Search:

Type: Posts; User: OmaLaura

Search: Search took 0.00 seconds.

  1. Replies
    15
    Views
    1,920

    Rob, Thanks for the welcome. Yes, to say I...

    Rob,

    Thanks for the welcome.

    Yes, to say I was scared was an understatement! Never prayed harder and I did not sleep the entire night prior.

    Not sure what the hospital pharmacy was...
  2. Replies
    15
    Views
    1,920

    Sleepy in Seattle - To answer your question on...

    Sleepy in Seattle -

    To answer your question on why some of us chose Benlysta, I can only speak for my own reasons..

    For me, Benlysta was a last resort decision. Over the years, I had exhausted...
  3. Replies
    15
    Views
    1,920

    Phyllis, So glad to hear your Benlysta...

    Phyllis,

    So glad to hear your Benlysta treatments are getting easier for you and hope your 4th treatment went well for you too. Are you seeing a change in lupus symptoms - having less flares...
  4. Replies
    10
    Views
    3,001

    Sticky: spoon theory reply.

    I love the "spoon theory" and have pulled from it many a time to explain the exhaustion I feel and how easily my energy is used up and gone before I have even gotten dressed for the day. After...
  5. Lauren, So sorry you had such a...

    Lauren,

    So sorry you had such a violent reaction to the benlysta infusion. What a terrifying experience. I am so glad you realized what caused it and didn't do your next treatment. I...
  6. Replies
    4
    Views
    168

    Thanks for posting this. I found this quite...

    Thanks for posting this. I found this quite interesting. Some of the symptoms - lesions on the brain, memory loss, severe fatigue, eye pain, muscle spasms, etc. - sound like M.S. It seems like so...
  7. I too had never heard of this. Wow! Why don't...

    I too had never heard of this. Wow! Why don't the rheumy's know this and the pharmacists? I have been on Plaquenil (and then on the generic) now for 18 years. I am 5'2" and tiny boned and was...
  8. Replies
    3
    Views
    162

    amazing how those little ones give us strength to...

    amazing how those little ones give us strength to keep on going!
    thanks for the note
    Laura♡
  9. Replies
    15
    Views
    1,920

    benlysta and benedryl

    Phyllis you mentioned the nurse gave you benedryl prior to giving the benlysta infusion. What is it supposed to help? or is it so you don't have an allergic reaction? Thanks and good luck with your...
  10. Replies
    8
    Views
    205

    LilJenni, Welcome, Personally, I don't...

    LilJenni,

    Welcome,

    Personally, I don't believe the number of years spent fighting this disease makes a difference in regards to emotions. Whether it's day one or day 1001, you were feeling the...
  11. Replies
    3
    Views
    162

    Dropping in to say Hi ♡

    Hello all :cute:

    I wanted to say "HI" and introduce myself. My name is Laura and I was dx with SLE and Discoid in 1995. Like most everyone else, I have lots of other ailments and have had many...
  12. Replies
    15
    Views
    1,920

    Hi, I am new to this forum. Was looking for...

    Hi,

    I am new to this forum. Was looking for someone who had previous experience with benlysta and stumbled on your post.

    Phyllis, it looks like we are on pretty close to the same infusion...
Results 1 to 12 of 12