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Type: Posts; User: silverlioness

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  1. Replies
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    Hey sits inthe corner! Thank you for thinking of...

    Hey sits inthe corner! Thank you for thinking of me.

    Luckily I do still have a small group of (very dedicated) friends, too. You are right on about my tendancy to take on other people's...
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    Isolation is easier for me, too. I know it's not...

    Isolation is easier for me, too. I know it's not emotionally healthy, but "normal" people don't understand. I discussed my depression with a psychologist. He gave me permission to live one day at...
  3. Thread: Itchy

    by silverlioness
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    2,390

    I itched like crazy almost 24-7 and much worse at...

    I itched like crazy almost 24-7 and much worse at night. I'd wake up scratching myself. I found out that I was very vitamin D deficent which caused me to have hyperparathyroidism. My vitamin D...
  4. Thread: Confused

    by silverlioness
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    807

    I was having intense, continuous itching. I...

    I was having intense, continuous itching. I found out my Vitamin D level was extremely low. Now that I've been on a supplement, the itching is gone. It also was causing extra fatigue.
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    My vitamin D level was also very low. I...

    My vitamin D level was also very low. I developed secondary hyperparathyroidism. I went to an endocrinologist. She has me taking 2000 mgs per day for a month and then 1000 mgs per month until I...
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    I inadvertently figured this one out on my own. ...

    I inadvertently figured this one out on my own. I get so fatigued that I can barely move when I go to the store.
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    I go without a shower a lot too. I just don't...

    I go without a shower a lot too. I just don't have the energy either. The most I go is three days because my hair starts to look like on oil slick and my head starts to hurt :lol: My husband tries...
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    They put a tube with a camera and tools (an...

    They put a tube with a camera and tools (an endoscope) down my throat and into my stomach and the area right past my stomach (the duodenum). Endoscopically might not be a word - but they did my...
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    I am personally against all elective procedures. ...

    I am personally against all elective procedures. This is because I had an elective procedure that was done endoscopically and under heavy sedation. It seemingly was no big deal. Let me mention now...
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    Right now, you can only see my butterfly rash...

    Right now, you can only see my butterfly rash right after I wash my face. I have very sensitive skin, which I'm sure is lupus related, and have a very pale complexion. I get weird rashes...
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    I agree.

    I agree.
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    Pietra Cherniak (a model), Billy Bob Thornton's...

    Pietra Cherniak (a model), Billy Bob Thornton's ex-wife, has lupus.

    Also, concerning Mercedes from America's Next Top Model - on a "where are they now" show, she described lupus as a "chronic...
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    L'Oreal Sublime Bronze

    I have a red complexion and the tanner is golden, so I had an issue where my arms meet my hands. I also, at first, had problems with my knees, elbows, and feet. I used lemon juice to lighten my...
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    I just tried L'Oreal Sublime Bronze (today and...

    I just tried L'Oreal Sublime Bronze (today and yesterday). I'll have to let you know how it works when I get the kinks worked out. This is the first time I've used a self tanner in 15 years. They...
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    Butterflies and avatars are back!!! I feel like...

    Butterflies and avatars are back!!! I feel like a kid on Christmas morning! :) :lol:
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    My Rheumatologist told me that it meant nothing...

    My Rheumatologist told me that it meant nothing for the titer to move up and down. He also said that it increasing didn't mean that the disease was progressing. [I assume that's true. I really...
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    I have a big bottle of Nystatin. I've probably...

    I have a big bottle of Nystatin. I've probably used it for three treatment periods since November. It would help a little, then things would just get worse. Thanks for the suggestion though. This...
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    Although I've never been dizzy from it, the...

    Although I've never been dizzy from it, the sticker on my bottle says "may cause dizziness."
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    I wondered if you had MRSA (methicillin resistant...

    I wondered if you had MRSA (methicillin resistant Staphylococcus aureus) when you had mentioned your infection before. The doctor just diagnosed me with MRSA a week and a half ago. My infection is...
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    You are not crazy. You will find someone to help...

    You are not crazy. You will find someone to help you. :)

    You are going to have to move on from that rheumatologist. Think of it this way... if you hire a painter to paint your house green...
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    Good. I am glad it wasn't just my computer. I...

    Good. I am glad it wasn't just my computer. I would have never figured out how to fix it.
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    I haven't been able to see avatars or the...

    I haven't been able to see avatars or the butterflies since the site has come back up (there is just a white box with a red "x"). Is this just me? Do you know of any way to fix it?

    P.S. I've...
  23. I've had the spots with the tunnel vision before...

    I've had the spots with the tunnel vision before when my blood sugar was low. I don't have any normal problems with my blood sugar levels. I just forget (or am too lazy) to eat sometimes. :oops:
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    You're welcome. I'm glad we all have each other.

    You're welcome. I'm glad we all have each other.
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    I'm the exact opposite. If the air is on, I'm...

    I'm the exact opposite. If the air is on, I'm trying to find a way to turn it off. My hands (and sometimes my nose) turn blue, get stiff, and start hurting. I will tolerate 110 degree heat to...
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