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  1. Thread: Lupus migraine

    by skbird
    Replies
    17
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    4,364

    Wow, this has been a lot of great information....

    Wow, this has been a lot of great information. For me, most of the time I respond to the triptans, my best are Frova (long lasting, but takes time to work), Maxalt (quick acting, not long lasting),...
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    That's a good point, Hatlady. I've read enough...

    That's a good point, Hatlady. I've read enough times on the web that you have to be patient with this process and I think that's completely right. Since neither of us got written off (meaning,...
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    Wow, I didn't even get that. I got "well, your...

    Wow, I didn't even get that. I got "well, your labs don't show anything and ANAs don't mean much. You are not having a lupus flare..."

    I have read that some people get diagnosed with MCTD and it...
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    Thanks Hatlady and SaySusie... I get to see my...

    Thanks Hatlady and SaySusie... I get to see my regular doc next week so I'll grill him as much as I can about this whole process... hopefully he'll be helpful.

    Cheers!
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    So I went to my rheumy on Friday and he says I am...

    So I went to my rheumy on Friday and he says I am not having a lupus flare (most of my tests were negative) and right now has nothing to really offer me but wants me back in three months to re-test...
  6. Thread: Lupus migraine

    by skbird
    Replies
    17
    Views
    4,364

    Wow, that's an awesome amount of information!...

    Wow, that's an awesome amount of information! Thanks Saysusie!

    It's hard for me to determine the cause of many of my migraines, I currently have food issues (gluten, nightshades, shellfish,...
  7. Thread: LUPUS SYMPTOMS

    by skbird
    Replies
    4
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    1,745

    Hi! I get that kind of pinkie pain in my fingers...

    Hi! I get that kind of pinkie pain in my fingers and toes, often just one or two or part of one or two at a time. The last week the bottom of my right big toe has been like that, in the pad of it,...
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    Thanks for your response, Hippiemom2. I have been...

    Thanks for your response, Hippiemom2. I have been trying to decide how I feel about all of this. I'm not in bad shape but definitely feel something is going on. I hope that explaining my symptoms...
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    OK, one thing I did find that may indicate...

    OK, one thing I did find that may indicate something, though weakly (my C3 was barely low), is this:

    http://www.lupus.org/education/brochures/labtests.html

    Complement
    Laboratory tests which...
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    Not sure I'll get dx'd with lupus/labs in

    but still not sure what it all means. I was sent off to a rheumatologist after my ANA test came back the first time, 1:320, nucleolar. 5 weeks later I was tested for a lot of things and the only...
  11. Thread: Lupus migraine

    by skbird
    Replies
    17
    Views
    4,364

    Good description - I feel like I know every...

    Good description - I feel like I know every crevice in my brain, too. I had a horrible one last fall, lasted 13 days, when it came on (very fast) it felt like this blood vessel or something behind my...
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    Thank you for the welcome, HatLady! I started...

    Thank you for the welcome, HatLady! I started taking turmeric after I took it in a blend supplement and it lowered my cholesterol 40 points. My doc wanted me on a statin, but after that he changed...
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    Gluten-intolerance, lupus?

    Hi -

    I wanted to introduce myself. I am 34 years old and am in the process of being looked at for lupus. I was diagnosed as non-Celiac gluten-intolerance October 2004, and have been gluten free...
  14. Thread: Lupus migraine

    by skbird
    Replies
    17
    Views
    4,364

    Lupus migraine

    Hello all - I'm new here but have been reading through some of the posts - very informative group!

    I wanted to ask about the lupus migraine. I'm wondering if someone can describe it to me. I get...
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