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Type: Posts; User: ButterflyRN

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    Welcome katwoman! Sorry for your struggles. We...

    Welcome katwoman! Sorry for your struggles. We all can relate. I've had lupus for 23 years now, diagnosed as a child. I've always had SLE. It is quite attracted to snacking on my kidneys with my...
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    I think taking all that you have available to you...

    I think taking all that you have available to you is great. I always take a notepad to have a list of discussion points and room for notes from their answers. I think first appointments are the...
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    It depends on the person. It is thought Estrogen...

    It depends on the person. It is thought Estrogen plays a role in lupus. I personally have no issues but I think there are some out there that do!
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    Hi Luci! welcome! And happy nurses week from...

    Hi Luci!

    welcome! And happy nurses week from one nurse to another!!!
    We are here for you always for that extra support you need! Having friends who know exactly what you are going through is...
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    Hi Ms K, welcome to the club! Sorry to hear you...

    Hi Ms K,
    welcome to the club! Sorry to hear you are having many issues! I hope things work out soon and you can get back to your rheumatologist! Do you have any free clinics in the area? If...
  6. Thread: Hi All!

    by ButterflyRN
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    Hi All!

    Hi everyone! Sorry I've been MIA! In another flare and trying to deal with that and the normal everyday routine of things is exhausting! My nephritis is pushing me to the limits right now! I am...
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    I was diagnosed when I was 11. My symptoms...

    I was diagnosed when I was 11. My symptoms started at age 10. They only genetic components I had at diagnosis was my grandfather had RA, my cousin had ulcerative colitis and my aunt has...
  8. So glad despite all the surgeries and frustration...

    So glad despite all the surgeries and frustration that you are doing so well! Keep fighting! God takes good care of us even though sometimes we think we are lost. This sheep of his right now feels...
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    Really Ashley! How time has flown! Where are...

    Really Ashley! How time has flown! Where are you attending? And are you still seeing Dr. Ellis' group while in college? They took care of me until I graduated! And what are you majoring in? Well...
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    Hi Debbie! Funny how you are talking about...

    Hi Debbie! Funny how you are talking about moving back to Texas. My husband and I are considering a move to San Antonio for my health. The cold kills me and seems to start a flare every 2 years as...
  11. Thread: Any advice

    by ButterflyRN
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    Did you ever find out? My thought was the start...

    Did you ever find out? My thought was the start of hand-foot-mouth disease which is common amount children
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    Hope it went well! I'm 34 and still dragging my...

    Hope it went well! I'm 34 and still dragging my feet...they have to come out! Hugs Ashley hope all went well!
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    MzKellyJane welcome to the club! Unfortunately...

    MzKellyJane welcome to the club! Unfortunately lupus and frustration go hand and hand. Case and point as I've been awake for 3.5 hours in the middle of the night because the lupus is causing me...
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    So glad the cancer did not spread to the nodes! ...

    So glad the cancer did not spread to the nodes! Hugs and prayers for a speedy recovery!
  15. Oh and we are well educated on the spoon theory :)

    Oh and we are well educated on the spoon theory :)
  16. Thanks everyone! We are discussing me getting...

    Thanks everyone! We are discussing me getting more involved with the support group as the one in my area is poorly led and I personally work with the woman who so called is to run it. I'm think of...
  17. Thread: Spazzzzz

    by ButterflyRN
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    Ask your doc to check your electrolytes like...

    Ask your doc to check your electrolytes like potassium and magnesium. I had a lot of weakness in my arms after carrying things and now have to take both supplements on a daily basis. If your...
  18. Worst Birthday Ever...thank you lupus!

    So birthdays are to be happy right? Not mine. My loving spouse is at his wits end with the realities my disease brings to the table. Now I first will say he loves me, but of course as I do hates my...
  19. Thread: Sick

    by ButterflyRN
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    I replied to you very long reply and it didn't...

    I replied to you very long reply and it didn't take ! I will post again soon when I have the time! Hope you are having a good day!
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    You and I are very similar in disease history! I...

    You and I are very similar in disease history! I was 11 when diagnosed now 34 and had a period of remission for 9 years now flares every 2 years practically!
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    Don't know but interesting question. Can't wait...

    Don't know but interesting question. Can't wait to hear your doctor's thoughts on that
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    Hi AngieAllen, first welcome! advice ....well...

    Hi AngieAllen,
    first welcome! advice ....well that's an open ended question :)
    living with lupus is a constant daily battle for pretty much all of us. At 11 when diagnosed my symptoms were of less...
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    Xristina62 welcome first! You will find so many...

    Xristina62 welcome first! You will find so many supportive members that know exactly what you are going through! I am so sorry you have to struggle with this like the rest of us! I was diagnosed...
  24. Thread: Body Image

    by ButterflyRN
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    Thanks for your post. I am soon to be 34 and...

    Thanks for your post. I am soon to be 34 and overall happy with myself but get down when I am on the higher does of steroids and get the dreaded moon face. Just doesn't make me feel happy! I have...
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    Talk with your dr. Lupus will not cause you to...

    Talk with your dr. Lupus will not cause you to be more at risk for cancer itself but some of the meds we take especially chemo based drugs and anti-rejection drugs carry a higher risk factor for...
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