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Type: Posts; User: purple_butterfly

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    Hi Sulie! Welcome to the group. I am sorry you...

    Hi Sulie!
    Welcome to the group. I am sorry you have days where you hurt so bad. It seems to be a common thing. Good days and bad days. Our god days are bad days for any other human! How long have...
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    Hi Rob & Marla; First, let me say Thank You!!...

    Hi Rob & Marla;
    First, let me say Thank You!! Thank you for responding to me and confirming that I am not slowly losing my mind. I feel like I am most of the time lately. The recent rheumy has me...
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    Dear Rob; Thank you so much for your response. I...

    Dear Rob;
    Thank you so much for your response. I am sorry for your diagnosis, but it seems that you have learned to cope with it. As you said, you have a clear cut case of Lupus. I can't believe...
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    back and ready

    Hi Group;
    I have used this forum in the past, but lost my way for a while. I am more confused than ever now.
    I started having my first symptoms in 2000, shortly after the birth of my second...
  5. Hello Mckinney and Welcome

    So much stress for a young mother and wife. I am so very sorry that you are going through this but know that you are not alone. We are here for you to sound off any time you need.
    My name is Kim. I...
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    Hi Crys2 and welcome

    First, let me welcome you and assure you that you have found a wonderful group of people who are caring, knowledgeable and warm. Though we all have different involvement and different symptoms, we...
  7. Ana

    Welcome to the group. It sounds from you description you have Lupus. I am not a physician, but I have been educating myself on Lupus.
    My name is Kim. I was diagnosed 5 years ago after suffering from...
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    I have the hot flashes as well. My docs have...

    I have the hot flashes as well. My docs have chalked it up to the massive edema I have but I have noticed that my periods are different now as well, lasting much longer than before and much heavier. ...
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    I have been reading something about "lupus fog"....

    I have been reading something about "lupus fog". This is the confusion and disorientation that goes with lupus.
    From a nursing standpoint, a drop in your sugar could cause these symptoms. Make sure...
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    I am so glad that you had a wonderful time on...

    I am so glad that you had a wonderful time on vacation and that you were able to enjoy time with your family. I am leaving July 6th and am definately going to get some Nutrogena spf 100 for the...
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    Hi Jen Sorry for your diagnosis, but you have...

    Hi Jen
    Sorry for your diagnosis, but you have found a wonderful site here full of friends that understand. I have a friend with discoid Lupus and she is in complete denial. She refuses to go to...
  12. Torente; Wlecome. I am sorry for what you are...

    Torente;
    Wlecome. I am sorry for what you are going through. You have the right to obtain a second opinion, and in your case, it definately sounds like you need one!!
    Yes, ANA may be positive...
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    Hi Annie; Welcome to the group. SLE diagnosis...

    Hi Annie;
    Welcome to the group. SLE diagnosis takes a long time in most instances. It took a long time for my diagnosis as well. I am glad you found this support group. Everyone here is friendly,...
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    Welcome lovemygirls2!!

    I agree with everyone here. If you are physically able to go on vacation, go for it!! Just protect yourself as much as possible. Find a shady place to sit and relax, lots of sunscreen, wide brimmed...
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    Welcome Carrie;

    First of all, Plaquenil can lead to retinal damage, so it is very important to have your eyes checked every 6 months and have a visual field scan done. Also, having Sjogren's syndrome causes...
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    update

    Hello to all of my Lupus family. I wanted to share an update with you. I have finally found a rheumy that was able to answer my questions and give me some direction. He does not have the greatest...
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    I was wondering the same thing...and am content...

    I was wondering the same thing...and am content in staying a "newbie" for now. I still have so much to learn.
    I have another question...how do you get those cool pics next to your name. I found one...
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    Wlcome Tina

    You are not alone in your journey. We are here for you and we understand.
    I know how you feel. When I was diagnosed with Lupus, my husband did not know what to do. He did not want to talk about it...
  19. Hi Ginlyn and welcome!!

    This is certainly a difficult disease to diagnose and manage. Just when you think you have the symptoms on the run, another flare.
    A good rheumy is so hard to find. I am still on the hunt for one...
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    Hi Sandy, and welcome!!

    It is nice to meet you. It sounds from your thread that you have a lot of the symptoms of Lupus. The joint pain, the pain when breathing (pleurisy-which is common in Lupus), the severe exhaustion are...
  21. Hi Kaylee and welcome; You have found a great...

    Hi Kaylee and welcome;
    You have found a great support group in all of the people here. Everyone is kind and completely understanding of what you are going through. No one will criticize or doubt...
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    diet soda

    Hi Mountaindreamer;
    I was told by two different rheumy's that Lupus does not affect the nervouse system. The only reasoning they can give me for the numbness and tingling in my extremities and...
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    Thanks for all of the encouraging words and...

    Thanks for all of the encouraging words and thoughts. I met with the friend of a friend and we have so much in common. It turns out she has a son the same age as my oldest and they were in scouts...
  24. Sticky: I had no idea sulfa drugs could cause a flare....

    I had no idea sulfa drugs could cause a flare. Thinking back, I have had bad reactions to sulfa each time I have been on it. I just list this as an allergy now. Thanks for the info.
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    I know how you feel. It is hard to be happy and...

    I know how you feel. It is hard to be happy and not to yell alot when you feel so lousy. I try to keep my chin up and smile through the pain because it scares the hell out of my kids to see me this...
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