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Type: Posts; User: Tohaveornot

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  1. Replies
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    Oh Rob, I'm so sorry. I don't know what else to...

    Oh Rob,
    I'm so sorry. I don't know what else to say. This disease is a major pain. Figuratively and literally.
    I only hope that days like these get rarer and rarer for you.
    -Hil
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    Hey, I am so sorry that your family does that....

    Hey,
    I am so sorry that your family does that. But everyone has their own ways of dealing...
    I don't know that to tell you, except that my dad has done the same thing with my hospital bills.
    Never...
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    I just have to rant

    I'm getting a little frustrated with doctors and bloodtests and all of it!
    Even if all my blood tests come back looking fine-- I still feel like crap and the symptoms persist. Part of me just wants...
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    Hey Maggie, I've been around books about Lupus...

    Hey Maggie,

    I've been around books about Lupus since I was 6, so while my experience is iffy, my knowledge is pretty solid.

    Stress is a huge trigger for a flare. It's going to be difficult to...
  5. Thread: Bad Day

    by Tohaveornot
    Replies
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    2,178

    Okay, today I feel a LITTLE better, but not...

    Okay, today I feel a LITTLE better, but not great.
    My joints still ache, but I think the cyst has ruptured so i am (Hopefully) free from that pain.

    I was in the sun on Friday for a LONG time. Do...
  6. Thread: Bad Day

    by Tohaveornot
    Replies
    12
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    2,178

    Ok, I hope you feel better... if it is a flare...

    Ok, I hope you feel better...
    if it is a flare how long do you thin kit will last?
  7. Thread: Bad Day

    by Tohaveornot
    Replies
    12
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    2,178

    I've had cysts before, so now I can diagnose it...

    I've had cysts before, so now I can diagnose it on my own.

    the pain is the big clue, haha.

    I am just on synthroid for my hypo, but It's never made me feel this bad.
    I am getting as much...
  8. Thread: Bad Day

    by Tohaveornot
    Replies
    12
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    2,178

    Bad Day

    Hey guys,

    Today I feel terrible, my head feels heavy but I am lightheaded. My entire body aches and I am so tired.

    I think I have another ovarian cyst coming on, but they have never made me...
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    Women with lupus are at higher risk to develop...

    Women with lupus are at higher risk to develop ovarian cysts and endormetriosis.

    Both can manifest w/ or w/o pain.

    The only way to check for endo is w/ a laproscopy, which is not a fun surgery
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    Wow, thank you guys so much. The response is...

    Wow, thank you guys so much. The response is really encouraging.

    My mother does have lupus nepheritus (spelling is off, sorry) and hypothyroidism.

    I forgot to mention heart palpitations....
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    Please Help Me

    I am a 16 year old female with a family history of lupus. My mom was diagnosed when I was in kindergarten and is now in remission. I have grown up around books about lupus and autoimmune but I am...
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