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    hi kat and welcome. the skin discolouration is...

    hi kat and welcome.

    the skin discolouration is from the skin pigment being altered.
    any psoriasis can cause this.

    I have it on my ankles and feet also.
    it will become vivid and fade as the...
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    sorry you are still having problems with this. ...

    sorry you are still having problems with this.

    glad you are still around here, and doing ok on the pred.

    hugs
  3. the reason we have lupus,(or any other auto...

    the reason we have lupus,(or any other auto immune disorder) ...
    is because our immune system is in overdrive.

    to me,.... anything that is designed to boost the immune system is not right for us.
  4. Thread: New Member

    by steve.b
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    hi Robert, and welcome unfortunately tinnitus...

    hi Robert, and welcome

    unfortunately tinnitus is a known side effect from lupus.
    I am undergoing a retraining therapy to try to get me used to mine.

    it is also common for us to have good...
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    heron, what you post on here will NOT be seen...

    heron,
    what you post on here will NOT be seen there.
    they are 2 different systems, and we are keeping them separate.....


    I have a facebook account ...
    anyone can find me ....
    but they can...
  6. getting properly diagnosed can be very confusing...

    getting properly diagnosed can be very confusing ....
    remember there is no test for what we have.
    and there is over 60 different auto immune disorders,
    all with overlapping symptoms.

    so it...
  7. we had this information last week. but thank you...

    we had this information last week.
    but thank you for sharing it again.

    there appears to be some good promise with this ......
    but unfortunately more money is needed to take the testing further.
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    hi sage hen, there is quite a few of us that...

    hi sage hen,
    there is quite a few of us that have the same combination of fibro and lupus. ....
    so you are not alone.

    please tell us a little more about yourself.
  9. Thread: New here

    by steve.b
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    hi britt, and welcome. please tell us a...

    hi britt,
    and welcome.

    please tell us a little about yourself,
    and what brought you here.
  10. Thread: Sooo confused

    by steve.b
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    hi Sheryl, and welcome. sorry there are no...

    hi Sheryl,
    and welcome.

    sorry there are no doctors as members on this forum .....
    so we cannot diagnose you.
    we can comment on our own experiences ...

    yes all of these symptoms may come from...
  11. there is 4 types of lupus. there is details...

    there is 4 types of lupus.
    there is details about each in our site ...

    one of the best descriptions for discord is ......
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    thank you for the update :) glad he has...

    thank you for the update :)

    glad he has maintained his improved health ...
    I am very happy !!!!

    btw .. who ever goes well in trig ???
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    hi and welcome, I am a male, and do not know...

    hi and welcome,

    I am a male, and do not know about your concerns ......
    but I did want to say hi and welcome.

    someone else will hopefully be able to give you some more information.
  14. Thread: Lumps on scalp

    by steve.b
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    902

    it is never a problem with asking questions of...

    it is never a problem with asking questions of your rheumatologist.

    if you are unsure of what is causing your problem .......
    ask.
    knowledge is power.
    not knowing can be scary.
  15. the amount of plaquenil we take is usually not...

    the amount of plaquenil we take is usually not enough to lead to eye problems ......
    but in stronger doses it is a well known side effect.

    so .......
    for safety we also have our vision checked...
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    hi Michele, sorry I cannot help with your...

    hi Michele,
    sorry I cannot help with your question ....
    but I did want to say hello to you.
    hopefully someone else will have more information.
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    I would suggest going to see a rheumatologist...

    I would suggest going to see a rheumatologist ....
    they are the specialist that deals with our type of problems.

    I would also talk to a chemist about folic acid supplements.
    please do not take...
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    if you are looking for reliable "fodmap" details....

    if you are looking for reliable "fodmap" details.
    go to the website for monash university in Australia ......
    they are credited as discovering fodmap.
    and have quality information.

    I use them :)
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    I have found natural sugars to be harder to stop...

    I have found natural sugars to be harder to stop taking.
    the quality of sugar they supply is quite strong, so please be careful how much you take.

    a dietician can help if you need advice.
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    I can only presume she has no knowledge of lupus...

    I can only presume she has no knowledge of lupus ....
    so she will not treat what she has no understanding of.

    if it was me .....
    I would seriously be looking for another doctor.
    I use my gp as...
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    hi allie, and welcome. there are a few of us...

    hi allie, and welcome.

    there are a few of us "aussies" on here.

    please remember you are not alone with this.
  22. Thread: test results

    by steve.b
    Replies
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    176

    unfortunately it is impossible to tell if someone...

    unfortunately it is impossible to tell if someone has lupus ...
    just from a blood test.

    that is why we need to go and see specialists like a rheumatologist.
  23. hi, and welcome ... it is good to see that...

    hi,
    and welcome ...

    it is good to see that your medical team are keeping active to help you.
    many of the members here find it hard to find such an active medical team, you are lucky with them.
    ...
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    hugs ..... it is hard to understand why. ...

    hugs .....

    it is hard to understand why.

    but life is still worth living

    hope you find some peace.
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    oluwa, thinking of you, and hoping you can...

    oluwa,
    thinking of you,
    and hoping you can find answers.
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