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Type: Posts; User: Alicake

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    Yeah, it depends on lab ref. ranges on if its...

    Yeah, it depends on lab ref. ranges on if its borderline or strongly positive. At my lab, that would be a strong positive (cutt off is 1.0 I believe at my lab) However, anti smith is considered %100...
  2. Thread: test results

    by Alicake
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    Like steve said, bloodwork alone does not make a...

    Like steve said, bloodwork alone does not make a diagnosis. Bloodwork + symptoms must all be taken into consideration.

    *If* you have symptoms consistent with Lupus and anti histones the first...
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    Sticky: Rheumatologist - Dr. Birbara in Worcester MA....

    Rheumatologist -
    Dr. Birbara in Worcester MA. Amazing doctor, extremely caring & friendly. His head assistant (nurse I believe?) takes all the history so you have a good long appointment overall....
  4. ANA alone isnt really reason for a PCP/GP to...

    ANA alone isnt really reason for a PCP/GP to freak out, but they often do. They browse over it in med school and the statistics are lupus has %95 chance of ANA being positive. GPs seem to remember...
  5. Thread: Possibl lupus?

    by Alicake
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    did the other rheumy explain the positive...

    did the other rheumy explain the positive russell's viper test at ALL?

    If not, then you should know this is also called the lupus anti coagulant. It doesnt necessarily mean one has lupus, but...
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    The NIH recently announced networks to fast track...

    The NIH recently announced networks to fast track drugs for
    Lupus & RA
    http://www.nih.gov/news/health/sep2014/niams-24.htm
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    Every lab has different reference ranges and we...

    Every lab has different reference ranges and we cant really say whether something is borderline, positive or negative without the ranges. (ie my labs anti-sm is <0.1 is negative or something like...
  8. Thread: Hi New Here

    by Alicake
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    Ashley, Hi and welcome! I also have raynauds (I...

    Ashley,
    Hi and welcome!
    I also have raynauds (I always have though)... I can offer some tips for help with that. One, cold is a big stresser of raynauds. Some of us carry gloves with us, especially...
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    Trust me, I get it. But the diagnosis is just a...

    Trust me, I get it. But the diagnosis is just a name at the end of the day.
    I just returned from an AWFUL rheumy appt where I was rushed and treated like what I was saying was trivial. To put in...
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    If you're having bad chest pains that youve never...

    If you're having bad chest pains that youve never had before I suggest heading to an ER or *AT LEAST* calling your doctor to see what they suggest. Even if its not a medical emergency, get a sick...
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    I have had some, but not all, bloodwork done....

    I have had some, but not all, bloodwork done. Have you had an ANA and other antibodies done?
    My ana & dsdna were positive. My sed rate was only 3 even though that week my toes and fingers looked...
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    The migrating joint pain (I think)could be...

    The migrating joint pain (I think)could be different for everyone. I just shared my experience and I havent been diagnosed yet either (first rheumy appt is in a few days)

    The cold rainspots I get...
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    As far as your question to migrating joint pain. ...

    As far as your question to migrating joint pain.

    I could have sore knees for a week- like someone drove over them. Two. Maybe a month.
    Then my knees will feel mostly fine but my hands will feel...
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    lupus & PT/acupuncture?

    Im still waiting for my rheumy appt to find out if I have lupus or something else... Although I've been dealing with some very bad pain days that OTC pain relievers arent helping, and cymbalta isnt...
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    I can relate on the fatigue. Some days it's worse...

    I can relate on the fatigue. Some days it's worse than others.

    Today were on vacation and visiting a zoo. I passed out on a park bench when I sat down to relieve some joint pain
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    My feet were very painful, although it didnt...

    My feet were very painful, although it didnt *fix* it, crocs helps me make it through the day. I got this decent looking pair, sort of like mary janes.
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    I thought I'd chime in even though this is an old...

    I thought I'd chime in even though this is an old thread for anyone new who comes across this.

    I started generic cymbalta 2 weeks ago (for pain). The pharmacy did not have all my script, so they...
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    Hi, let me introduce myself

    Hi everyone!

    This is the 2nd lupus message board I've joined since finding out what may be wrong with me. Im sure theres some crossover from the two sites, but I'll still include my hellos here.
    ...
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