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Type: Posts; User: Henry

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    Pleurisy

    I got pleurisy while/after having pneumonia three times in a row. It lasted on and off (mostly on) for two years and finally abated last Feb. Now it is very intermittent and short lasting.
  2. Thread: Finally :D

    by Henry
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    AM dose

    Take steroids at night and you will probably have trouble sleeping.
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    Burn

    I had the burning feet and hands intensely at the beginning of my illness.
    Now, its just an occasional nuisance.

    Teroid- When your legs stiffen up, does it hurt inside at the same time?
    Kind of...
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    Fortunately, I have not experienced any dizziness...

    Fortunately, I have not experienced any dizziness or vertigo.
    I've got permanent hearing loss in left ear now. High frequency is gone.
    Doctor felt it was auto-immune related.
    I didn't know about...
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    I've been there. My pain would shoot through...

    I've been there. My pain would shoot through shoulder areas of the chest.
    I found it perplexing. The pulmonologist said the nerves run up that way too.

    Albuterol, pain meds and steroids. 2 1/2...
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    Update

    I went to the Neurotologist today and he looked over my brain MRI and said
    "No tumors" :D
    He is not going to make me take methotrexate. :D
    He just said deal with pain best you can and call him...
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    Re: A new face around here

    Roller Derby! That's awesome.
    I play Disc golf every Sunday (when able). I pay for it every Monday,
    with extra fatigue, stiffness, and muscle ache. But like you, I get out,
    enjoy the outdoors, get...
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    Hearing

    I went to the neurotologist today. He said the hearing loss and pain was
    auto-immune related. I have to go get an MRI of my head. I guess to rule
    out a tumor. Then back to doctor to discuss any...
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    Hearing

    I'm having similar problems and I'm calling to set up an appt today with
    the Neurotologist. The Ear doc said he may suggest methotrexate.
    I did a little looking around and the only treatments I saw...
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    No, I'm still taking the same meds. Its...

    No, I'm still taking the same meds. Its inflammation of one of the nerves
    caused by the disease as I understand it.
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    Follow up

    I went to ear doc, she found hearing loss. Went to audiologist and did an auditory brainstem response test that turned out normal. The ear doc now says I have to see a nuerotologist and may have too...
  12. Thread: Boniva

    by Henry
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    Boniva

    I've been taking the Actonel once a week, but just tried a sample of
    the Boniva last week and did not find it much different that the Actonel.
    I was already taking Aciphex before I started the...
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    Job

    You made the right decision.
    If you had stayed they would have either made your life h*ll,
    or looked to replace you on their timetable, because you signaled
    to them that you were unhappy by...
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    I'm 44 and live in Georgia. I've learned a lot...

    I'm 44 and live in Georgia.
    I've learned a lot from this board. I have an Undifferentiated Connective
    Tissue Disorder that is Lupus like.

    I've been in printing or advertising for 26 years. If...
  15. Thread: Job concerns

    by Henry
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    Print

    Maybe they would give you an opportunity to train in estimating
    or customer service to get you off the press.
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    Plaquenil

    I've been taking Plaquenil for about two years. For the third time
    in as many months I've had ringing and loss of hearing in an ear.
    It has been left and right ears. It has cleared up within a day...
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    Imuran

    I have a undifferentiated connective tissue disorder and I tried Imuran twice and both times got Pancreatitis.
    It was supposedly a rare side effect.
    I stick with the plaquenil and steroids.
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    Good luck at the doctor beautifulbeluga. ...

    Good luck at the doctor beautifulbeluga.

    Thanks for the info on the Medrol, Qrthrsgal and MaryCain.
    You're right about side effects. I have to take Actonel now
    because it's thinning my bones.
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    Steroids

    I have taken 8mg of Medrol (Methylprednisolone) every other day for almost
    two years, occasionally tapering from 24mg back down to 8mg when in a flare.
    I have cut to 4mg every other day for two...
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    FYI

    If you're packing pills, take along proof that they're yours
    Carrying medication in original bottles may be bulky, but that's the law.
    ...
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