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Type: Posts; User: indigo

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  1. Replies
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    Hi I've got lupus and now it looks like I might...

    Hi
    I've got lupus and now it looks like I might have hashimoto's too. I've just been diagnosed with thyrotoxicosis from my blood tests and referred to an endocrinologist. I've had a thyroid scan,...
  2. Thread: lupus nephritis

    by indigo
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    Thanks Saysusie, that information is very...

    Thanks Saysusie, that information is very helpful. I thought it would be unusual for the plaquenil to cause kidney damage because that is what it is trying to protect against. I see my new...
  3. Thread: lupus nephritis

    by indigo
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    lupus nephritis

    Hi everyone,

    I'm a bit curious at the moment about lupus nephritis. I've been on plaquenil for my lupus for almost three years and one thing that showed in my recent tests was protein in the...
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    Hi, Just thought I'd reply to your post...

    Hi,

    Just thought I'd reply to your post because I have had the same blood result - 1:640 anticentromere (I also had 1:640 nuclear at the same time). I was diagnosed with lupus because my symptoms...
  5. Thread: so hurt

    by indigo
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    so hurt

    I'm feeling so hurt by my dad's comment. I stupidly mentioned my lupus to him and said that maybe I'll have to go to the doctor if I don't get better soon and then he said isn't it just caused by...
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    hey, Just wanted to add my alopecia experience...

    hey,

    Just wanted to add my alopecia experience - mine happened with lots of bald patches all over my head, some growing back as some new ones were forming, and i think it had all grown back after...
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    Hi Mari I'm glad you asked this because I was...

    Hi Mari

    I'm glad you asked this because I was just about to ask you the same things after I read your other post! I was diagnosed with epilepsy after I had one tonic clonic seizure that was...
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    Thanks, I saw that you are on DSP, me too and so...

    Thanks, I saw that you are on DSP, me too and so grateful for that. See it's the fact that they rely a lot on what you say and not just your blood tests that bothers me - what you say makes a...
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    bit confused about meds

    Hey everyone,

    Sometimes I just get so confused trying to work out what's wrong with me and how to deal with it!! I've been diagnosed with lupus for which I take plaquenil, epilepsy for which I...
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    Hi Deemarie1223, I just had my own brain fog...

    Hi Deemarie1223,

    I just had my own brain fog doctor appointment experience so I know what you mean about the embarrassment! I just went to see my new dr who is very nice and helpful and she...
  11. Thread: Lurkers

    by indigo
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    Hey everyone, Thanks for being so openhearted...

    Hey everyone,

    Thanks for being so openhearted and inviting:) and sorry for having been a lurker before now!!! I'm also on the autism spectrum (high-functioning) so I'm not that great at joining...
  12. Thread: hello

    by indigo
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    422

    Just wanted to say thanks for the warm welcome. ...

    Just wanted to say thanks for the warm welcome. I can see that you are like family and very supportive of each other and I'm glad I've joined in. i can't really think of what to say right now, bit...
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    Gosh this thread was useful, something just...

    Gosh this thread was useful, something just clicked and now I can recognise my flares!!! There is a big difference between me on a good day and me on a bad day so I guess the bad days are my flares....
  14. Thread: hello

    by indigo
    Replies
    8
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    422

    hello

    Hi everyone,

    I've often visited this site to gain comfort when I'm having a hard time with my lupus but I've never actually posted so this feels weird. I was diagnosed with lupus just over a year...
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