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  1. Replies
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    Well, it seems my problem could be related to...

    Well, it seems my problem could be related to lupus, since others have it as well. The dentist could only see some slight reddening and the X-ray showed no problem. He gave me a prescription rinse...
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    Rob and Andrea, thank you for your responses. I...

    Rob and Andrea, thank you for your responses. I just saw the dentist two weeks ago for my six month cleaning/checkup and all was well. I am very careful to keep my teeth and gums brushed and...
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    Anyone get sore/swollen gums?

    For the second time in about six months, I have been getting sore gums on the left side of my mouth. All of my pain and symptoms are on the left side, so it makes me wonder if this is some sort of...
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    Another Step Back

    Just got back from the allergist today who confirmed cold-induced urticaria (hives) which he believes is caused by the lupus. I now have to carry an Epi-pen with me at all times because I swell up...
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    Ang, that nurse is all wet. According to "The...

    Ang, that nurse is all wet. According to "The Lupus Book" by Dr. Daniel Wallace, the widely acknowledged expert on lupus, only 35% of lupus patients get the butterfly rash. I don't get it either,...
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    Yes, absolutely, call the doctor. I had muscle...

    Yes, absolutely, call the doctor. I had muscle spasms on a regular basis that didn't stop until I started Plaquenil and methotrexate....and later Imuran. Everyone is different, but your doctor...
  7. Thread: Plaquenil

    by Jesse
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    Here's something you might all find interesting. ...

    Here's something you might all find interesting. I also have Sjogren's Syndrome and just finished reading The Sjogren's Syndrome Handbook, Edited by Dr. Wallace, a well known expert in the field of...
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    Hi! I just wanted to add my welcome. Sorry you...

    Hi! I just wanted to add my welcome. Sorry you have to be here, but you are at the right place. We will understand you and your challenges like no one else can who does not face the same struggle....
  9. Debbi, you are not a wimp! You've been dealing...

    Debbi, you are not a wimp! You've been dealing with constant pain for a long time and all you ask for is medical assistance that will ease your pain. Your frustration is understandable but I'm so...
  10. I have heard of some lupus patients with mild...

    I have heard of some lupus patients with mild disease doing well on Plaquenil alone, but many of us are on MTX, Imuran or another immunosuppressant. I was never even given pred. until I developed...
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    You've gotten good advice here and the only thing...

    You've gotten good advice here and the only thing I can add is that you shouldn't be too determined not to start MTX or Imuran. I've been on both (Imuran right now) and they do help, although I...
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    Interesting post. I have never had the butterfly...

    Interesting post. I have never had the butterfly rash. The only rash I ever get is when any part of my body is cold, that part turns bright red and itchy. Yet, all the literature leads one to...
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    You poor baby. I can feel how worried you are...

    You poor baby. I can feel how worried you are and yet you took the time to warn us so we could avoid the same issue. That was so good of you.

    How wonderful that there is a surgery to help you. ...
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    How Much Do You Think About Your Health?

    Do you think about your lupus every day? If so, how much time do you spend thinking, talking or researching about it? After two years I find I still think about it a lot and still do occasional...
  15. I recently developed a similar problem. My right...

    I recently developed a similar problem. My right upper arm muscle became extremely sore and I couldn't lift my arm at times. The rheumy blames the lupus/Sjogren's. Naproxen helped but now the...
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    Question About the Sun and Lupus

    Hi everybody,

    Though I have a dx of lupus and Sjogren's I don't have any problems with the sun at this point. I always wear sun block and a hat if I'll be out for any length of time, but on our...
  17. Thread: Leg Numbness

    by Jesse
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    Hi Rob, Yes, I get it too in my left leg with...

    Hi Rob,

    Yes, I get it too in my left leg with the additonal feeling of the leg being very heavy and "thick." Sometimes it feels cold too and sometimes my arms go numb as well. I don't have MS...
  18. Thread: Its M day

    by Jesse
    Replies
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    Hi Danica, Your dosage is pretty high too at...

    Hi Danica,

    Your dosage is pretty high too at .7 but I sure do understand why you wanted to take another one to control the rest of your symptoms. I remember when I stopped the MTX because I...
  19. Thread: Sjogrens

    by Jesse
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    I get that film on the eyes too, though I don't...

    I get that film on the eyes too, though I don't have much trouble with dry eyes or mouth. The eye doctor told me the film is a form of SS where the disease is messing up the balance of the elements...
  20. Thread: Its M day

    by Jesse
    Replies
    502
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    136,194

    Hi fellow lupies. I recently stopped MTX but I...

    Hi fellow lupies. I recently stopped MTX but I was on it for 1 1/2 years so maybe I can be of some help. I was gradually bumped up to my highest dose of 20 mg. over a period of a few weeks but...
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    Hi Faith, I'm sorry you're going through this,...

    Hi Faith,

    I'm sorry you're going through this, especially since you haven't been able to get a diagnosis. Has anyone mentioned fibromyalga to you? That's a possibility. Also, there are some...
  22. Thread: So Slow To Heal!

    by Jesse
    Replies
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    Thanks for your post Danica. I'm one of those...

    Thanks for your post Danica. I'm one of those lupies allergic to sulfa drugs so bactrim is not an option for me. I have a derm. and am on topical acne meds but it's no longer working. I'm going to...
  23. Thread: So Slow To Heal!

    by Jesse
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    Yes, it was worth it to me because I also felt...

    Yes, it was worth it to me because I also felt that Imuran might be a little less toxic, although that is up for debate. I also like not having to inject myself every week. I expect though that...
  24. Thread: So Slow To Heal!

    by Jesse
    Replies
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    I was on 20 mg. of the MTX pills for about one...

    I was on 20 mg. of the MTX pills for about one year then I was switched to .08 injections because the pills weren't quite doing the job. The injections did work better, but that's also when the skin...
  25. Thread: So Slow To Heal!

    by Jesse
    Replies
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    2,176

    It's a medication to suppress the immune system. ...

    It's a medication to suppress the immune system. It acts in a similar fashion to MTX but is not really the same. No folic acid is needed. It's the same drug that's given (in higher doses I assume)...
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