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    thanks nonna I agree but I worry she will go to...

    thanks nonna I agree but I worry she will go to any length even try to go to usa to get help she is already emailing and calling. I worry she will hit deep depression if she does not get the answers...
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    serious question for everyone

    I have joined local online support group and I a worried about one girl she seems to have been told that the usa at the mayo clinic is doing research on stem cell research and she has it in her head...
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    30 anniversary tommorrow

    well hubby and I are planning nice lunch at restaurant for our anniversary . could not afford presents but we do not care. just being together is enough reward for us. has not been the easiest 30...
  4. Thread: flu injections

    by kim,l
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    flu injections

    well the whole family going on Friday to have flu shots because of our chronic illnesses we have been told to get as soon as possible as flu seasons looks like it is going to hit early this year....
  5. Thread: Stomach Issues

    by kim,l
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    have you checked for celiacs disease. also...

    have you checked for celiacs disease. also gallstones which are both common things that a lot of us have had also irritable bowel. is something also to look at my daughter does what you do all the...
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    adjustment is hard and not very much fun hang in...

    adjustment is hard and not very much fun hang in there hope you feel better soon.
  7. I go swimming or go for a drive down to our local...

    I go swimming or go for a drive down to our local beach and just look at the bay. it calms me. I also watch movies on you tube.
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    tapering off your medication is a fear in itself...

    tapering off your medication is a fear in itself I tapered off my prednisone for a year before I finally stopped it at Christmas . was not the most happiest time of my life I worried what damage it...
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    thankyou steve you are a good friend just a...

    thankyou steve you are a good friend just a little overwhelmed right now hopefully things will settle down soon and then I can rest.
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    up date on daughter

    well mikaela has been put on propranol to lower her heart rate she had a monitor on for 24 hours and her heart rate varies it went up to 159 beats per minute at one stage she is tired all the time....
  11. thank you steve you are good friend very worried...

    thank you steve you are good friend very worried about her. just wish I new what was wrong am scared for her and in someways am worried that she has inherited this from me due to my lupus. she is so...
  12. has anyone heard of postural orthostatic tachycardia syndrome

    hi everyone just wondering as anyone had this or know about it my 18 year old is having trouble with high heart rate. and low blood pressure when standing. she is suffering headaches . anxiety...
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    glad your are back missed you.

    glad your are back missed you.
  14. yes I find I have to stay away from people who...

    yes I find I have to stay away from people who have become sick otherwise I become very unwell in part due to mexotrexate. our immune systems just are just lower than other peoples.
  15. glad your back missed you.

    glad your back missed you.
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    thankyou for my birthday wish hanging In there...

    thankyou for my birthday wish hanging In there steve determined to get through it.
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    yes well I have been off it since Christmas and...

    yes well I have been off it since Christmas and now am feeling affects gp has placed me on endone to give me some relief from pain but I will soldier on a gie it a few more weeks and hope pain...
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    happy new year from australia

    to all my dear friends here have a happy new year and may it be a better year for all of us.
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    hi I went from 5mg to 2,5mg it affected me a bit...

    hi I went from 5mg to 2,5mg it affected me a bit with pain but I adjusted just give it a few weeks I have been on 2.5for 10 months now and if it is not working for you see your doctor. I am now...
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    merry Christmas everyone have happy wonderful day.

    merry Christmas everyone have happy wonderful day.
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    thanks for update on linda have been thinking...

    thanks for update on linda have been thinking about her lately hoping she was alright. maybe oneday she will feel comfortable enough to get in touch again we miss her.
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    thankyou steve it is good. and it is good talking...

    thankyou steve it is good. and it is good talking to you you always cheer me up have a wonderful Christmas steve. hugs kim
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    i found a support group

    hi everyone I am so pleased as well as having all my dear friends here. I have also found a support group in hervey bay and have been befriended and and asked to join there group. also as well as...
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    happy belated birthday steve hope you had a good...

    happy belated birthday steve hope you had a good one hugs kim
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    I have lupus and have had ovarian cysts and had 2...

    I have lupus and have had ovarian cysts and had 2 removed. my eldest daughter has had 4 very extremely large cysts removed and she has lupus and endometriosis and is prescribed the pill. I also...
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