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  1. Thread: Birdmama

    by Saysusie
    Replies
    3
    Views
    64

    You are most welcome! Have fun browsing our...

    You are most welcome! Have fun browsing our site. If you have any difficulties, let either myself or Steve know and we will do all that we can to help!

    Peace and Blessings
    Namaste
    Saysusie
  2. Thread: hello

    by Saysusie
    Replies
    1
    Views
    51

    Hello and welcome; I know how the pain and...

    Hello and welcome;
    I know how the pain and fatigue can make it difficult to exercise, but -believe it or not- exercising actually helps relieve the pain and fatigue. Perhaps you could just start...
  3. And, if your condition is indeed an auto-immune...

    And, if your condition is indeed an auto-immune disorder, please try to lessen your stress as this will most assuredly worsen your condition. Steve has given you great advice and I cannot add...
  4. Replies
    0
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    41

    To WHL Family - A Lupus Prayer

    Please bless my friends who suffer from Lupus
    And other auto-immune diseases
    May the pain in their joints, muscles, and elsewhere
    cease and disappear

    Grant them the strength to fight
    and to...
  5. Replies
    15
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    335

    Hi Jaynie; I hope that this tweeking of your...

    Hi Jaynie;
    I hope that this tweeking of your meds does help you. I'm glad that your doctors are pro-active on this. Do keep us posted on how you are doing.

    Peace and Blessings
    Namaste...
  6. Thread: Eye issue

    by Saysusie
    Replies
    1
    Views
    35

    Hi Ruziska: First, let me ask if you've...

    Hi Ruziska:
    First, let me ask if you've checked side-effects of your medications? You did not mention what medications you are taking, but I would read the side effects of all of them thoroughly...
  7. Thread: Over It!

    by Saysusie
    Replies
    1
    Views
    36

    Hello Littlelupusgirl2; Welcome to WHL. You...

    Hello Littlelupusgirl2;
    Welcome to WHL. You are not alone, many of us have lived with denial because we did not want to be saddled with a chronic disease. However, our best defense is knowledge,...
  8. Thread: new members

    by Saysusie
    Replies
    2
    Views
    58

    Hello and welcome Lupiegirl67; I am glad that...

    Hello and welcome Lupiegirl67;
    I am glad that you found us and that you decided to join us. Please make yourself at home and cruise around our forum. We are here to help in any way that we can!...
  9. Thread: Birdmama

    by Saysusie
    Replies
    3
    Views
    64

    Hello and Welcome Birdmama; I completely...

    Hello and Welcome Birdmama;
    I completely understand how you are feeling. I would not call "giving in" so much as I'd call it "standing up". Deciding to take medication that will give you relief...
  10. Replies
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    335

    Thank You Jaynie. Please let us know how your...

    Thank You Jaynie. Please let us know how your appointment goes, if your able to discontinue the Mycophenolate or if another treatment is prescribed. I wish you the very best.

    Peace and Blessings...
  11. My mother uses the cane with the four small legs...

    My mother uses the cane with the four small legs on the bottom and she swears by it. She said that it gives her much more stability, especially on uneven, soft, and even sandy surfaces and she...
  12. Replies
    15
    Views
    335

    Hi Jaynie; I also have Lupus with Fibromyalgia...

    Hi Jaynie;
    I also have Lupus with Fibromyalgia and, like you, my pain is constant - feeling like a bad case of the flu. Along with the aches and sensitive skin and sore muscles, I also feel as if...
  13. Hi; I think that I responded to this earlier. ...

    Hi; I think that I responded to this earlier. Hopefully someone with experience will respond to you!!

    Peace and Blessings
    Namaste
    Saysusie
  14. Thread: I am lost.

    by Saysusie
    Replies
    251
    Views
    31,991

    No to me sweetie, I understand every word that...

    No to me sweetie, I understand every word that you've said and I agree 100%. I am trying, like you, to be present and engaged in each moment and each person. Thank you so much for the reminder of...
  15. You both are right. Steve, one of the...

    You both are right. Steve, one of the frustrating parts about it being misunderstood is the fact that it is an invisible disease. So, it does not get the attention that cancer, cerebral palsy,...
  16. I have never had Herpes, but I've heard that...

    I have never had Herpes, but I've heard that Plaquenil (or quinine drugs) works well for Herpes. I am glad that it is working for you. I wish you the very best.

    Peace and Blessings
    Namaste...
  17. Replies
    2
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    79

    Hello and welcome: Since you are on a regimen...

    Hello and welcome:
    Since you are on a regimen of medications to help get your symptoms under control, there is not much advice that I can give you in that area. I will say that all of us have had...
  18. Replies
    3
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    190

    I, too, hope that you can taper soon. However,...

    I, too, hope that you can taper soon. However, please know that for some, once tapering begins, symptoms re-appear. So, many of us have found that we must remain on a maintenance dose of Prednisone...
  19. Thread: Hello

    by Saysusie
    Replies
    2
    Views
    116

    Hi Iceprincess; Welcome to WHL. I am so sorry...

    Hi Iceprincess;
    Welcome to WHL. I am so sorry to hear that you are dealing with this disease while trying to raise five children. I am very happy to know that your husband is so supportive. ...
  20. Replies
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    148

    Hi Jennijo; While we cannot advocate the use...

    Hi Jennijo;
    While we cannot advocate the use of CBD oils, I will provide you with information that I found:

    Some research has suggested that CBD could be used for treating symptoms of...
  21. Replies
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    534

    AWWWWWW..feel better sweetie!!! Peace and...

    AWWWWWW..feel better sweetie!!!

    Peace and Blessings
    Namaste
    Saysusie
  22. Replies
    3
    Views
    190

    I take it that you are taking Prednisone (or...

    I take it that you are taking Prednisone (or another corticosteroid) for you Lupus. My daughter developed this syndrome with her Prednisone use. Treatments for Cushing syndrome can return your...
  23. Replies
    18
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    534

    Like you..I am a big fan of overcast, rainy days....

    Like you..I am a big fan of overcast, rainy days. I'm sure it's because of what the sun does to us. I think that a lot of public pools are moving away from chlorine and going to saline. I love...
  24. Thread: I am lost.

    by Saysusie
    Replies
    251
    Views
    31,991

    OOOH Oluwa; Your description of your grief and...

    OOOH Oluwa;
    Your description of your grief and how you miss your sister could have been written about me and Lauri. Your relationship with her was a beautiful one, a connection not shared by many...
  25. Replies
    18
    Views
    534

    I'm so glad that you were able to go for a walk...

    I'm so glad that you were able to go for a walk and that you enjoyed it. I find that doing some form of regular exercise gives me more energy and always makes me feel better and, believe it or not,...
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