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Type: Posts; User: Katalanta

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  1. Replies
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    CONGRATS!

    Congrats Butterfly!

    No words of wisdom to share, but genuinely happy for you!!!!
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    Not Sure

    Well, I'm not sure if this is good, bad or indifferent.

    My rheumy is very concerned about what I'm eating. I've been a strict vegetarian for 10 years - now the doc says stop it. He wants me...
  3. Second That

    I'm with SoleSinger on the sugar substitutes. Never have used aspartame products much. Tried the sugar substitutes, didn't like the taste, decided I was better off with real sugar. About 10 years...
  4. Thread: Thank You!

    by Katalanta
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    796

    Thank You!

    I'm just going to take a minute and say thank you to everybody on the boards. Being able to come here is the only thing saving my sanity right now. There are so many little things that don't seem...
  5. Knock Knock

    I'd be awfully interested in hearing about the herbal stuff, too. If you don't mind too much, Devotedmom (and Andy!).
  6. Hmmmm

    Not to jump to any conclusions, but those old snake oil alarm bells are going off in my head again...

    Would absolutely LOVE to be proved wrong.
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    Agreement

    Hi SaySusie,

    That's pretty much what I found. Dozens of websites saying this therapy will cure everything from colds to cancer - and not one real study that I can track. That's got all the snake...
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    hydrogen peroxide?

    Ok, does anybody know about using hydrogen peroxide to treat lupus? I looked it up - and it looks kind of like snake oil to me, but I have this friend who's pushing me to try it.
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    Has Anybody Read This One?

    Has anybody read this one?

    Lupus
    Alternative Therapies That Work
    By (author) Sharon Moore
  10. I love science!

    I love the science! MORE MORE MORE!

    (But after reading the last very thorough and well-expressed post, I feel unaccountably lazy for not doing the research myself.)

    Well, now that we've...
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    Me Neither

    I am, as far as I know, alone in the auto-immune shadow in my family. Sort of.

    I have one brother I kind of wonder about - but he's gone to doctor after doctor and no one's ever told him he has...
  12. Thread: Pets?

    by Katalanta
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    2,460

    Back!

    Hi All!

    God, how we love our fuzzy people!

    I've been out of the loop for a bit and tonight I FINALLY have the time, energy and internet access to sit down and actually read more than one post! ...
  13. Maybe

    I've gotten that email. I think it's kind of like earthquakes - we've always had lots of them, but until somebody started measuring them effectively, nobody knew how many of the darned things there...
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    There with ya

    I haven't been officially diagnosed for very long - but I've definitely been doing the remission-relapse tango for a while.

    Vent away whenever you need to or just want to. I'm sure everybody here...
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    Comes and Goes

    Hi Momof1,

    I had the numbness and tongue-swelling thing before I went on any meds. Doesn't bleed, though. For me, it tends to come and go. The longest it's lasted at a single stretch was a...
  16. Thread: Climate?

    by Katalanta
    Replies
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    2,261

    SCIENCE!!!!

    I LOVE the science lesson! I love all science lessons! Bring 'em on!!!!
  17. Remission?

    Hey, can I chime in here? What the heck do they call remission, anyway?

    When I walked into the doc's office with the full, classic butterfly rash he said, "You can't have that, your last numbers...
  18. Thread: Climate?

    by Katalanta
    Replies
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    2,261

    Colorado, huh? My sister lived there for years,...

    Colorado, huh? My sister lived there for years, and I drove through once or twice. I love mountains and it's gorgeous - but I don't think I want to go that far East. I really do love the edge of...
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    Well, lack of energy and presence of pain can...

    Well, lack of energy and presence of pain can take up a lot of your time.

    If you were to quit working outside the house, would you be able to to do something in the house that increases your...
  20. Thread: Climate?

    by Katalanta
    Replies
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    2,261

    Climate?

    Hey All,

    I live in L.A. - and due to the rash and the ever-present sunshine I was thinking of moving elsewhere. Are there any places where a person with lupus might feel better? Or are...
  21. Thread: Rash

    by Katalanta
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    1,670

    Not Yet

    Had to go back to the doc for a shot of steroids. BAH!

    He asked me to hold off on changing makeup, etc. to see if the evil cleared just from that. If it's not starting to improve by Saturday,...
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    What's Your Weirdest Symptom?

    What's Your Weirdest Symptom?

    Mine is my tongue. It itches and swells sometimes. Ick.
  23. Thread: Music

    by Katalanta
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    Dinah Washington -...

    Dinah Washington - Ooooooooooooooooooohhhhhhhhhhhhhhhhh
  24. Oddly enough

    Hey Sole!

    It's the funniest thing - I haven't actually given up music, I've just stopped playing piano. I've kind of switched instruments to the one I am absolutely worst at. Sometimes I'll be...
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    RL

    OH! And Awi...I think RL means Real Life. On other chats I've seen the term 3D used to communicate the same idea - a person who you see in the real world as opposed to just chat with online.
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