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Type: Posts; User: dede96

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    Thank you all for your good thoughts and prayers....

    Thank you all for your good thoughts and prayers. I had a feeding tube placed today as I just don't feel like eating. My lungs are so full and my chest feels so heavy. I am receiving breathing...
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    I'm not doing so well!!

    Hi everyone, I haven't been around much lately and I am sorry for that. Just when I thought everything was going in the right direction, I have been knocked down again. After working for only 8...
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    Hi there. I am currently working. I am a nurse....

    Hi there. I am currently working. I am a nurse. Unfortunately I have lupus, crohn's and intracranial hypertension. Everyday that I can wake up and go to work I am grateful. I have been working...
  4. Thread: Rob...

    by dede96
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    Rob, I just read all of your posts and I am so...

    Rob, I just read all of your posts and I am so sorry for what you are going through. That's wonderful that you are done with the treatments. I am praying that the side effects wear off quickly. I...
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    I think that when you are sick, whatever you can...

    I think that when you are sick, whatever you can eat that makes you feel better do it. Now I am not recommending over indulging on something that can potentially hurt you but if it can give you some...
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    I hope you have a wonderful time. I have never...

    I hope you have a wonderful time. I have never been on a train. With gas prices being so high my husband just said today that we should take the train to Chicago to see my daughter and son in law. ...
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    Kimberly- no adhesions showed up on my last ct...

    Kimberly- no adhesions showed up on my last ct scan a couple of weeks ago. I have had 2 bowel obstructions since nov 07 and was never told if adhesions were an issue. Like I said in my earlier...
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    Abdominal Adhesions

    Hi everyone, I have a question. Has or does anyone out there suffer from abdominal adhesions from any previous abdominal surgeries? I am having a horrible time and can't seem to find any good...
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    Oluwa, Happy Happy Birthday!! :bday: :multi:

    Oluwa, Happy Happy Birthday!! :bday: :multi:
  10. Thread: new

    by dede96
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    Hi Aj and along with everyone else welcome!

    Hi Aj and along with everyone else welcome!
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    Marcia, welcome to the family. I'm sorry to hear...

    Marcia, welcome to the family. I'm sorry to hear of your flare. Unfortunately with this disease one never knows what is going to happen. I certainly understand what you mean about the weight gain...
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    Sits-basically right now the dr. is just...

    Sits-basically right now the dr. is just monitoring the fluid around my heart. Motrin is the only thing right now to help with the inflammation and pain. If the fluid increases they will have to...
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    I am immune to alot of the prescribed pain meds. ...

    I am immune to alot of the prescribed pain meds. I don't even get them filled anymore after a hospitalization, and I don't ever ask the dr. for them anymore. Unfortunately, since I quit breathing...
  14. Thread: hi to all

    by dede96
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    davidandgina, welcome and I am so sorry to hear...

    davidandgina, welcome and I am so sorry to hear about all of this. Lupus is a terrible disease and can cause so many many horrible things to happen. I know first hand about the frustration side of...
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    Sits-I'm doing ok. I started working and that is...

    Sits-I'm doing ok. I started working and that is going good, but I do have pericarditis. It is painful but I am trying to work through it. Thank you for asking. I hope everything is going well...
  16. Thread: New To Site

    by dede96
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    Welcome SwirlyGirly. Like everyone else I am...

    Welcome SwirlyGirly. Like everyone else I am glad you found us again too. This place is like Kansas and there's no place like "home"!
  17. Thread: Hi All

    by dede96
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    Welcome Jasmine393, you've come to the right...

    Welcome Jasmine393, you've come to the right place! I'm sorry that you are so alone. There are so many people out there that just don't "get it" but you will not find that here. We are all here...
  18. Thread: Hey All

    by dede96
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    Welcome BeBe, as you have already heard this is a...

    Welcome BeBe, as you have already heard this is a wonderful place to be. Unfortunately we all have our emotional demons associated with this disease, but everyone here is very supportive and has a...
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    I am so glad to find everyone again!! It's been...

    I am so glad to find everyone again!! It's been crazy, and I had no one to vent to. My dad had to have quad bypass, I have pericarditis and I passed a kidney stone. Other than that not much going...
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    Hi jbr. welcome. I am new here also but a long...

    Hi jbr. welcome. I am new here also but a long time sufferer. I am so glad they caught it and got you on the right track now. You are very young and by reading the posts here you have found the...
  21. Kasey, Sorry to hear about your IBS problems....

    Kasey, Sorry to hear about your IBS problems. Being a sufferer of crohn's along with lupus I understand your agony. Hopefully the meds they put you on help, but unfortunately when you're flaring...
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    Thank you everyone for your support and kindness....

    Thank you everyone for your support and kindness. SITC- I am currently on Plaq & methotrexate for my lupus, and a host of others for
    all my other great diseases and or ailments! :roll:
  23. Thread: Prayers please

    by dede96
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    Jesseyleigh, I am new here but just read your...

    Jesseyleigh, I am new here but just read your post. GOOD LUCK!! I actually have an interview on Monday. I am going to try and go back to work as a nurse for a private practice. Our insurance ran...
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    This is my story

    Hello, my name is Dede and I was finally diagnosed with Lupus in 2006. I've had psoriasis since I was 18. I started getting sick in 1997. First I came down with pancreatitis. I am not a drinker...
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