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  1. Thanks for all the sympathy guys. Sometimes I...

    Thanks for all the sympathy guys. Sometimes I find that the most soothing thing for the moment is a kindly "Poor you". The medicine is already helping, thank goodness. And I bought a six pack of...
  2. Oral Thrush--Warning: Nasty tongue pics!

    So at first I thought my tongue was just all messed up because of the Sjogren's. I would wake up in the morning with it stuck to my teeth and the roof of my mouth. Then it started hurting to eat,...
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    Oh, Ritz, I'm so sorry things turned out that...

    Oh, Ritz, I'm so sorry things turned out that way. Somewhere in Missouri there is an incredibly irate girl who is cursing that damn doc on your behalf!
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    Hi MaryAnn, and welcome to WHL. We're thrilled...

    Hi MaryAnn, and welcome to WHL. We're thrilled to have you!

    It does sound like something's up, so I'm glad you got your appointment moved up. Is it for a Rheumatologist? I know that's the...
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    Got Free Lidoderm Patches!!!

    I wanted to share this with you guys. It reminded me that good things are still possible. : )

    I signed up for a pharmaceutical program through ENDO, a complany that makes Lidoderm Transdermal...
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    Welcome! I must admit, I've learned more here...

    Welcome! I must admit, I've learned more here than I ever could have found out on my own. I'm so glad you found us, and I look forward to getting to know you.

    Sharpie
  7. Hey Hunniebun. I love that username, by the way....

    Hey Hunniebun. I love that username, by the way. : )

    I really like Aleve, and I think it's worth asking your doc about. Of course, I'm super poor so I take the generic of everything, so it's...
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    Holy crap, Rob; I wanna be best friends with your...

    Holy crap, Rob; I wanna be best friends with your dad. I have this gut feeling that there are about a thousand things we'd disagree vehemently on, but I still want us to wear matching BFF lockets...
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    Happy Happy Birthday!!

    Happy Happy Birthday!!
  10. Sorry about the bump, but I'm hoping some more...

    Sorry about the bump, but I'm hoping some more people will see this this time. I'm especially interested in Neurontin, and whether it treats pain in joints and muscles alike, and how effective it's...
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    Marla, I'm so happy to hear your visit was both...

    Marla, I'm so happy to hear your visit was both productive and enjoyable. How awesomely lucky you are to be that close to SF. I got to live there for about a year after college, and I did indeed...
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    I was just talking to somebody about this type of...

    I was just talking to somebody about this type of thing. I was wondering if my meds, namely plaquenil and prednisone, were the reason it seems to take forever for scrapes and cuts to heal.

    I'm so...
  13. Gabapentin ( Fanatrex, Gabarone, Gralise, Neurontin, Nupentin

    Does anybody use these drugs, or other anti-convulsants, to help treat pain? I'm wondering how effective they are, and how long they take to work. I'm working really hard to find a way to get away...
  14. Thank you, everyone, for all the well wishes. ...

    Thank you, everyone, for all the well wishes. Here's a little update:

    I have that flu thing I nursed my sis and niece through. Figures, lol. I found it very interesting that it took me a day...
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    Yay! I'm so glad your head's staying put!!

    Yay! I'm so glad your head's staying put!!
  16. Heading into the flare I knew was coming

    This has been the best week and a half since long before my diagnosis. I've been able to do things I haven't done in forever; from just getting out of the house to playing nurse for my sister and...
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    Big CONGRATS Marla!! I hope your day is among...

    Big CONGRATS Marla!! I hope your day is among the last 35 years' awesomest!
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    Sticky: Awesome thread, Melanie! I can't wait to tell my...

    Awesome thread, Melanie! I can't wait to tell my doc he's in the WHL Hall of Fame.

    My SuperRheumy is Dr. Mark Box at KC Internal Medicine. He's in Overland Park, KS, which is right next to...
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    Melanie, I'm so sorry you're going through this!...

    Melanie, I'm so sorry you're going through this!

    I don't know anything about Savella, but it sounds to me like you're saying you're off of it and Cymbalta altogether now. Is that right? Did the...
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    Happy Birthday to the inspiration for an entire...

    Happy Birthday to the inspiration for an entire universe (in my head, anyway). Don't even try to be shy about it; you know you rock our socks off!
    WE LOVE YOU!!
  21. Ok, so we nix the jackets, and invest in...

    Ok, so we nix the jackets, and invest in bulletproof vests. Those'll look more hardcore anyway. ; )

    I'm so sorry to hear your news. But I know you'll be able to handle it. I bet you've gotten...
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    Man, I'd be confused too, if I were you! It all...

    Man, I'd be confused too, if I were you! It all seems to come so out of the blue! Had you even been having lupusy symptoms lately? How frustrating and confusing for you!

    Ok, so first I gotta...
  23. Julia, Wishing you luck with your appointment,...

    Julia,
    Wishing you luck with your appointment, from one healthcare system hater to another. We should form a club. We could have jackets. I'm thinking black with purple writing. Who can come up...
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    Marla, when I read your headline I had visions of...

    Marla, when I read your headline I had visions of big ole Conner rolling you out of your bed. : ) I'm sorry it didn't turn out to be that!

    I've never been able to understand how people sleep, I...
  25. Aw, friend, thank you so much for having my back....

    Aw, friend, thank you so much for having my back. I gave myself a few hours of feeling defeated, and now I'm trying to claw my way back to fighting mode. It's so much easier to do that when you...
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