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    eyes/Neuro-opthamologist

    Can anyone PLEASE tell me some visual disturbances and sysmptoms that you have or have had. Preferrably in the beginning stages. I am so scared right now and I need someone to talk to. I am not yet...
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    THANKS!

    OH YEAH BY THE WAY THANX FOR YOUR CONCERNS AND RESPONSES
    :wink:
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    WELL THE THING IS I AM BEING MONITORED FOR...

    WELL THE THING IS I AM BEING MONITORED FOR POSSIBLE LUPUS AND I AM NOT ON ANY MEDICATIONS AS OF YET. I HAVE A POSITIVE ANA AND MY C3 AND C4 COMPLEMENTS FLUCTUATE. LAST TIME I WENT THEY WERE NORMAL...
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    Severely dry lips

    About 2 months ago my lips started becoming extremely dry, like never before. I am getting to the point where they are cracking, burning and bright red. They are even swollen. What is up with this?...
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    Thanks Jody, I will read up on it! I am soo...

    Thanks Jody,

    I will read up on it! I am soo nervous about all of this and my rheumatologist wants to monitor me for the next year and see what is going on...she can't 'Diagnose' me as of yet. The...
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    Any people here in their 20's and 30's??

    Just wanted to know if anyone around my age is affected with this. I go to the Rheumy and everyone stares at me b/c I look so young. Or maybe I am paranoid!!?? Probably the latter. I don't know. Most...
  7. Thread: Mississippi ???

    by tbird
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    wow that's cool. What part of MS did you live?

    wow that's cool. What part of MS did you live?
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    hey

    Hey Tina,
    I am new here to. I have had the same problem for about 2 years and I have been to my opthamologist 3x, my eyes are fine...I believe it is totally a neurological thing. BUT I don't know...
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    thanx

    Thank you all, I will definitely let you know about my dr appt. I am so glad after all these years to finally be pointed in some direction as to what has been going on with me for the past few years....
  10. Thread: Mississippi ???

    by tbird
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    Mississippi ???

    :? Anyone here from Mississippi?
  11. Thread: hi there

    by tbird
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    Welcome

    Hi Shea

    I am new here also and everyone is really nice. I hope you find a great Rheumy up there. Take Care 8)
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    Thanks guys! I am just a basketcase these...

    Thanks guys!

    I am just a basketcase these days, I can't think straight. I just feel ALONE ya know?! But ya'll are really helping me understnad things a little better. I go to my Rheumy next Wed....
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    Really! Wow that is strange to have a syndrome...

    Really! Wow that is strange to have a syndrome with that name!!!
    I am feeling sick today with a strange headache with these sensations. I am also getting chills. I have been for the past 2 weeks. Is...
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    What is Lupus headache?

    Can anyone describe, sorry so many questions...this is all soo new to me :o

    Ashley
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    I also feel like I have this pulling in my head???

    I also feel like I have this pulling in my head???
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    yes!yes!

    Angela,

    Yes that is excatly what it feels like. What is Neuropathy?

    Thanks for commenting :)
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    Weird Sensations in head

    Does anyone get these sensations in your head like a sizzling at the crown of your head or just a weird funny, feeling? I can't hardly explain it really... anyhow, when this happens my body feels...
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    wow

    Saysusie

    That really hits home! I have tears in my eyes. :cry:

    THANKS
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    C3 and C4 proteins

    Have any of you been told your C3 and C4 proteins in your blood were below normal? What can this indicate? I have read about it and it is associated w/ Lupus and other Autoimmune disorders...I guess...
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    Is your life cut short?

    I don't want to die young. What is the life span of this disease???
    Really stressed :cry:
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    thanks

    Thanks Saysusie!
    I appreciate your input. I am going to a vertigo specialist soon, my neuro says he's the best! So we will see!!!!

    TTYL
    ASh
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    Potassium

    Hope today is finding ya'll well

    Well my blood work came back, my potassium is back to normal for now. I am going to continue to take my supplement for that. My ANA is higher than last time though...
  23. Thread: ANA results

    by tbird
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    symptom?

    Is shortness of breath a Lupus symptom? Forgive me if I am ignorant, just new and not sure of alot of things. Still learning... :wink:

    Thanks!
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    I get it too

    My hands all the way up to to my forearms I get the tingling sensations and numbness. I can deal with it fine I guess. I wish we could all get together somewhere - which I know is impossible- and...
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    Jill, Hi I am Ashley a newbie, I have this...

    Jill,

    Hi I am Ashley a newbie, I have this same problem about once every 2 months my palms of my hands start to itch and then my ring and middle finger itch like u wouldn't believe and it turns...
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