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Type: Posts; User: tinajee

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  1. Thread: New info

    by tinajee
    Replies
    3
    Views
    1,327

    Thank you for all the nice things you said. I am...

    Thank you for all the nice things you said. I am so glad that Zoie was able to get in touch with me. I would love to know that I can help someone in any way. You are a great leader for this board and...
  2. Thread: New info

    by tinajee
    Replies
    3
    Views
    1,327

    New info

    Hello all and I hope this finds you all doing well. I am not doing so well myself, I went back in yesterday for a checkup and still even on the Cellcept, no remission. :cry: The new news is that i...
  3. Replies
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    4,152

    Thank you for all youur advice because I am a 32...

    Thank you for all youur advice because I am a 32 year old wife and Mother of two daughters. I ahvr had lupus SLE for the last three years now with no remission any where in sight. My doctor is no...
  4. Replies
    14
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    6,394

    :D Hey there I can understand exactly what you...

    :D Hey there I can understand exactly what you are dealing with. You need to undedrstand thta hair loss is one of the symptons of lupus. Has your doctors tried you on folicf acid for the hair loss?...
  5. Thread: New Medicine

    by tinajee
    Replies
    3
    Views
    1,616

    New meds doing great

    Hey there how are all of you? The cellcept is doing good so far hopefully it will stay this way. Imagine me going into remission after this year long struggle. The only thing about it is that it...
  6. Thread: New Medicine

    by tinajee
    Replies
    3
    Views
    1,616

    New Medicine

    Hello everyone how is everyone doing? Well my doctor started me on this new medicine named Cellcept and i think it will help me finally get into remission. There are alot of side effects to this...
  7. Replies
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    1,780

    Hey keep your chin up!!!! We all had to go...

    Hey keep your chin up!!!! We all had to go through these so called know it all doctors. Lupus is a very harrd disease to diagnose. It took me two years of nothing but agony to finally find out I have...
  8. Replies
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    1,387

    I am having a terrible time dealing with the pain...

    I am having a terrible time dealing with the pain of this disease. What else can be done besides exercise and pain pills? Do any of you go to a pain doctor for it? take Care
  9. Replies
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    4,005

    Hello and welcome! How are things there in puerto...

    Hello and welcome! How are things there in puerto Rico? I use to deal cards with alot of people from there when I worked at a casino in Greenville, Mississippi. We should chat sometime to see if you...
  10. Replies
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    2,577

    Hey there I am doing about the same. My...

    Hey there I am doing about the same. My medications for my lupus are still not working at this point and I am really getting frustrated. I think my doctor is going to have to start the IV chemo when...
  11. I was wondering if any of the current members of...

    I was wondering if any of the current members of this board are going through any kidney problems? I was wondering if anyone can give me some examples because the protein and blood has showed up in...
  12. Thread: Organic Food

    by tinajee
    Replies
    13
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    3,677

    :?: Just wondering has anyone did any kind of...

    :?: Just wondering has anyone did any kind of study on what kind of diet is best for Lupus patients overall? I know some foods can have more helpful vitamins than others, but on the average these...
  13. Thank you! I am trying very hard to deal with the...

    Thank you! I am trying very hard to deal with the tiredness that comes along with the disease better with each day that comes. I sometimes find myself wondering why me? There are so many people out...
  14. Replies
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    9,945

    Hello I am 32 Was diagnosed two yeas ago Hvae...

    Hello I am 32
    Was diagnosed two yeas ago
    Hvae not gone into remission as of yet but still trying very hard
    kidney,lungs,and heart
    online mostly at night or you can email me at...
  15. Thread: flu shots?

    by tinajee
    Replies
    8
    Views
    2,583

    I can really relate to your situation. I took the...

    I can really relate to your situation. I took the flu shot for the first time this year and so far no flu. My doctor insisted that I take it. But everyone please still be careful because there are...
  16. Replies
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    2,472

    Hi I am on Methatrexate now and the nausea was...

    Hi I am on Methatrexate now and the nausea was bad at first but after being on it for a while your body kinda gets use to it and it's not so bad. But with me the medicine has still not put me in...
  17. Replies
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    2,577

    Thank you for your reply and advice. Yes I do...

    Thank you for your reply and advice. Yes I do have a huge load on me but the great thing is I have a wonderful husband that helps as much as possible. Right now I am off work due to my kidney...
  18. Replies
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    2,577

    Thank you for that great advice! I am new to this...

    Thank you for that great advice! I am new to this support thing and I am so glad I finally found one. I have Lupus SLE and my doctor is in Memphis, Tenneesee. She seems to really know alot about the...
  19. Thread: bad night

    by tinajee
    Replies
    3
    Views
    1,990

    Hello I know what it's like to have bad nights. I...

    Hello I know what it's like to have bad nights. I have Lupus SLE and the pain factor is bad at times. Any ideas on that one? Hope you feel better and try what I do pray alot.
  20. Replies
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    HI, I too have Lupus SLE and ever since I was...

    HI, I too have Lupus SLE and ever since I was diagnosed about two years ago I ahve noticed that my cycle is doing the same as yours. Normally mine always ran about five days since I had my tubal...
  21. Hello I am a Lupus SLE patient. I am 32 years...

    Hello I am a Lupus SLE patient. I am 32 years old,married, and have two daughters. I live a very busy life as you can tell. My doctor can not seem to get me in remission now for six months. I am very...
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