for 4 years. I have my regular eye exams and am not really worried about the eye thing. I have definately had loss of vision in...
  22. New, whats new...I am confused, diagnosed, but maybe not!?

    Hi, so long story short, I am in my 30's, a mom and doing okay, but I have my BAD days.

    I am glad that I found this place to share, learn and hopfully laugh :wink:

    I have been going to docs...
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