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  1. Thread: I am lost.

    by Oluwa
    Replies
    243
    Views
    24,635

    Thank you, Carlotta. I am originally from a small...

    Thank you, Carlotta. I am originally from a small city in Michigan, so my Daddy was well known. It was overwhelming being in grief and meeting cousins you remember from when you 8 years old....
  2. Thread: I am lost.

    by Oluwa
    Replies
    243
    Views
    24,635

    Thank you everyone for your sympathy,...

    Thank you everyone for your sympathy, empathy....my Daddy fought to the very end. Sometimes the body that houses our spirit is ready to go before our spirit. He is loved by many, many...over 300...
  3. Thread: I am lost.

    by Oluwa
    Replies
    243
    Views
    24,635

    My Daddy died 11:55PM EST December 1, 2013. I...

    My Daddy died 11:55PM EST December 1, 2013. I can't believe he is gone too. I am in disbelief....I love my Daddy.
  4. Replies
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    383

    Aww..you're welcome, Carlotta. I was up...

    Aww..you're welcome, Carlotta. I was up celebrating you at 1:00am on FB...did you see me on your wall? Then I crawled into bed. I hope your day was all that you wanted it to be with sprinkles on...
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    383

    Saysusie...Woot..it is your Birthday.

    Happy, Happy Birthday to you, Carlotta. Celebrating you...Tight hugs with birthday kisses...Mwah.
  6. Replies
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    Oct. 17, 2013 Open Letter to Judge Judy ...

    Oct. 17, 2013
    Open Letter to Judge Judy

    Over the last few days many of you have expressed your concern and outrage over Judge Judy’s recent remarks about lupus during her interview on Friday,...
  7. Replies
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    1,245

    Petition

    Please sign. It is from a fellow Lupie..

    http://petitions.moveon.org/sign/hold-judge-judy-accountable.fb40?source=s.fb&r_by=9270077
  8. Replies
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    1,245

    A person has to understand the whole context it...

    A person has to understand the whole context it was given in. The title of the interview was called
    “Judge Judy Sheindlin on taking personal responsibility.”
    It was about a list of people, disable...
  9. Thread: Hello

    by Oluwa
    Replies
    2
    Views
    181

    Welcome, Sherrigski. You will find, kind, loving...

    Welcome, Sherrigski. You will find, kind, loving and uplifting support, how to cope and a wealth of information regarding Lupus here. I am happy you found us. If I can help you in anyway please...
  10. Replies
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    I received this email from her staff....another...

    I received this email from her staff....another generic letter

    Post Office Box 949 w Hollywood, CA 90078

    October 18, 2013



    We appreciate your interest in JUDGE JUDY. We strive to...
  11. Replies
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    1,245

    Please do not let Judy's comments about...

    Please do not let Judy's comments about disability or anyone deter you from filing for disability. You are not weak. You are not irresponsible. You have a disease, an incurable one at that... that...
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    In summary, in one sentence about people taking...

    In summary, in one sentence about people taking personal responsibility. Not exact but pretty close..."people who are drug addicts, have carpal tunnel..er, ah... LUPUS work the system to get...
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    JUDGE JUDY's IGNORANCE

    Regarding the recent Fox News Interview of Judge Judy touting her book..and I use the word judge loosely. I must stand up as an advocate for Lupus....

    I am Oluwa and I have Systemic Lupus...
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    Thank you for her life, Carlotta, Richard and...

    Thank you for her life, Carlotta, Richard and God..for the day Laurie was born. Thank you Laurie for your life..it brought all of us together in a place, in space...WeHaveLupus.com. Without you,...
  15. Thread: I am lost.

    by Oluwa
    Replies
    243
    Views
    24,635

    Shanna..I am sorry you know of such a loss too....

    Shanna..I am sorry you know of such a loss too. My heart has great empathy for you. Head hugs. Be well..O.
  16. Regarding the itches, for me it is usually from...

    Regarding the itches, for me it is usually from my prescribed pain pills..i.e., Tramadol, Vicodin.

    For the legs, burning, achy, jumpy and etc ask you DR about Restless Leg Syndrome. I have that...
  17. Thread: I am lost.

    by Oluwa
    Replies
    243
    Views
    24,635

    Grief is like recycling..they said it resurfaces....

    Grief is like recycling..they said it resurfaces. Books, people and my own heart. Recycling to me means, there is no schedule, there are no sequences and it repeats itself and remakes itself, over...
  18. Thread: my face!!!!

    by Oluwa
    Replies
    3
    Views
    188

    Tight hugs...First of all, right now, go splash...

    Tight hugs...First of all, right now, go splash some cool water on your face to help with the swollen eyes from crying. Calm your mind, as Lupus loves stress..it keeps it alive, thriving.

    Have...
  19. Replies
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    It can be daunting, intimidating to change our...

    It can be daunting, intimidating to change our routine, but for us managing our disease also consist of maintaining our current health in the form of exercise and nutrition.

    I am always...
  20. Replies
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    For me..usually it is one word 'Pace'. But I do...

    For me..usually it is one word 'Pace'. But I do know if I live hard, have fun, which I do too... have a few cocktails, dance....paint the house and etc ....push myself through a day or two, Lupus...
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    Hello..hugs, Creekbank. Some say to wait until...

    Hello..hugs, Creekbank.

    Some say to wait until you have been denied, but if it was me I would atleast seek one out for a consultation. It will cost you nothing.

    I believe you would have to...
  22. Replies
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    Hello CreekBank... Here is the link to the...

    Hello CreekBank...

    Here is the link to the post I wrote a while ago in this forum. Follow the yellow brick road. http://forum.wehavelupus.com/showthread.php?5930-SSI-evaluation-with-SLE

    If...
  23. Thread: steves big step

    by Oluwa
    Replies
    10
    Views
    231

    How wonderful is this..Much. Continue to have...

    How wonderful is this..Much. Continue to have faith and believe in yourself just as you had when you put yourself on the ballot. Pace, pace that is what our life is all about it. Listen to rhythm...
  24. Thread: I am lost.

    by Oluwa
    Replies
    243
    Views
    24,635

    Bola's loves could go on forever...Bola's...

    Bola's loves could go on forever...Bola's dislikes list is so, so, much shorter. Bola is loved and missed by me. My heart has been heavy.

    I realized today, I think the 'anxiety' I have is...
  25. Thread: I am lost.

    by Oluwa
    Replies
    243
    Views
    24,635

    He loved the color green. He loved the smell of...

    He loved the color green.
    He loved the smell of vanilla.
    He loved vanilla ice cream.
    He loved hot white chocolate.
    He loved the fresh powdered snow.
    He loved the cold.
    He loved that his...
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