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  1. Replies
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    Hey You; I do hope that you were able to get...

    Hey You;
    I do hope that you were able to get your prescription! I can imagine how frustrating that must be and they don't seem to care because it does not directly affect them! Was reading your...
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    OIC...Please let me know what your doctors think...

    OIC...Please let me know what your doctors think and what can be done. I understand now why you say it is a good thing :-) Best of Luck

    Peace and Blessings
    Namaste
    Saysusie
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    Hi Doggone Crazy (love that)! I am just going...

    Hi Doggone Crazy (love that)!
    I am just going to say "Ditto" to everything that Steve said and add that we are here to help you in any way that we can and as much as we can for as long as you need...
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    Hello and Welcome to WHL :-) I am, personally,...

    Hello and Welcome to WHL :-)
    I am, personally, a strong advocate of learning as much as you can about Lupus, its medications and their side-effects, its treatments, and how it affects you...
  5. Thread: Hello

    by Saysusie
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    Hello and Welcome Imlupie; While I am sorry...

    Hello and Welcome Imlupie;
    While I am sorry that you have this disease, I am glad that you found us and that you decided to join us. Many of us have discovered that we've had this disease for...
  6. Hi Cathyinme; I, like you and many others...

    Hi Cathyinme;
    I, like you and many others here, also suffer from numerous illnesses. I have Lupus, Fibromyalgia, Raynaud's, TMJ, and a few others. So, as Steve mentioned, you are not alone. ...
  7. Hi Heron; The heat here in the High Desert is...

    Hi Heron;
    The heat here in the High Desert is a very dry heat. We have almost zero humidity and sometimes I wish that we did have some humidity as my hair seems always parched and my skin needs...
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    Hi Heron; I'm glad that you did a bit of...

    Hi Heron;
    I'm glad that you did a bit of research as I was about to tell you that Lupus can affect your estrogen levels. Not to mention that the disease itself does cause a bit of depression due...
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    Sticky: Ok...thank you sooooo much for my laugh of the...

    Ok...thank you sooooo much for my laugh of the day!! That was hilarious!!!!

    Always
    Saysusie
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    Hi Sara; I do not have Tumid Lupus either. ...

    Hi Sara;
    I do not have Tumid Lupus either. Hopefully someone here who does will be along shortly to share with you. I do not think that you will have to give up running, but I am sure that you...
  11. Thread: Introduction

    by Saysusie
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    Hello Chhaya and welcome to our WHL family! It...

    Hello Chhaya and welcome to our WHL family! It is wonderful that you have a supportive family as you try to manage this disease. I am so glad that you found us and we are here to help you in any...
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    Hello and Welcome Mel2266; Thank you for your...

    Hello and Welcome Mel2266;
    Thank you for your post, I am glad that you had two very successful pregnancies..congratulations! Please tell us just a bit more about yourself. I want to welcome you...
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    Oh Nonna; I am so sorry to hear about the loss...

    Oh Nonna;
    I am so sorry to hear about the loss of your mother. You are so right, stress is one of our worst enemies and it can be devastating to our health. I'm sorry that you are not getting...
  14. Hi Heron; I live in the High Desert in...

    Hi Heron;
    I live in the High Desert in Southern California. We reach temperatures as high as 115 in the summer. I have a Coolibar cover that is extremely lightweight. I wear it over almost...
  15. Hi Heron; Thank you for clearing that up for...

    Hi Heron;
    Thank you for clearing that up for me because, as you saw, I went off on one of my doctor rants (lmbo). I am glad to hear that the Plaquenil is helping you. Most people like Plaquenil...
  16. Thread: hello

    by Saysusie
    Replies
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    303

    Hello Goldenwings: Well, as usual, I am the...

    Hello Goldenwings:
    Well, as usual, I am the OLDEST person in the conversation (lol). I was diagnosed in 1985 and so I've been living with this disease for a good number of years. However, like...
  17. Thread: new member

    by Saysusie
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    Hello Meme; Welcome to our WHL family. Yes,...

    Hello Meme;
    Welcome to our WHL family. Yes, we do indeed "get it" and we completely understand. Please make yourself at home here. I always suggest that new members read through the "sticky"...
  18. Thread: hello toall

    by Saysusie
    Replies
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    Hello and Welcome Murphysmh; I am glad that...

    Hello and Welcome Murphysmh;
    I am glad that you found us and decided to join us. You are correct, this is a place where people understand, where they care, and where they offer support. Please...
  19. Thread: Disability

    by Saysusie
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    I am happy to hear that your company has a good...

    I am happy to hear that your company has a good program available to you. Please do take advantage of it. One of the worst things that we do to ourselves is to try to continue to forge on, when our...
  20. Thread: Cellcept

    by Saysusie
    Replies
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    505

    To some extent, we all fear getting some type of...

    To some extent, we all fear getting some type of infection. Lupus is an over-active immune system, immunosuppressants slow down that over activity and, thusly, makes a more prone to infection and/or...
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    Hello Orange; Welcome to our family! I know...

    Hello Orange;
    Welcome to our family! I know nothing about rheumatologists or support groups in Australia. I'm sure that Steve will be back to help you shortly.
    Doctors are of a mixed opinion...
  22. With reference to your sunscreen, I would say...

    With reference to your sunscreen, I would say that broad spectrum is the best to use. I understand that it is very hot (and muggy) in the South and so I know you are loathe to have a lot of clothing...
  23. Hi sweetie; I'm glad to hear from you. First,...

    Hi sweetie;
    I'm glad to hear from you. First, let me express my disdain for doctors who dismiss us or try to make us feel stupid. Cutaneous Lupus is any form of Lupus that primarily affects the...
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    Hi Kim; Welcome back to the family. It's been...

    Hi Kim;
    Welcome back to the family. It's been pretty quiet here lately, but we are still opening our arms to anyone who needs us.
    I am sorry to hear about your Mother's rejection of your...
  25. Thread: Birdmama

    by Saysusie
    Replies
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    You are most welcome! Have fun browsing our...

    You are most welcome! Have fun browsing our site. If you have any difficulties, let either myself or Steve know and we will do all that we can to help!

    Peace and Blessings
    Namaste
    Saysusie
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