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    Ok Now I am confused

    The GP thinks I have Lupus because my ANA and other tests came back positive
    The Rheumatologist does not think I have Lupus because it does not present as a standard Lupus case (all I have heard is...
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    No worries-I have seen more "ists" than I ever...

    No worries-I have seen more "ists" than I ever knew existed two years ago lol. This has been a learning experience-not one I wanted. lol
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    I am seeing her on the 14th- after 1.5 years of...

    I am seeing her on the 14th- after 1.5 years of this stuff-I want someone to quarterback this team-each specialist and gp have their own ideas-and once they write you a script they don't want to take...
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    Not a psychiatrist-which I know is a mind Dr and...

    Not a psychiatrist-which I know is a mind Dr and probably should go to one but a physiatrist-a Dr that specializes in pain management and patient rehabilitation.
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    Physiatrist

    I have been referred to one-anyone had any experiences with them?
  6. Thanks all-I am on Pristiq for anxiety and...

    Thanks all-I am on Pristiq for anxiety and Naproxen for pain as well as tylenol extra strength. I know they are trying to find the answers, but to me who is a typical type A personality-it is...
  7. Was yesterday ever a disappointment-45 minutes...

    Was yesterday ever a disappointment-45 minutes with the nurse flushing out the details of my "story"-then a three hour wait to see Dr. Cocky for 15 minutes. Oh it does not present as a classic Lupus...
  8. Question for those of you who have had a rheumy appointment

    I was diagnosed 3 months ago and have my first rheumy appointment-they have told me to bring shorts and a tshirt and to expect to be 4 hours. Is that normal. Heck I have had first dates that lasted...
  9. Thank you so much for your response, I realized...

    Thank you so much for your response, I realized the oranges were a bad idea, but not soon enough lol-and jaded from the oranges and not sure what to eat-I kinda skipped the breakfast part -when you...
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    No worries-I did not think at all it was directed...

    No worries-I did not think at all it was directed to me. We have to try something....this year has taught me that meds are not bad and change can be good....it has been life changing lol
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    I totally get what you are saying-I had other...

    I totally get what you are saying-I had other health issues before Lupus-and I am hoping that by going gluten free-I will get rid of some of those-I DO understand Lupus is never going away.....I just...
  12. Do I have the stomach flu or new Lupus symptoms?

    I was diagnosed in October started on Plaquenil-was still having pain in December went back to the Dr and was put on 500 mg of Naprosen twice a day as well as Tecta-a stomach protector.

    I sailed...
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    You are absolutely correct Nicole-most people...

    You are absolutely correct Nicole-most people don't seem to want to hear the details of how bad it really is. Even after talking to my Mom all year long about how I felt-she seemed surprised when I...
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    You are probably correct-I guess people expect...

    You are probably correct-I guess people expect those of us with Lupus-to look worse than we do-little they know-you smile because the alternative is you cry and I have done way too much that this...
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    People being too kind.

    Since I have told people that I have Lupus-I have noticed people telling me I "Look good" or happy or healthy-I am not sure if they are throwing me pity lines-cause I look no different than I...
  16. Thanks all-this is the most frustrating thing-I...

    Thanks all-this is the most frustrating thing-I use to be the healthiest fat person you ever wanted to meet. I was happy and positive and did a tonne of stuff. Now I have lost 90 pounds and am on...
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    I have also read that sulpher veggies-ie onion,...

    I have also read that sulpher veggies-ie onion, leeks and shallots should be avoided. I am at the point I told my husband if I put food in my mouth and it tastes good I should spit it out. lol. ...
  18. Thank you for re-opening registration

    I use the handle finally_thin cause a weight loss board is the first message board I joined. (why mess with a name I can remember). I have been diagnosed a month ago after having a horrible...
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