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    Hi Everyone, Well, I finally got some answers...

    Hi Everyone,
    Well, I finally got some answers today. My lungs are fine *yay* and my heart *yay* is also. The difficulty breathing is stemming from inflammation in my chest, and possibly some...
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    Thank you everyone for your feedback! I spoke to...

    Thank you everyone for your feedback!
    I spoke to my doctor today and I'll be seeing her on Wednesday, and I'm meeting with my cardiologist tomorrow (an appointment that has been booked for awhile...
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    Difficulty breathing?

    Hi Everyone,
    For the past few weeks, I've noticed that I go through periods where it feels like I have an elephant sitting on my chest and there is a general tightness in my chest. It's not...
  4. Thread: Toe weirdness?

    by Kimmy
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    Hi jaideni, It didn't have any blood or anything...

    Hi jaideni,
    It didn't have any blood or anything behind it last time, it seems to be under the nail. Hmmm...Thanks for telling me your story though. I'll keep it in mind for this time.
    Be well,...
  5. Thread: Toe weirdness?

    by Kimmy
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    767

    Toe weirdness?

    Hi everyone,
    I'm hoping that someone can give me some insight on a possibly new symptom. When I was first diagnosed last April, I had a weird discoloration on my left big toe. It was purple/black...
  6. Thread: as you get older

    by Kimmy
    Replies
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    3,791

    Hi Kathy, When I was first diagnosed, I had to...

    Hi Kathy,
    When I was first diagnosed, I had to receive 5 injections over 5 days. During that time, my boyfriend (whom I live with) came with me and got trained to give me my shots, and he is the one...
  7. Thread: as you get older

    by Kimmy
    Replies
    29
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    3,791

    Hi Kathy, I also have PA and have hypothesized...

    Hi Kathy,
    I also have PA and have hypothesized the same thing about Lupus attacking the parietal cells. I, however, feel really sick for a few days after my shot. Nauseous, heart palpitations, the...
  8. Thread: Tongue Sores?

    by Kimmy
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    1,423

    Thanks SITC! I'll keep my eyes peeled for the...

    Thanks SITC!
    I'll keep my eyes peeled for the stuff!
    Kimmy
  9. Thread: Tongue Sores?

    by Kimmy
    Replies
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    1,423

    Hi Everyone, Thanks a lot for your feedback. I...

    Hi Everyone,
    Thanks a lot for your feedback. I saw my rheumy and it turns out that the sores were lupus related, even though it grew so fast. I spoke to an ENT recently about what to do for the...
  10. Thread: Tongue Sores?

    by Kimmy
    Replies
    7
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    1,423

    Tongue Sores?

    Hi Everyone,
    I'm happy to see the site is up and running again. I have a question. For the past several days I have noticed that I've had a small red mark on my tongue, and when I looked at it again...
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    Hi Lauri, I'm so sorry to hear that you are...

    Hi Lauri,
    I'm so sorry to hear that you are feeling so bad. I can't offer any advice, but I'm sure someone will be along shortly. I just wanted to send you some hugs and I hope you are feeling...
  12. Thread: Nausea

    by Kimmy
    Replies
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    1,607

    LOL! Thanks, Pearl! I appreciate the advice, and...

    LOL!
    Thanks, Pearl! I appreciate the advice, and the humor. Your post put a big smile on my face! :)
    Hope you are well!
    Kimmy
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    Hi Lauri, I'm sending you lots of hugs. I'm...

    Hi Lauri,
    I'm sending you lots of hugs. I'm sorry to hear that you haven't been feeling well. The best advice I could give you is to call your doctor. It's better to be on the safe side since with...
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    Hi Steve, I always get always both mouth and...

    Hi Steve,
    I always get always both mouth and nasal. For me, the nasal sores are usually painless, but sometimes I get a tight feeling in my nose and I get a lot of nosebleeds. The ENT doctor told...
  15. Thread: Newbie

    by Kimmy
    Replies
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    1,830

    Hi Lauri, Thanks for the information on Elavil....

    Hi Lauri,
    Thanks for the information on Elavil. I'm on day 2 so can't tell for sure whether or not it is working, though I am sleeping better at night also! :)
    I haven't had any pain in my neck at...
  16. Thread: Newbie

    by Kimmy
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    1,830

    Hi Saysusie, Thanks a lot for all this...

    Hi Saysusie,
    Thanks a lot for all this information, I really appreciate it!
    I hope you are well,
    Kimmy
  17. Thread: Newbie

    by Kimmy
    Replies
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    1,830

    I finally went to the Lupus clinic today and saw...

    I finally went to the Lupus clinic today and saw one of my favorite doctors. She doesn't think that the weird arm numbness and pressure is from the prednisone, but has no idea what could be causing...
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    Hi Cheryl, I'm sending you hugs. I'm sorry you...

    Hi Cheryl,
    I'm sending you hugs. I'm sorry you are having such a rough day. I also have terrible jaw pain and I know how horrible it can be! I hope tomorrow will be better for you!
    Hugs,
    Kimmy
  19. Thread: Newbie

    by Kimmy
    Replies
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    1,830

    Hi Saysusie and Oluwa, Thank you for the...

    Hi Saysusie and Oluwa,
    Thank you for the insight. I believed that I was possibly starting a new "flare" but I guess it could be the same one which is just uncontrolled as of now. I will definitely...
  20. Thread: Nausea

    by Kimmy
    Replies
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    1,607

    Hi Kathy, Thank you so much! I will definitely...

    Hi Kathy,
    Thank you so much! I will definitely mention it to my doctor!
    Be well,
    Kimmy
  21. Thread: Nausea

    by Kimmy
    Replies
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    1,607

    Hi Kathy, Yes, I am on Plaquenil. I was not...

    Hi Kathy,
    Yes, I am on Plaquenil. I was not aware that this was a side effect of the drug. I mentioned the nausea to my doctor before, and she wanted to do an ultrasound of my spleen and liver to...
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    Lauri, I'm so sorry to hear about that. There is...

    Lauri,
    I'm so sorry to hear about that. There is nothing worse than being in pain and not having something to stop it.
    I'm glad you finally got your meds and I hope you feel better very soon!...
  23. Thread: Newbie

    by Kimmy
    Replies
    14
    Views
    1,830

    Thank you all for your kind words and advice!...

    Thank you all for your kind words and advice!
    Last week, I saw the doctor about my arm and she had attributed it to steroid withdrawal, but said she'd keep an eye out for it. I have been off...
  24. Thread: Digestion Issues

    by Kimmy
    Replies
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    Hi Jax812, I'm sorry to hear that. I have had...

    Hi Jax812,
    I'm sorry to hear that.

    I have had reflux that is lupus related. I have also heard that difficulty swallowing is also part of lupus. Hopefully someone with more experience with this...
  25. Thread: Nausea

    by Kimmy
    Replies
    8
    Views
    1,607

    Nausea

    Hi Everyone,
    I was wondering if anyone has dealt with was seems like "neverending" nausea? I often get it regardless of whether or not I've eaten, what I've eaten, activity level, etc. It comes no...
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