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  1. im not in orange county but im in los angeles,...

    im not in orange county but im in los angeles, which is not to far. i just got diagnosed last year but would love to talk to you if u need anything, im also working on finding some groups here in...
  2. glad ur back, i hope you feel better soon, whats...

    glad ur back, i hope you feel better soon, whats goin on with u? im glad this site is back, i was checkin everyday!
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    yay! i hope everyone is doing ok! can we have a...

    yay! i hope everyone is doing ok! can we have a role-call?
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    left shoulder pain

    for months my left shoulder has been in excruciating pain, some days more than others. It hurts to raise my arm, when i breathe in, if im laying down if im just sitting here. It feels like there...
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    my doctor had tol dme that i would be likely to...

    my doctor had tol dme that i would be likely to have flare ups when im on my period. Out of the 8 months that ive dx with lupus, id say about 5 of them, including this month ive had a horrible...
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    wow i missed the people and the site, i checked...

    wow i missed the people and the site, i checked every day, im sooo happy! how is everyone!!
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    thanks you guys. yea wal-mart was my first...

    thanks you guys. yea wal-mart was my first choice, so i gotta go over there, also my friend and i found some online at costco, the kirkland brand, 400 for like 9.995, i think 1000 mg. so i think that...
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    fish oil?

    ok so i see that alot of people say fish oil is good, could you tell me y, and could you tell me some brands that maybe i should try, (im on a budget so i cant spend to much)

    thanks guys, youre a...
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    lol i love it!! thank you for the smile i have on...

    lol i love it!! thank you for the smile i have on my face, under the rash.....lol
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    oh my gosh yes. and i feel like im screaming...

    oh my gosh yes. and i feel like im screaming inside. Or they say you look ok, r u sure you feel that bad. i guess people have a hard time believing if they cant see. Thats y i love you all, u know...
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    not at all, i feel your pain (more literally than...

    not at all, i feel your pain (more literally than people think). i know wat u mean, they gave me i b proferen, it doesnt help at all. I had one dr. give me vikaden but that was like months ago. i...
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    havin a bad day....

    well yesterday i was feelin ok, then i went to wrk at 7pm and my nite just went downhill. I started to feel real tired and my body started to feel real hot and i felt feverish. I knew what was...
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    thank you every one. yea im glad that they are...

    thank you every one. yea im glad that they are paying attention to me, and i hope it says that way, i want to feel better, at least as much as possible, and i know that means being on the right meds...
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    lol the 24hr collection......

    ok so its tuesday, and i got to go to the dr. yay!!thats an accomplishment in itself, lol. So i got "the little brown jug" to collect pee for 24 hrs, wow, thats crazy. I finally got more plaquenil,...
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    good i guess, he apologized for scheduling me too...

    good i guess, he apologized for scheduling me too few hrs, but he said that he just wanted to know that i was feelin better. i explained that it just depends on the day, and he said we will just try...
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    thank you, you all are awesome!!

    thank you, you all are awesome!!
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    oh lauri asked about imuran, im a little slow...

    oh lauri asked about imuran, im a little slow some times. i dont know how i like it, i think that y i lost alot of hair? i used to have real thick hair and its thinned out alot, it makes me sad, and...
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    i will try that today with him, i need him to...

    i will try that today with him, i need him to understand that when im sick im sick, but then the next day sometimes im ok, i guess its just weird to ppl. i mean it is to me too i guess, one day i...
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    well i work at starbucks, lol so im up and all my...

    well i work at starbucks, lol so im up and all my feet rushing around, and im a shift lead so that a little more stress for me. nite working is wat gets me the most because there are more...
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    thank you oluwa, i went to the link, more notes...

    thank you oluwa, i went to the link, more notes for me!!! whew this is alot of stuff to take in, but im glad to be laerning so i can help with my health. thank you again!

    how are you feeling...
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    thank u oluwa, thats alot of info, lol i printed...

    thank u oluwa, thats alot of info, lol i printed it out so i can remember to ask all that.

    lauir, my appt is next tues, the reson im not on the plaqenil for awhile is i ran out and have been...
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    ok i feel like im lookin in a mirror (kinda) when...

    ok i feel like im lookin in a mirror (kinda) when i read wats wrong with you. i have a left shoulder pain that comes and goes and on the bad days it feels like it goes up my neck and unnder my ear. i...
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    i would really love to go to the meeting at...

    i would really love to go to the meeting at cedars, how was it, would anyone like to go with me? it would be my first time, and im kinda nervous
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    i woulda used the bucket, but then again im not...

    i woulda used the bucket, but then again im not to sane....lol,lol

    i like that u all come on here to talk about the disese, and that u acan all laugh and have fun to. i need some of that in my...
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    going to the dr...

    so i have an appt with my primary care dr on tues, this was the earliest they could get me in. i wanted to know of any specific questions that i can ask them that may help me? i need to learn about...
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