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Type: Posts; User: nikkirae333

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  1. Thread: Priorities

    by nikkirae333
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    4
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    220

    Thank you everyone for the wonderful responses! ...

    Thank you everyone for the wonderful responses! Your kind and supportive words mean a lot. I think I have been in a bit of a panic lately which isn't helping anything. I haven't even been...
  2. Thread: Priorities

    by nikkirae333
    Replies
    4
    Views
    220

    Priorities

    I have been holding on and holding on until I saw a new Rheumatologist last week. Now I just don't know if I can fake it anymore. I am mentally and physically exhausted. I am a housing services...
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    I finally got into a new Rheumy, he is doing all...

    I finally got into a new Rheumy, he is doing all kinds of blood work. He said he thinks it is "possibly" lupus cerebritis (he said it is also called neuropsychiatric lupus, lupus neurology, and CNS...
  4. Thread: Hello

    by nikkirae333
    Replies
    4
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    318

    Kjell, thank you for you response :) I definitely...

    Kjell, thank you for you response :) I definitely understand the fear of misdiagnosis that's why i want another spinal tap to confirm or rule out autoimmune. The rheumy said that there was no...
  5. Thread: Hello

    by nikkirae333
    Replies
    4
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    318

    Hello

    Well, I guess I went about things wrong the first time I posted. I should have came here to introduce myself but the night I did post, I was so frustrated and disappointed I vented as soon as I...
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    Thank you donnalyn for your response. I am so...

    Thank you donnalyn for your response. I am so glad your new Rheumatologist reported what that other "doctor" did to you, and that you finally got your diagnosis. The night I posted that, I had been...
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    neuropsychiatric lupus

    Hello, this is my first time posting.

    I have numerous CNS symptoms including 4 episodes of numbness (including one confirmed episode of transverse myelitis), migraines with aura only, possible...
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