Search:

Type: Posts; User: Kimmers

Search: Search took 0.00 seconds.

  1. Just when I thought I knew what to expect...

    I was diagnosed with Lupus in 2007 and have done tons of research and thought I knew what to expect, but apparently I have lots more to learn!

    My husband was injured at work in June and we lost...
  2. Thread: Heat vs Sun

    by Kimmers
    Replies
    33
    Views
    6,128

    Poll: This makes me feel better. I was thinking I was...

    This makes me feel better. I was thinking I was crazy! We've skipped a number of gatherings so far this summer, when we're invited somewhere the first question I have to ask is if there is shade...
  3. Thread: Returning

    by Kimmers
    Replies
    5
    Views
    774

    Thank you everyone. It really is a blessing to...

    Thank you everyone. It really is a blessing to have somewhere to go where people understand.
  4. Thread: Returning

    by Kimmers
    Replies
    5
    Views
    774

    Returning

    I joined in late 2007 when my doctors first started suggesting Lupus, but then got pregnant within a few months of starting treatment and was blessed with a completely symptom free pregnancy and...
  5. Replies
    9
    Views
    4,575

    Thank you! That's pretty much what they told...

    Thank you! That's pretty much what they told me...that they want me to take as little medication as possible (I'm only staying on plaquenil and the thyroid meds). Plaquenil doesn't appear to cause...
  6. Replies
    9
    Views
    4,575

    Just in case anyone ends up in this situation...I...

    Just in case anyone ends up in this situation...I talked to the ob yesterday, Plaquenil is fine while pregnant.
  7. Replies
    9
    Views
    4,575

    Thanks everyone. I see my ob/gyn today and have...

    Thanks everyone. I see my ob/gyn today and have calls in to both my psychiatrist and rhum.
  8. Replies
    9
    Views
    4,575

    Is Plaquenil safe in pregnancy?

    I just found out I'm pregnant :shock: . Totally unplanned. I have a 12 year old son and thought I was done with having kids...guess not! Anyway, I've been taking plaquenil since February. I take...
  9. Replies
    13
    Views
    2,276

    Hi RedLily, I did one of those doctor conferences...

    Hi RedLily, I did one of those doctor conferences in December. It wasn't all that bad, and it was what it took to get my doc to start treating me. It still took a couple more months to get on meds...
  10. Replies
    5
    Views
    1,246

    Doc said he'd guess it was a flare or an...

    Doc said he'd guess it was a flare or an unrelated infection but asked me to reduce my plaquenil dose to 200mgs and titrate up slowly in case I'm just having a bizarre reaction to it. I sure seem to...
  11. Thread: plaquenil

    by Kimmers
    Replies
    21
    Views
    5,289

    Thank you so much for that explanation! My doc...

    Thank you so much for that explanation! My doc was really making it sound as though I needed to stay indoors at all times. I suppose that may be what he means right now as we try to get symptoms...
  12. Replies
    5
    Views
    1,246

    Thanks, I had a feeling it wasn't from the...

    Thanks, I had a feeling it wasn't from the meds...I tend to react badly to many meds, but usually right away. I was only just diagnosed a few months ago, the only symptoms I've ever had were joint...
  13. Replies
    5
    Views
    1,246

    Is this a side effect?

    I've been taking plaquenil since Saturday. I woke up this morning and my face is puffy and red, my hands, hips and knees feel like they're on fire. I feel like I have a fever and am just...
  14. Thread: plaquenil

    by Kimmers
    Replies
    21
    Views
    5,289

    I just started plaquenil on Saturday. I haven't...

    I just started plaquenil on Saturday. I haven't noticed any sleep issues, but it's making me really nauseous. I'm hoping that passes soon!

    How long does it take before it starts to work? Doc...
  15. Replies
    8
    Views
    1,811

    Well, I did the big doc convention and it seems...

    Well, I did the big doc convention and it seems they all feel it's lupus, probably caught early which is why my blood tests are contridicting each other.

    I'm to start plaquinil, but need an eye...
  16. Replies
    8
    Views
    1,811

    Thanks, I guess I'm just frustrated because one...

    Thanks, I guess I'm just frustrated because one minute they tell me they *know that it's this* then the next they change their minds. I think the only reason I haven't been sent to a shrink is...
  17. Replies
    8
    Views
    1,811

    Confused and angry

    In the past 2 weeks I have been diagnosed with lupus twice by 2 different docs. Then today I got a call from my most recent doc who said now they're thinking it may not be lupus afterall, that my...
  18. Replies
    3
    Views
    915

    Thanks so much...this place is really...

    Thanks so much...this place is really awesome...I'm learning more here than all the medical sites I've been buried in for weeks!
  19. Replies
    3
    Views
    915

    Couple questions....

    Is muscle pain a symptom of SLE or is it just joint pain? I'm trying to decide if all the stress/tension I've been dealing with has caused me to feel like I just ran a marathon or if it's another...
  20. Replies
    17
    Views
    2,467

    I haven't been able to tan, either outside or in...

    I haven't been able to tan, either outside or in a booth in several years. I thought I just had super sensitive skin until the SLE diagnosis. I used to do the tanning beds all the time because I...
  21. Replies
    2
    Views
    739

    Thank you Faith, I really appreciate the...

    Thank you Faith, I really appreciate the response. I'll go look for that book!
  22. Replies
    7
    Views
    1,576

    I've had that for years and never thought...

    I've had that for years and never thought anything of it. I am learning so much on here!! Thanks!!!
  23. Replies
    2
    Views
    739

    Just introducing myself...

    Hi, I'm Kim. I'm 30 and live in Oregon and was diagnosed with SLE 2 weeks ago. I'm currently on my 4th second opinion, but the doctors are all being stubborn so I suppose it's time to accept it. I...
Results 1 to 23 of 23