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Type: Posts; User: rlbyler

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  1. Replies
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    Rob - Thank you so much for sharing your...

    Rob -

    Thank you so much for sharing your story. It brought back some very familar feeling within myself. I too have attempted and failed twice trying to put an end to everything in life. The...
  2. Thread: morning star

    by rlbyler
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    1,754

    Hey there little Missy! I know what your going...

    Hey there little Missy!

    I know what your going through with the weak achy crappy feeling. I get the same way. I have asthma, on top of everything else, and man, as much as I'm wanting summer to...
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    Hi Everyone!!!! Hope everyone is doing well,...

    Hi Everyone!!!!

    Hope everyone is doing well, and resting throughly! So I'll start with the good news first, I got to see my engagement ring last night!!!! It's a 1/5 caret emerald cut trio...
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    Jessleigh, I completely understand what your...

    Jessleigh,
    I completely understand what your going through. My boyfriend (soon to be finance') is the same way. We' found out today that I do have fibromaylia (i can't spell that) and that I may...
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    Hi Everyone - I'm checking in. I've been...

    Hi Everyone -

    I'm checking in. I've been back to work and home again. It's awful. I'm still experiencing numbness in my feet and often times in my hands. My dr seems to think it could be a...
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    Just need to vent....

    Hi Guys,
    I'm venting today. I'm sorry. I'm in a FLAIR again. I was diagnosed last July and as many of you know have been in and out of the hospital so many times since October that all the ER...
  7. Thread: Tanning

    by rlbyler
    Replies
    8
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    1,081

    Hey Ladies, I've used the spray tan's from...

    Hey Ladies,
    I've used the spray tan's from Under the Sun a tanning shope here in OKC, and they work really well. It's a bronzer that's sprayed on by a person, rather then the machine stuff. It's...
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    Hi Everyone... My sister sells Monvie, so if...

    Hi Everyone...

    My sister sells Monvie, so if anyone needs it I can give you a number to call. She sells it for $30.00 a bottle. My oncologist is the one that suggested it to me. I've been taking...
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    Karen, Congrats to you. I too had an...

    Karen,
    Congrats to you. I too had an accomplishment this week....I (knowingly this seems so stupid to some) was able to work 2 consecutive weeks without missing any work. This hasn't happened...
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    I too have to agree that family members deserve a...

    I too have to agree that family members deserve a kudos times a hundred. My parents and grandmother, have been soo great through all of my ordeals. Everything from taking me to doctors...
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    Hello

    Hello Carryonplease:

    I'm a lupie..as we are called. My fiance of 2 years, couldn't deal with my diagnosis and so the relationship ended last summer. Some people choose not to be supportive or...
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    Re:

    Hey Rochelle,

    Your welcome anytime!

    The predisone makes you hyper? loopy? Gosh I wish it did that to me. It just makes me want to sleep or throw up. When I first got on it, it made me sooo...
  13. Thread: feeling alone

    by rlbyler
    Replies
    17
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    3,420

    you'll never be alone.

    Hey girly.....
    I'm going through the same thing. except with my employer. The last time I was in the hospital they actually called the hospital to see if I had indeed been admited and what room...
  14. Thread: DAYS TO COME

    by rlbyler
    Replies
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    1,247

    Love it....

    I loved that poem....so funny and yet so close in realization to my life right now....Hmmmmm.....

    I'm going to tape this one to the mirror in the bathroom.

    Thanks for sharing...

    Robin
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    Hi Rochelle

    Hi Rochelle,
    I have SCLE. I was diagnosed in July. I didn't see this on the horizon either, we thought that the rash and asthma were just sensitivities to the allergies, and maybe the jersey's I...
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    Numpty, I have the same pain in my hips and...

    Numpty,

    I have the same pain in my hips and knees. My knees don't hurt as often as my back does. It often feels like someone is just cracking my hips like a nut or something...and my back like...
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    I'm not sure if you've gotten an answer or not,...

    I'm not sure if you've gotten an answer or not, but YES this is a serious side effect of this drug. My oncologist told me this when he put me on it i the beginning. It's whats called pignmont...
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    Hello girls..... Everyone is just great! My...

    Hello girls.....

    Everyone is just great! My doctor is taking a very active approach to this, and he's been on the very very low tolerant side of putting up with my flares. Any sign of...
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    Hi New Member and recently diagnosed

    Hello Everyone,

    My name is Robin, I've had symptoms of systemic lupus since High School, and have been undiagnosed for almost 7 years. Last July I was formally diagnosed with Systemic Lupus. ...
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