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  1. Thread: SLE Lupus

    by Saysusie
    Replies
    8
    Views
    280

    It never ceases to amaze me how ignorant,...

    It never ceases to amaze me how ignorant, uncaring, and cavalier some doctors can be. I agree, let's throw rocks at his windows, let's egg his house, let's key his car!! Well, since we can't do any...
  2. No problem at all. Please keep us posted on how...

    No problem at all. Please keep us posted on how it goes :-)

    Peace and Blessings
    Namaste
    Saysusie
  3. Replies
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    2,562

    Hi Bekp: St. James, Marycain, and Vernb2 are...

    Hi Bekp:
    St. James, Marycain, and Vernb2 are no longer active members of this forum and, as such, will probably not respond to your question! Sorry

    Peace and Blessings
    Namaste
    Saysusie
  4. Replies
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    26

    Hello Richard and welcome to our forum. I look...

    Hello Richard and welcome to our forum. I look forward to getting to know you. Please feel free to start any discussion and/or participating in any discussion. I'm glad that you found us.
    ...
  5. Hi Bekp; I answered your questions in your...

    Hi Bekp;
    I answered your questions in your previous post. Please let me know if you need anything further.

    Peace and Blessings
    Namaste
    Saysusie
  6. Hi Bekp; Welcome to our family. I'm glad that...

    Hi Bekp;
    Welcome to our family. I'm glad that you found us and that you decided to join us. I will try to answer your questions as best as I can and hopefully, someone else will come along with...
  7. Replies
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    37

    To My WHL Family

    Your presence is a present to the world
    You are unique and one of a kind
    Your life can be what you want it to be
    Take the days just one at a time

    Do not doubt your ability to be as well as you...
  8. Thread: Hope

    by Saysusie
    Replies
    8
    Views
    1,346

    Hi Nonna; I'm so sorry to hear that you are in...

    Hi Nonna;
    I'm so sorry to hear that you are in a bad place now, especially after a whole year in remission. I am praying for you and with you and I, too, hope that you can get back to some form...
  9. Thread: SLE Lupus

    by Saysusie
    Replies
    8
    Views
    280

    Oh my gosh, you have been through so much and in...

    Oh my gosh, you have been through so much and in such a short period of time. I'd like to find that doctor in January 2014 who said that there was nothing wrong with you...I'd like to pummel him...
  10. Thanks Steve; They've been suggesting for a...

    Thanks Steve;
    They've been suggesting for a while that infections and viruses can trigger flare-ups, but never understood the mechanism by which this occurred. I hope that this study can discover...
  11. Replies
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    Hello Helena; Welcome to WHL. Please tell us...

    Hello Helena;
    Welcome to WHL. Please tell us a bit about yourself so that we can get to know you. I hope that you find some answers, support, and information here that helps you!

    Peace and...
  12. Thread: Sle

    by Saysusie
    Replies
    1
    Views
    44

    Hi Rachelfaye; Welcome to our family. Like...

    Hi Rachelfaye;
    Welcome to our family. Like many of us, it was a relief to finally have a name for the many things that ailed us for years. While we hate having this disease, we are happy to know...
  13. I took the survey. I hope that it helped her,...

    I took the survey. I hope that it helped her, even though many questions did not really fit me as my diagnosis was more than 20yrs ago (lol) Peace and Blessings Namaste Saysusie
  14. Replies
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    1,488

    Hi Professor825; Thank you for sharing your...

    Hi Professor825;
    Thank you for sharing your story. I learned something!!! Thanks again

    Peace and Blessings
    Namaste
    Saysusie
  15. Thread: Seizures

    by Saysusie
    Replies
    4
    Views
    232

    I can hear the fear and frustration in your words...

    I can hear the fear and frustration in your words and your feelings are well founded. No one wants to accept the prospect that this will be their life. I cannot tell you that it will all be OK or...
  16. Replies
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    Hi Oilgaslb; Steve has given you great...

    Hi Oilgaslb;
    Steve has given you great information and advice about a yearly revue of your medications. Is Plaquenil the only medication that you were taking? I will try to give you a basic...
  17. Thread: Hello

    by Saysusie
    Replies
    4
    Views
    200

    Hi Talencia; I think I'm in love with your...

    Hi Talencia;
    I think I'm in love with your doctor (lol)! You would not believe how many doctors WILL NOT treat symptoms without a definitive diagnosis. So, many patients end up suffering...
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    Thank you for those kind words Steve....warmest...

    Thank you for those kind words Steve....warmest {{{{hugs}}} and a huge THANK YOU for all of your devotion to this site! More warm {{{{hugs}}} lol


    Always
    Saysusie
  19. Replies
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    91

    Hi TEBEAR; You've come to the right place if...

    Hi TEBEAR;
    You've come to the right place if you are looking for comfort, understanding, support, and information. That is our purpose and we are here for you for as long as you need us. As...
  20. Thread: Seizures

    by Saysusie
    Replies
    4
    Views
    232

    Hi Justomegirlindallas; Usually, high dose...

    Hi Justomegirlindallas;
    Usually, high dose steroids and/or cytoxan or cyclophosphamide are used to treat CNS Lupus. If the case is severe, high dose intravenous immunoglobulin (IVIG) are often...
  21. Replies
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    5,403

    Hello Marie; Nellie and Jen have not posted...

    Hello Marie;
    Nellie and Jen have not posted here on WHL in over two years :-( They will not be responding to your questions, sorry!

    Peace and Blessings
    Namaste
    Saysusie
  22. Replies
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    2,415

    Hey Oluwa; I love the idea of "fix my body...

    Hey Oluwa;
    I love the idea of "fix my body month!!" I think that we should all probably do that..maybe quarterly (lol).
    I am so glad that you are feeling well AND that the medication is still...
  23. Replies
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    195

    That is so wonderful. I guess Steve is right,...

    That is so wonderful. I guess Steve is right, animals do have a sixth sense that we will never understand. There are some people who refuse to see animals as anything other than "pets", when in...
  24. Thread: confused...

    by Saysusie
    Replies
    1
    Views
    148

    Hi leshalee: I was hoping that someone with...

    Hi leshalee:
    I was hoping that someone with similar rashes as yours would respond to your post, but no one has and I apologize for that. Please let us know how your rashes are? Has your doctor...
  25. Hi Becky; I am not a doctor, but I have to say...

    Hi Becky;
    I am not a doctor, but I have to say that I've never seen test results written this way. It appears that the first grouping is just an explanation of the tests and what values are used...
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