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  1. Thread: Celcept

    by Abbyrition
    Replies
    11
    Views
    814

    I never had nightmares on cellcept. In fact, the...

    I never had nightmares on cellcept. In fact, the cellcept is one that I don't notice any side effects from... Except feeling better.
    I did have horrible problems with amitriptyline & sleep. I...
  2. Thread: Celcept

    by Abbyrition
    Replies
    11
    Views
    814

    Hi Jaynie. I had slight anemia before I was...

    Hi Jaynie. I had slight anemia before I was diagnosed with Lupus. The docs always want me to take iron pills, but that messes up my intestines so I'd rather be tired from the anemia than in that kind...
  3. Replies
    4
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    313

    I know your pain, I'm there... Fighting against...

    I know your pain, I'm there... Fighting against my own pride and expectations. I fought to stay working and ended up having to take periods of Short Term Disability during the flairs. Then they...
  4. Replies
    8
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    477

    I've always had dry skin. I could write or draw...

    I've always had dry skin. I could write or draw in my ashie-ness as a parlor trick when I was young. I detest the greasy feeling of lotions & even sunscreen... It's just not natural for me. I use...
  5. Replies
    0
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    150

    Medrol or Hydrocodone?

    My question is: It appears I get similar relief regarding joint pain from the Medrol as I do from hydrocodone. I get negative side effects from the Medrol, and none from hydrocodone. Which is the...
  6. Replies
    4
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    237

    Thinking of you & hoping the stuggles get easier....

    Thinking of you & hoping the stuggles get easier.

    I often find the struggles are always the same, it's the way we deal with them that puts us in a better position to cope with struggling. Talk...
  7. Replies
    7
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    295

    I'm glad Steve.b is passing out hugs! I know I...

    I'm glad Steve.b is passing out hugs! I know I could often use a few when trying to figure out the medicine questions myself...
    I have SLE Lupus and Sjogrens. Right now I'm only on Cellcept and...
  8. Like colorsue I also flush. Mine happens when...

    Like colorsue I also flush. Mine happens when I've exerted myself, or am in the heat or sun for any amount of time. It gets quite embarrassing at times.
    As for temperature regulation while at work:...
  9. Replies
    3
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    334

    Oh goodness, I'm sorry you've had this type of...

    Oh goodness, I'm sorry you've had this type of reaction to a medicine that has worked so well for me. I knew the risks, and was hesitant on taking an Amphetamine.
    I stopped it when I was cleared to...
  10. Thread: Lupus meds

    by Abbyrition
    Replies
    2
    Views
    179

    I've recently been advised by my doc to stop MTX...

    I've recently been advised by my doc to stop MTX due to hair loss (we tried just lowering the dose). My hair is colored and dyed, and I haven't noticed any differences on MTX as far as color or...
  11. Replies
    8
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    477

    I had an allergic reaction to Plaquinil (the...

    I had an allergic reaction to Plaquinil (the generic) exactly 3 weeks after I started taking it. It was beginning to work and I was seeing improvements. I broke out from armpits to groin with red...
  12. Replies
    12
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    758

    I'm so there with you about uninformed doctors....

    I'm so there with you about uninformed doctors. My primary told me I just need to lose weight before my diagnosis. I wanted to scream back at him, " Yea because all fat people have these problems!" I...
  13. Replies
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    600

    I'm a constant over-thinker... It makes multiple...

    I'm a constant over-thinker... It makes multiple choice tests a nightmare...
  14. Replies
    10
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    600

    Funny enough there is additional strain on your...

    Funny enough there is additional strain on your heart when you gain weight as well... I think you have to be careful to make sure you know the risks of every medicine we are considering taking. But...
  15. Hi Debbie, I know we've posted a couple times...

    Hi Debbie,

    I know we've posted a couple times back amd forth. Recentley I was told to stop my MTX as well, as well as the steroids. The MTX was because my hair was falling out by the handful...
  16. Replies
    4
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    724

    Sticky: HI Rob, Is there an update on this? I see your...

    HI Rob,

    Is there an update on this? I see your notice is from a year ago. Has this issue been tabled as unattainable? Is there some sort of ETA? As a newer member I'd like to feel a part of the...
  17. Replies
    3
    Views
    354

    Two of the best parts of my experience with my...

    Two of the best parts of my experience with my support system was that I waited to tell people about Lupus until I had more of a handle on my diagnosis, and what that meant to me. I needed to do my...
  18. Replies
    10
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    600

    The first month I was diagnosed I was started on...

    The first month I was diagnosed I was started on Steroids. My hunger was insatiatable. I'm already overweight as well (I'd love to lose 40 lbs). At my 2nd month appointment I let him know my major...
  19. I'm always happy to share the whine (passes...

    I'm always happy to share the whine (passes bottle to heather123) I like Havarti, but funny enough I don't actually drink wine :)
    I did speak with my therapist, and just as I suspected, the only...
  20. Anyone got any cheese to go with my whine?

    I'm not doing so great, and I'm not sure if I'm looking for uplifting, or misery loves company types.

    I do know I just want to cry the hurt away without the looks of crazy I get from everyone in...
  21. Replies
    17
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    591

    I'm also a CoH child of hoarding. I can't do...

    I'm also a CoH child of hoarding. I can't do minimalism, and I have hoarding tendencies. My wonderful minimalist OCD partner keeps me in line most of the time. And it certainly does make things...
  22. Replies
    5
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    303

    I've been thinking about your concern with...

    I've been thinking about your concern with headaches, but also with issues of getting to the doctor.

    I have a few questions if you don't mind...

    First, you said nothing you've tried works,...
  23. I've seen on the threads that they work great for...

    I've seen on the threads that they work great for some, and not for others. I was prescribed Tramadol specifically because it wasn't a controlled substance, it can be addictive though (from what I've...
  24. Replies
    5
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    303

    I don't get headaches like you describe, but I...

    I don't get headaches like you describe, but I just wanted to stop in and send you well wishes.
  25. I hope your appointment outcome gave you some...

    I hope your appointment outcome gave you some relief!
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