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    That is very unlikely because my average is 90/60...

    That is very unlikely because my average is 90/60 and I was sleeping. I finally talked to my rheumy and he said for me to just get lots of rest this weekend and drink plenty of fluids. I asked his...
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    I am really getting tired of this

    Soo last night I woke up about 12:30 with horrible back and throat pain. It hurt when I would take in a deep breath or lay down. If I tried to sit down I would start to feel a throbbing all the way...
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    No. I was getting headaches for a while they were...

    No. I was getting headaches for a while they were pretty bad. Felt like my eyes were going to pop out of my head. The headaches only really occurred if I was outside for too long. I haven’t had an...
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    White-Matter....

    So.. How common is it to have white-matter show up on a brain MRI when you have lupus? I recently had a MRI done for a completely different reason and they found unknown white-matter. I sent the MRI...
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    I would like some random weight loss.... lol

    I would like some random weight loss.... lol
  6. I was on prednisone (for a different condition)...

    I was on prednisone (for a different condition) for a year. Starting at 100mg every other day. The only way I lost the weight I gained from prednisone was getting off the drug. Prednisone makes you...
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    I completely understand the “push through”. I...

    I completely understand the “push through”. I woke up yesterday with chest pain. It hurt when I would take deep breaths, bend over to pick something up, sit down from standing or laying down flat. I...
  8. Thread: Flare???

    by Koilover512
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    I do that all time! Lol I put the pill line up on...

    I do that all time! Lol I put the pill line up on the counter in the morning and the thought crosses my mind....do I really need these? Hmmm lol and then my husband yells at me. He keeps me in line...
  9. Thread: Flare???

    by Koilover512
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    UPDATE: I went to doctor and she suggested that I...

    UPDATE: I went to doctor and she suggested that I start a two week regimen of prednisone. I have always hated the thought of going back on that horrible drug but if it will make me feel better then...
  10. Thread: Flare???

    by Koilover512
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    Flare???

    For the past week I have been feeling horrible. My normal symptoms are joint pain. But lately the joints havenít been so bad. Just some pain here and there like my wrist and maybe a knee. The issue...
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    Sorry you feel so bad. When I started pred. for...

    Sorry you feel so bad. When I started pred. for MG i started at 100mg. It really helped but the side effects are horrible. I only did the IVIG once. I ended up getting viral meningitis from it....
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    sorry i mean rheumy my apple autocorrected it. lol

    sorry i mean rheumy my apple autocorrected it. lol
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    My rheumatoid has suggested puting me on...

    My rheumatoid has suggested puting me on prednisone just to help give me a boost. I refuse to take prednisone for my AI. I have already been down that road and gaining 30 pounds in six months from...
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    MG is a hard AI to diagnose because it is so...

    MG is a hard AI to diagnose because it is so rare. I was diagnosed with it November of 2008. One of the reason it was so easy with me was well...because I waited until I was almost in a full blown...
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    So not feeling so great this morning. The way I...

    So not feeling so great this morning. The way I compare myself is to is a puking zombie. I am soooo out of it. I am assuming this is a medication that my body just has to get use to. The rheumy...
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    I was just curious about the neuro because I see...

    I was just curious about the neuro because I see one for my myasthenia gravis.

    How did the needle frenzy back in Feb.?
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    I have been taking Plaq. for about a year now. It...

    I have been taking Plaq. for about a year now. It took the whole six months for it to kick in. My doctor suggested me to take prednisone to help until the plaq. kicked in. I refused. I hate...
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    hello again

    So, I had another rheumy appointment today. Just the normal check up. The last month I have been starting to get random joint pain. Nothing too severe. Just like my thumb will swell and hurt or my...
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    Just wondering......Why are you going to a neuro?

    Just wondering......Why are you going to a neuro?
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    I have been on the plaq for almost a year... i'm...

    I have been on the plaq for almost a year... i'm not really in a huge flare right now. Like one random joint has swelled like every day. And I have had a little more fatigue then normal. So maybe a...
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    Hair Loss....

    Soooo I have notice some hair loss, which I believe the Lupus is the issue. Anyway I was hoping that taking the plaquenil would help and maybe help my hair grow back. But that isn't really working....
  22. I had the same thought process when I was first...

    I had the same thought process when I was first diagnosed with Myasthenia Gravis in 2008. I cant do this, i'm not strong enough, why me. I went through a short depression with it. But years later I...
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    I agree with everyone get a new doctor!!! OMG!...

    I agree with everyone get a new doctor!!! OMG! Also try to get in with a rheumy and bring your blood work with you. That will help them with kind of a base line but most likely you will need to get...
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    I had an out patient surgery on my ear back in...

    I had an out patient surgery on my ear back in August. I had a shunt put in my ear and some bone removed for my menieres disease. Anyway, I agree with SleepyInSeattle make sure EVERYONE knows you...
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    Ask your doctor if you are producing blood clots....

    Ask your doctor if you are producing blood clots. Lupus can cause you to produce clots. There are minor to major ones. The major ones can cause stroke and well death. I produce a minor one and have...
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